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Consumer stories

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  • Consumer engagement
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    • Consumer stories
      • arrow_forward Bev Noble
      • arrow_forward Imelda Gilmore
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      • arrow_forward Padman Karamil
      • arrow_forward Stephen Peterson
      • arrow_forward Sue Dowe

Consumer advisors are involved in all aspects and at all stages of our research. They work in partnership with researchers and are generous with their time and sharing their diverse experiences as patients and caregivers. Each person is unique and has a unique story.

Bev's story

Bev Noble

"By being involved as a consumer representative, I am able to help better educate clinicians and carers to bridge the gap between patient needs and palliative care service delivery to ensure people are treated in a timely and compassionate manner."

Read more                   
 

Imelda's story

Imelda Gilmore has short blonde hair and is wearing sleeveless top that is black with a flora print. She wears glasses and is smiling at the camera.

 "I wasn’t sure how my life experience would be of use to researchers and whether I would be able to converse and collaborate with them, given that I don’t have an academic background. I was very happy to discover that I didn’t need to know the technicalities of the research to be able to make a valuable contribution."

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Nadine's story

Nadine El-Kabbout is smiling at the camera. She is wearing a white top with black horizontal stripees and a black head scarf.

"Seven years on from my journey as a survivor of cancer, I continue to volunteer and advocate for the delivery of culturally and spiritually appropriate services, and equitable healthcare, as well as creating a positive roadmap, experiences, and journeys for these communities where their values, needs, and preferences are honoured."

Read more

Padman's story

Padman Karamil is sitting in front of a pond.

"I was a carer for my wife, Rathi, who was diagnosed with breast cancer in mid-2014 until she reached remission in early 2015. 

"I continued to support my wife during her after-cancer-care including treatment for lymphoedema and diabetes."

Read more                     
 

Stephen's story

Stephen Peterson has short grey hair and he is wearing a button up shirt. He is standing in front of a gallery wall of paintings.

"I first heard about consumer representatives through a friend who had become a consumer representative, and one of his roles was with Safer Care Victoria (SCV). I soon became interested in the role and thought it was something I also could enjoy doing. My friend kindly referred me to SCV and after a chat, I was invited to join one of their committees, which focused on issues affecting the elderly."

Read more

Sue's story

Sue Dowe has short blonder hair and wears glasses. She is wearing a teal top under an orange jacket.

"I have undergone treatment for breast cancer and I was a carer for my mother, who had chronic extensive peripheral venous ulcers and related health issues for many years.  It becomes easier to accept previous difficult life events and outcomes if insights from these can be applied for the benefit of others."

Read more               

Related Links

Consumer Advisory Group

Consumer engagement

CALD communities’ participation in clinical trials

Acknowledgement of Country

UTS acknowledges the Gadigal People of the Eora Nation and the Boorooberongal People of the Dharug Nation upon whose ancestral lands our campuses now stand. We would also like to pay respect to the Elders both past and present, acknowledging them as the traditional custodians of knowledge for these lands. 

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