Are you under 25 with a cancer diagnosis, or looking after someone who is? Or, did you have a cancer diagnosis before you turned 25?
Investigators: Professor Meera Agar, Ingrid Amarth-Duff, Dr Natalie Bradford, Linda Brown, Dr Sungwon Chang, Dr Ross Drake, Associate Professor Anthony Herbert, Associate Professor Tracey O'Brien, Associate Profesor Marianne Phillips, Dr Jessica Ryan, Dr Tim Luckett, Dr Ursula Sansom-Daly, Manraaj Sidhu, Dr Vanessa Yenson.
Sponsor: Cancer Symptom Trials, Faculty of Health, University of Technology Sydney.
"Symptom and Side Effects" Defining priorities in cancer symptoms for paediatric, adolescent and young adult patients: An Australian/New Zealand modified Delphi study
There is no national consensus of cancer symptoms that have the most impact on daily life for children & AYA in Australia and New Zealand (ANZ) despite access to current management strategies, which should be the primary focus of research efforts. There is a need for a comprehensive investigation of the cancer symptoms in ANZ paediatric and AYA patient populations, at both the acute and chronic stages of the disease and survivorship, where the gaps in evidence are such that these contribute to significant impacts on daily life.
This modified Delphi study aligns with the vision of Cancer Australia to reduce the impact of cancer, address disparities and improve outcomes for people affected by cancer. It also aligns with and will add information to the recent recommendations by the Clinical Oncology Society of Australia (COSA) for a model of ongoing care for cancer survivors that uses 1) a systematic, coordinated approach with 2) stratified pathways based on needs and risk, 3) that supports wellness, healthy lifestyle, primary and secondary prevention 4) with a living survivorship plan to facilitate communication between providers, and 5) calls for equitable access to services when needed.
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