2025 Progam

The PaCCSC & CST Research Forum 2025 program ran over two days.

Day 1 focused on cancer symptom management and Day 2 focused on palliative care. The program included consumer views throughout as well as a session focused on carer advocates.
   

ICC Sydney: International Convention & Exhibition Centre

Consumer Included event

Cancer Voices Australia gave the PaCCSC & CST Research Forum 2025 'Consumers Included' status. This ensures that the perspectives of patients, survivors, carers, and other members of the public affected by cancer are considered in forum planning and program delivery.

Speakers

To read about the speakers, please go to the speakers page. 

Program Day 1 - Cancer Symptom Management

Please check in from 8.15am for an 8.45am start. 

 

8.45am
 		 Session 1 - Geriatric oncology | Chair - Associate Professor Christopher Steer
8.45am Welcome to Country - Aunty Rhonda Dixon Grovenor
8.50am Welcome from the CST Chair - Professor Meera Agar
8.55am Opening address - Hon Ged Kearney MP (via video)
9.00am Keynote presentation: Strategic coordination of clinical trials for older adults through infrastructure: The Cancer & Aging Research Group (CARG) experience - Professor William Dale
10.05am In conversation: What matters most for older people with cancer? - Associate Professor Christopher Steer (facilitator) and James Butler OAM (consumer)
10.20am CST Strategic Plan 2024 to 2029 - Dr Rayan Saleh Moussa
10.25am Morning tea and poster viewing
10.55am
 		 Session 2 - Cancer-related fatigue | Chair - Celia Marston
11.00am In conversation - Consumer perspectives – John Stubbs (consumer)
11.20am Beyond One-Size-Fits-All: Rethinking Cancer-Related Fatigue and Key Considerations for Research – Dr Carolina Sandler
11.45am Managing Cancer Fatigue in Children: Harnessing Exercise for Symptom Relief and Recovery - David Mizrahi
12.10pm Lunch and poster viewing
1.10pm
 		 Session 3 - Flexible delivery methods for clinical trials | Chair - Dr Wei Lee
1.15pm Building clinical trial access for people at home: Learning from the COMET program – Professor Jenny Philip
1.35pm Transforming access to clinical trials in a regional context - Michelle Tusler
1.55pm Tele-trial model for medicinal cannabis - barriers and opportunities – Dr Tay Gurgenci
2.15pm Discussion panel - Dr Wei Lee (facilitator), Professor Jenny Philip, Dr Tay Gurgenci, Michelle Tusler, Belinda Fazekas (panel members)
3.00pm Afternoon tea and poster viewing
3.30pm
 		 Session 4 - Abstracts in cancer symptom management | Chair - Angela Rao-Newton
3.35pm Feasibility and acceptability of LiCPAIN Phase II RCT: Perceptions and experiences of people with neuropathic cancer pain receiving continuous subcutaneous infusion of lidocaine or placebo and their carers - Dr Jessica Lee
3.55pm Development of targeted symptom score to assist in screening for pancreatic exocrine insufficiency - Dr Amanda Landers
4.15pm Current gaps and challenges of breakthrough cancer pain diagnosis and management in Australia - A gap analysis - Dr Wei Lee
4.40pm CST Emerging Trialist Award - to be presented by Celia Marston
5.00pm Networking event
6.30pm End of Day 1

Program Day 2 - Palliative Care

Please check in from 8.15am for an 8.45am start. 

8.45am
 		 Session 1 - Innovation in clinical trials | Chair - Associate Professor Tim Luckett
8.45am Welcome from the PaCCSC Co-Chair, Associate Professor Tim Luckett
8.50am Keynote presentation: Navigating Complexity: The Role of Feasibility Studies and Process Evaluation in Palliative Care Trials of Complex Health Service Interventions - Professor Catherine Walshe 
9.45am Using clinical registries to conduct clinical trials: opportunities and challenges – Professor Zoe McQuilten
10.15am Improving the Detection, Assessment, Management and Prevention of Delirium in Palliative Care Units (DAMPen-D); Integrating co-design and process evaluation in a feasibility study - Professor Mark Pearson
10.35am Morning tea and poster viewing
11.05am
 		 Session 2 - Abstracts in palliative care | Chair - Dr Ruwani Mendis
11.05am A novel non-pharmacological Breathlessness Intervention Service (BIS) improves breathlessness mastery in patients with COPD: A randomised controlled trial - Dr Tracy Smith
11.25am A multicentre, randomized controlled trial and observational study on the efficacy of specialized rehabilitation using the Op-reha Guide for terminal cancer patients in palliative care units - Assistant Professor Nanako Nishiyama
11.45am Palliative Care for Amyotrophic Lateral Sclerosis/Motor Neurone Disease (ALS/MND): Perspectives of Clinicians, Patients and Care Partners in the United States – Dr Kara Bischoff 
12.00pm Lunch and poster viewing
1.00pm
 		 Session 3 - Carer advocates - partners in care | Chair - Dr Rayan Saleh Moussa
1.05pm In Conversation - Consumer as carer and advocate – Imelda Gilmore (consumer advocate)
1.20pm Caring for carers of people with advanced cancer at hospital discharge (CARENET): A feasibility trial - Celia Marston 
1.40pm Improving the wellbeing of people with advanced cancer and their family carers together: overview of international trial results and Australian research protocol for the FOCUS intervention – Professor Peter Hudson 
2.00pm Family carer information needs at end of life & in bereavement – Brendan Myhill  
2.20pm Consumer discussion panel – Dr Vanessa Yenson (facilitator), Tim Benson, Imelda Gilmore, Kristine Rawlinson (consumer advocate panel members) 
2.55pm Afternoon tea
3.20pm
 		 Session 4 - Clinical trial design | Chair - Professor Brian Le
3.25pm Keynote Presentation - The value of a data registry to support clinical trials and generate questions and hypotheses for testing in Randomised Controlled Trials - Professor Steve Pantilat 
4.20pm Discussion panel - Innovative clinical trial designs emerging in palliative care and cancer symptom care – Professor Brian Le (facilitator), Professor Catherine Walshe, Professor Steve Pantilat, Professor William Dale, Professor Zoe McQuilten, Peter Spolc (consumer) (panel members) 
4.55pm Final remarks - Professor Brian Le
5.00pm Forum close