IMPACCT's vision to see every patient receiving the best care regardless of life circumstances, state of health or place of residence will only be realised with the invaluable contribution of healthcare consumers.
We connect with the broader consumer community through our dedicated consumer representatives who volunteer their time to help ensure that our research takes into account consumer experiences and perspectives.
What is a consumer representative?
In the context of healthcare, consumers are community members who have particular experience of one or more health conditions as patients or caregivers. A consumer representative undertakes work on behalf of consumers through advocacy and/or contribution to research.
Why are consumer voices important in research?
Consumers provide insights on a very human level and these insights aid the work of researchers and clinicians. Consumer voices allow both the physical and emotional wellbeing of patients and caregivers to be taken into consideration when planning research projects and clinical trials as well as when implementing research findings into practice.
What do IMPACCT consumer representatives do?
At IMPACCT, our consumer representatives contribute to the quality, relevance, and effectiveness of our research across five research areas: aged care, palliative care, cancer, chronic breathlessness, and cardiovascular disease. They contribute through their involvement in the IMPACCT Consumer Advisory Group (CAG).
IMPACCT consumer representatives working with the clinical trials groups, Palliative Care Clinical Studies Collaborative (PaCCSC) and Cancer Symptom Trials (CST) may contribute to the design of clinical trials studying interventions for one or more of eight research symptom nodes.
They may also be invited to become members of governance committees such as the Cancer Symptom Trials Management Advisory Committee or Scientific Advisory Committee.
IMPACCT consumer representatives:
- are actively involved in the design, implementation, evaluation, and dissemination of IMPACCT research projects as well as PaCCSC and CST clinical trials
- provide general guidance regarding IMPACCT's strategic direction
- give feedback on current practices in the healthcare system to identify effective practices and areas for improvement
- contribute to the development of curriculum content in the postgraduate palliative care courses
Who are the IMPACCT consumer representatives?
IMPACCT consumers come from a range of backgrounds and have a range of experiences as patients or caregivers.
Our Consumer Advisory Group (CAG) members represent diverse populations including Aboriginal and Torres Strait Islander (ATSI) communities, culturally and linguistically diverse (CALD) communities, and have an understanding of healthcare services in rural, regional and metropolitan Australia.
This diversity strengthens IMPACCT’s research initiatives and develops culturally sensitive projects and protocols.
Read our Consumer stories.
I'd like to be an IMPACCT consumer representative. How do I get involved?
Find out how to become an IMPACCT consumer representative on the Get involved page where you can find out who we are looking for and download an expression of interest form.
Email your questions about becoming an IMPACCT consumer representative to IMPACCT@uts.edu.au.