Australia has an ageing population with the proportion of older people aged 65 more than tripling over the last fifty years. We are working to enable a socially and economically sustainable aged care sector, and to find solutions to the complex problems that continue to characterise the sector.
Over 80% of deaths in Australia are of people aged 65 and over, with dementia now the second leading cause of death. The need for interactions with aged care services, primary care, and acute services for older people increases as they approach end-of-life.
Research on palliative and end-of-life care is critical to understanding the holistic needs of older people with dementia and other life-limiting illnesses, supporting family caregivers, addressing workforce challenges, and understanding care needs across care settings.
We have three broad programs of research focused on aged care:
- Improving palliative care for older people across care settings
- Workforce planning, education and support
- Family caregivers
Research in action: Aged care, ageing and dementia
Current Projects
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This project represents a collaboration between the UTS Centre for Carers Research, Centre for Social Justice and Inclusion (Equity and Diversity Unit), Carers NSW Australia and the UTS Design Innovation Research Centre (DIRC).
Research by Carers NSW reveals that carers, particularly young carers, commonly report lacking support from institutions regarding flexibility to assist them to balance their studies with their caring responsibilities.
Informed by participatory action research, the aims of the project are to better understand the experiences and challenges faced by university student carers to develop a framework of inclusive policies and practices that accommodate carer participation in higher education.
The project involves a review of current policies and practices of tertiary education institutions, interviews with university representatives and support staff, and focus groups with academic liaison officers and university students who are carers.
Funding
Centre for Carers Research, Institute of Public Policy and Governance, University of Technology Sydney
Investigators:
D Svejkar
P Gleeson
P Viswanathan
T Teague
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Delirium treatment practice, practice change, and influencing factors: an online survey of interdisciplinary clinicians working in palliative care and other specialties
Recent high-level studies and the Delirium Clinical Care Standard signal the need to reverse the routine use of antipsychotics and other unregistered medications for delirium.
Objectives
- To investigate clinicians’ (doctor, nurse practitioner, registered nurse, pharmacist) self-reported practice and practice change since 2016 in delirium treatment in palliative care and other specialties, focused on antipsychotic use;
- Identify factors influencing delirium treatment practice according to the Theoretical Domains Framework (TDF).
Methods
- Online survey with 22 items: nine demographics; a question about frequency of encountering new patients with delirium; ten on current practice; and ten on practice change and influencers.
- Current practice items included goals of antipsychotic use for delirium. Practice influencer items included prompts about key negative studies of antipsychotics for delirium.
- Open-ended items enabled unprompted responses about other influencers and practice change characteristics.
- Recruitment via 15 professional organisations was in April-July 2019. Practice influencers were categorised using the TDF.
- Descriptive statistics were used to summarise results.
- Approach to Market: Audit of national care standards, clinical pathways and decision support tools for patients with malignant brain cancer (RFQ1819-02).
Investigators
Associate Professor Annmarie Hosie [opens external site]
Associate Professor Gideon A Caplan [opens external site]
Stephen Hedger
Professor Debra Rowett [opens external site]
Penelope Tuffin
Seong Cheah
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This project will be the foundation for the development and evaluation of an intergenerational model of care incorporating early childhood learning and aged care services within Uniting Care’s Westmead precinct.
Specifically, the project will involve:
- scoping of existing intergenerational childhood and ageing programs within Australia and internationally to inform program design,
- co-design of the intergenerational model to be implemented at the Westmead precinct, and
- identification of an appropriate research methodology and outcomes framework to evaluate the impact of the intergenerational model.
This project is specifically designed to lead to an ARC Linkage application between UTS, Western Sydney University (WSU) and Uniting in 2022/3.
Funding
UTS Health Cross Faculty Grant
Investigator team
Professor Jo Travaglia
Associate Professor Phillipa Carnemolla
Dr Tom McClean
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Deakin University along with several key partner companies and organisations aims to address the challenge of an ageing population with approved funding from the Australian Research Council for the ARC Industrial Transformation Research Hub that focuses on the concept of digitally enhanced living.
The research and development activities conducted by the hub aim to develop intelligent sensed spaces within residential homes and aged care facilities. Such spaces will provide a range of proactive physical, cognitive, and social support to residents, thus increasing the quality of care provided to Australia’s ageing population.
The University of Technology Sydney joined the Hub in 2019 with industry partners, Uniting and Interrelate.
Projects undertaken in the Hub will support digital technology from children and adolescents to older Australians.
Funding
Australian Research Council (ARC)
Investigator team
Professor Jo Travaglia
Professor Fiona Brooks
Dr Tom McClean
Graeme O'Connor
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Specialist palliative care and advance care planning advisory services
End of Life Directions for Aged Care (ELDAC) brings together three universities and four national peak bodies to support quality palliative care and advance care planning for older people receiving aged care services.
ELDAC promotes change at the individual, organisational, and sector levels and is informed by evidence-based strategies.
- Knowledge Hub - empowers, informs, and builds capacity in aged care and primary care providers by providing access to evidence-based palliative care and advance care planning information, tools, and resources.
- Workforce Development - promotes access to educational activities and delivers education and training activities and resources that complement existing programs.
- Sector Development - facilitates and increases linkages between aged, palliative and primary care services by building local service networks.
Website
ELDAC provides information, guidance, and resources for all aged care staff to support palliative care and advance care planning to improve the care of older Australians.
Funding
ELDAC is funded by the Australian Government Department of Health, Disability and Ageing, National Palliative Care Projects.
Investigators
Professor Patsy Yates [opens external site]
Professor Jennifer Tieman [opens external site]
Palliative Care Australia (PCA) [opens external site]
Catholic Healthcare (CHA)
Australian Healthcare and Hospitals Association (AHHA)
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This project is a collaboration between integratedliving, a large rural and remote aged care provider, and the UTS Ageing Research Collaborative (UARC).
Integratedliving have designed a specialised inter-disciplinary new service model (Core) comprising of personal health management service for each client which incorporates risk-based needs assessment, evidence-based personal health management planning, and care cofounding:-ordination, underpinned by an integrated and systematised integrated health pathways and health coaching decision support methodology.
The Core service will comprise of a virtualised specialist hub and a distributed network of virtual and on-location health and home support services.
Core will be augmented by an integrated digital communications solution, the Core App, which includes a single interface between the client, staff, family, and the extended care team, a new generation Client Management System (CMS), and other smart assistive technologies and data analytic capacity and capability.
Funding
integratedliving
Investigators
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There are many novel wearable devices available to monitor heart function in older people. Yet, there has been limited research to explore the clinical indications for use, how these could be used in healthcare, and the usability of devices from the patient perspective.
Our research will explore clinician and patient perspectives on the use of wearable cardiac monitoring technology for older adults.
A co-design approach has been used to gain perspectives into the use, application and feasibility of applying these devices in routine care.
A series of focus groups and interviews with clinicians, patients and caregivers has been completed. A usability study will be conducted to evaluate the user experience of these devices and identify areas for potential improvement.
How these devices could be implemented within everyday healthcare will be explored. Recommendations will be developed for the integration of wearable devices to monitor heart function in older people.
Funding
Investigators
Dr Caleb Ferguson [opens external site]
Professor Louise Hickman [opens external site]
Associate Professor Paul Breen [opens external site]
Professor Kate Stevens
Associate Professor Phillip Newton
Professor Peter MacDonald
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Uniting NSW/ACT has been implementing a Household Model of care across 75 residential aged-care facilities since 2015.
This study will evaluate the impact of the Household model on financial, human resource, and clinical outcomes.
The project is now updating data.
Funding
Uniting
Investigators
Professor Jo Travaglia