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Sydney Opera House and harbour with blue sky

The PaCCSC & CST Research Forum 2025 program will run over two days. Day 1 will focus on cancer symptom and management and day 2 will focus on palliative care. The program includes consumer views throughout as well as a session focused on carer advocates.

Level 4 foyer, International Convention Centre, Sydney with view over the harbour through large picture windows.

Consumer Included event

Cancer Voices Australia has given the PaCCSC & CST Research Forum 2025 'Consumers Included' status. This ensures that the perspectives of patients, survivors, carers, and other members of the public affected by cancer are considered in forum planning and program delivery.

Speakers

Speaker To read about the speakers, please go to the speakers page. 

Registration

To register for the forum, please go to the registration page.

Program Day 1 - Cancer Symptom Management

Please check in from 8.15am for an 8.45am start. 

 

8.45am
 
Session 1 - Geriatric oncology | Chair - Associate Professor Christopher Steer
8.45amWelcome to Country - Aunty Rhonda Dixon Grovenor
8.50amWelcome from the CST Chair - Professor Meera Agar
8.55amOpening address - Hon Ged Kearney MP (via video)
9.00amKeynote presentation: Strategic coordination of clinical trials for older adults through infrastructure: The Cancer & Aging Research Group (CARG) experience - Professor William Dale
10.05amIn conversation: What matters most for older people with cancer? - Associate Professor Christopher Steer (facilitator) and James Butler OAM (consumer)
10.20amCST Strategic Plan 2024 to 2029 - Dr Rayan Saleh Moussa
10.25amMorning tea and poster viewing
10.55am
 
Session 2 - Cancer-related fatigue | Chair - Celia Marston
11.00amIn conversation - Consumer perspectives – John Stubbs (consumer)
11.20amBeyond One-Size-Fits-All: Rethinking Cancer-Related Fatigue and Key Considerations for Research – Dr Carolina Sandler
11.45amManaging Cancer Fatigue in Children: Harnessing Exercise for Symptom Relief and Recovery - David Mizrahi
12.10pmLunch and poster viewing
1.10pm
 
Session 3 - Flexible delivery methods for clinical trials | Chair - Dr Wei Lee
1.15pmBuilding clinical trial access for people at home: Learning from the COMET program – Professor Jenny Philip
1.35pmTransforming access to clinical trials in a regional context - Michelle Tusler
1.55pmTele-trial model for medicinal cannabis - barriers and opportunities – Dr Tay Gurgenci
2.15pmDiscussion panel - Dr Wei Lee (facilitator), Professor Jenny Philip, Dr Tay Gurgenci, Michelle Tusler, Belinda Fazekas (panel members)
3.00pmAfternoon tea and poster viewing
3.30pm
 
Session 4 - Abstracts in cancer symptom management | Chair - Angela Rao-Newton
3.35pmFeasibility and acceptability of LiCPAIN Phase II RCT: Perceptions and experiences of people with neuropathic cancer pain receiving continuous subcutaneous infusion of lidocaine or placebo and their carers - Dr Jessica Lee
3.55pmDevelopment of targeted symptom score to assist in screening for pancreatic exocrine insufficiency - Dr Amanda Landers
4.15pmCurrent gaps and challenges of breakthrough cancer pain diagnosis and management in Australia - A gap analysis - Dr Wei Lee
4.40pmCST Emerging Trialist Award - to be presented by Celia Marston
5.00pmNetworking event
6.30pmEnd of Day 1

Program Day 2 - Palliative Care

Please check in from 8.15am for an 8.45am start. 

8.45am
 
Session 1 - Innovation in clinical trials | Chair - Associate Professor Tim Luckett
8.45amWelcome from the PaCCSC Co-Chair, Associate Professor Tim Luckett
8.50amKeynote presentation: Navigating Complexity: The Role of Feasibility Studies and Process Evaluation in Palliative Care Trials of Complex Health Service Interventions - Professor Catherine Walshe 
9.45amUsing clinical registries to conduct clinical trials: opportunities and challenges – Professor Zoe McQuilten
10.15amImproving the Detection, Assessment, Management and Prevention of Delirium in Palliative Care Units (DAMPen-D); Integrating co-design and process evaluation in a feasibility study - Professor Mark Pearson
10.35amMorning tea and poster viewing
11.05am
 
Session 2 - Abstracts in palliative care | Chair - Dr Ruwani Mendis
11.05amA novel non-pharmacological Breathlessness Intervention Service (BIS) improves breathlessness mastery in patients with COPD: A randomised controlled trial - Dr Tracy Smith
11.25amA multicentre, randomized controlled trial and observational study on the efficacy of specialized rehabilitation using the Op-reha Guide for terminal cancer patients in palliative care units - Assistant Professor Nanako Nishiyama
11.45amPalliative Care for Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND): Perspectives of Clinicians, Patients and Care Partners in the United States – Dr Kara Bischoff 
12.00pmLunch and poster viewing
1.00pm
 
Session 3 - Carer advocates - partners in care | Chair - Dr Rayan Saleh Moussa
1.05pmIn Conversation - Consumer as carer and advocate – Imelda Gilmore (consumer advocate)
1.20pmCaring for carers of people with advanced cancer at hospital discharge (CARENET): A feasibility trial - Celia Marston 
1.40pmImproving the wellbeing of people with advanced cancer and their family carers together: overview of international trial results and Australian research protocol for the FOCUS intervention – Professor Peter Hudson 
2.00pmFamily carer information needs at end of life & in bereavement – Brendan Myhill  
2.20pmConsumer discussion panel – Dr Vanessa Yenson (facilitator), Tim Benson, Imelda Gilmore, Kristine Rawlinson (consumer advocate panel members) 
2.55pmAfternoon tea
3.20pm
 
Session 4 - Clinical trial design | Chair - Professor Brian Le
3.25pmKeynote Presentation - The value of a data registry to support clinical trials and generate questions and hypotheses for testing in Randomised Controlled Trials - Professor Steve Pantilat 
4.20pmDiscussion panel - Innovative clinical trial designs emerging in palliative care and cancer symptom care – Professor Brian Le (facilitator), Professor Catherine Walshe, Professor Steve Pantilat, Professor William Dale, Professor Zoe McQuilten, Peter Spolc (consumer) (panel members) 
4.55pmFinal remarks - Professor Brian Le
5.00pmForum close

 

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Acknowledgement of Country

UTS acknowledges the Gadigal People of the Eora Nation and the Boorooberongal People of the Dharug Nation upon whose ancestral lands our campuses now stand. We would also like to pay respect to the Elders both past and present, acknowledging them as the traditional custodians of knowledge for these lands. 

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