The sun, sand and sea are among the most Australian of experiences. But access to the beach can be a challenge for many, especially people with a disability. An innovative research program including UTS and Surf Life Saving NSW has created positive changes to make our beaches more open spaces for everyone.

“Some of the most universal human experiences can be inaccessible because no one has thought about the access needs of people with disabilities,” says Paralympian and disability advocate Paul Nunnari.

“In some ways, the beach is our last domain to conquer. Making our beaches accessible to everyone is a no-brainer. But the truth is many beaches up and down our coast don't yet have equipment like access ramps or programs that are needed to include people with disability.” 

Aerial view of waves on a shoreline

Taking back the waves

(00:15:21)

Taking back the waves transcript

Taking Back the Waves. A short documentary showcasing four stories of those with disabilities who have been able to access the beach thanks to SLS initiatives. Through the use of cinematic documentary filmmaking techniques and an accomplished and well respected person with a disability as the host, the documentary would aim to capture the heart of what SLSNSW aims to achieve through all it’s projects; help everyone experience coastal life. Creative Director - Henry Smith Executive Producer - Briana Miller Writer & Director - Genevieve Clay-Smith Producer - Erin Black Director of Photography - Dale Bremner Editor & Colourist - Javed Sterritt Sound Design & Composition - Jonny Higgins

Video narration:

My name is Paul Inari and when I was just delivering years old I became half-man half-machine after being hit by a car. As well as being a superhuman, I'm also a dad, Paralympian, disability advocate, and the other Superman.

It's my belief that people with disability are like X-Men. We all have capabilities and talents that are unique, and we make the world a heck of a lot more exciting. But sometimes the world misses this. Some of the simplest and most universal human experiences can often be completely inaccessible because no one has thought about access needs for people with disability. It's my belief that the beach is our last domain to conquer.

Over the next three days, I'm ripping up the coast to visit different initiatives supported by Surf Life Saving New South Wales aimed at removing barriers for people with disability so they can gain access to something every Australian should have the opportunity to enjoy: salty waves on a hot summer's day.

My first stop is Little Hero Swim Academy, an organisation who runs Mad About Inclusion, an initiative which is providing the opportunity for children who use wheelchairs the chance to enjoy Australia's famous Bondi Beach. Maddy is one of those children.

Maddy, can you say hi? It's so great to see you guys this morning. Maddy, you're looking gorgeous this morning in your sweater. I grew up in Terrigal and the beach was a huge part of my life. Having Maddy and her being confined to a wheelchair really made me think about whether or not we would be able to access the beach, and to be honest, we just ruled it out.

Maddy was one of the kids that, when she first came to the beach or even drove past it, she just didn't like it at all. There was too much noise, there was too much sand, there were waves, it was cold. It was just all different. When Tracy suggested that we come down and try the Mad About Inclusion program, I was a little bit hesitant at first because we'd never been to the beach before, and I just thought, how is it going to work logistically?

The Mad About Inclusion program is a beach program that's all about getting children with disability to be able to access the love of the beach. So for Maddy, it's been a process of coming down, being able to get out of the car, transferring into a sand wheelchair. Initially what we did was bring a bucket of water from the ocean to her on the sand and put a ball in it, and that's how she started.

The first time I saw her actually in the water was when her mum sent me a video of their family holiday down the coast where she'd actually gone in on the mobi mat in her own wheelchair with her friend Eliza, and that was just so cool. Brought tears to my eyes.

What was it like for you to get into the water for the very first time? Yay! Was it good? I want Maddy to be able to do what everybody else does, even if that means she just needs a little help doing it. So being able to go to the beach – it’s such an Australian thing. Whether or not she's swimming or just playing in the water, playing ball with her friends, sitting on the edge of the beach in the sand, playing with the sand – that's inclusion. And that's what everybody should be able to enjoy.

My next stop is Sydney’s Northern Beaches. I'm off to Collaroy Beach to check out beach access programs for people with acquired brain injuries and spinal cord injuries, put on by Royal Rehab, the rehabilitation and disability support network. I'm meeting a guy named Lee – he's been learning to surf again after acquiring a spinal cord injury.

Lee, do you mind sharing some of your personal story and also how you became involved in the program?

Sure Paul. I had a motorcycle accident on the 18th of April last year. It made me T2-T10 paraplegic. I then did 11 weeks in Royal North Shore Hospital and after 11 weeks was moved to Royal Rehab. Found out that they had a beach access program and, being a surfer in the past, I was so keen to get involved.

So I guess even at that early stage, knowing that the program even existed would have made you excited to get out and explore the world again?

Yeah, absolutely. Previously I wouldn’t have even contemplated going to the beach at all. But now, after doing the program, I do have the confidence – even to train a friend or my family to assist me in going out in the surf.

Sebastien, you’re the coordinator of the Royal Rehab beach access program. What are some of your biggest challenges in helping people with disability access the beach?

I think the first and foremost one, which is pretty obvious, is that beach sand and wheelchairs – they don’t really mix. And there’s not a lot of beaches that have a concrete path that runs all the way out across the sand and into the surf. So simple things like having beach access matting available can mean that anyone in their regular chair, because that’s all they have, can have access to the beach.

We’re trying to educate the community on different equipment that’s available for people to be able to access the beach, as well as being able to educate local councils on how they can be involved with purchasing some of that equipment to make sure that it’s readily available.

So moving forward, what are your aspirations – what would you hope to achieve, say, in five or ten years’ time?

Look, I’d like to see our programs still running and rolled out across a number of beaches across Sydney. But ultimately I’d love to see beaches with fully accessible equipment available – perhaps one in every local government area on Australia’s East Coast. And then ultimately, wouldn’t it be great to see every beach in Australia accessible to every Australian? That might be a pipedream.

What do you think is important moving forward in regards to making the beaches more accessible?

Just awareness. I think making people know that people in wheelchairs still want to live a normal life. There is equipment that’s available that can be used by people in chairs, and we just need to spread the word and let people know that people in wheelchairs want to carry on and do the things they were doing previously.

Day two, and I'm heading to Nobbys Beach in the land of an overcast Reans – Newcastle. We're checking out a program called Waves of Inclusion, run by the Centre for Disability Studies. I'm going to meet a woman named Easy, who hadn't been able to access the beach in 16 years before getting involved in the program.

Hey Jemima. Hey Easy. How are you going?

Easy, how did the initiative help you prepare to enter the water after 16 years?

I hadn’t been in the water for 16 years. Probably the last time would have been when I was 14. I came to this group when it first started and kind of made a whole wave of different friends and people.

We had to work with the surf club to organise a space where we could do all the lifting and the getting you into the beach wheelchair. The smile on Easy’s face was something that I will never forget for as long as I live.

The initiative started down in Sydney in 2011 where it was kind of just going to different pubs and restaurants around the inner West and then last summer we won some grants through surf lifesaving New South Wales and we got to go to Bondi Beach and up here at Nobbies.

What are your aspirations for the initiative in five years' time and what do you hope to achieve then? I want it up and down the coast, I want to see it everywhere. I think there's such a need for people just to be out doing fun things with their peers. We get a lot of phone calls, we get a lot of emails from people saying this initiative is in Newcastle, there's one in Sydney, but what about the Central Coast? What about further north? What about further south? So there's obviously a demand for it. Absolutely, absolutely. Yeah, everybody wants to make friends, everybody wants to socialise, everybody wants the chance to hop in the water but then go for a beer with their friends afterwards just to build up friendships and get out in the community and meet people.

My final destination is Pamela Beach on the glorious south coast. We're going to find out about the various initiatives run by the Pamela Surf Life Saving Club including the Same Wave programme which helps people with disability engage in beach activities. A meeting with Michele Boots who commenced the Same Wave programme 17 years ago. Michele, we're on this fantastic accessible viewing area, you've got some accessible ramps to the beach. How did these two wonderful initiatives come about? So this wonderful viewing platform and the access ramp were made possible by the money from the community inclusion grant plus a lot of hard work from Council and the lifesavers. A lot of the beaches in the area are not easy to access but this one specifically now will be.

Same Wave started after I realised that surf lifesaving, which was something I was really passionate about, was off-limits to a lot of people. To become a nipper or a lifesaver you have a pool swim which is a prerequisite and a lot of our participants can't do that but they can still access the water with more support. That was the reason we started the programme. We started with just children but the programme now caters for adults as well, so our eldest attending is 45. We all get in together and everyone just has a really, really good time. Brent, you're a participant in the Same Wave programme, can you tell me what that experience has been like for you? I would like to say, well, I've been doing everything with the Same Wave. My friend is a 29-year-old young man who I actually met at Bar Beach one day after a splinter swimming. I didn't realise till the other day that Brent actually hated the ocean, he didn't like going in anywhere that was a little bit rough. When I first started years ago I was so afraid of it. It's given me confidence in water, it's given me confidence to do the swims. I've been training so hard and it's been great. Just recently he has completed the 600 metre ocean swim in the Tatra Wolf 2 waves. That's the first time ever for me to reach the other side of North to raise. If I can do the 600 maybe I'll still be there for 1,200.

We just want more people with a disability being able to access Australia's amazing beaches in coastal communities. I think it's important to have initiatives like this everywhere and I think often the beach gets overlooked. I think that we take it for granted just being able to come down and just jump in the water and what better place to spend time with your friends during the summer than sitting on the beach. Before I was a previous surfer and I've done it my whole life and I just find it, you know, the ocean almost has like healing powers. It's just such a good feeling and good for the soul. These kids deserve a chance to be able to be in the water and enjoy the ocean. For them that are in a wheelchair, if they can get freedom out of that chair in the water and we can give it to them then that's why I do what I do.

Making our beaches accessible to everyone is a no-brainer but the truth is there are many beaches on our coast that don't yet have the equipment, access ramps or programmes needed to include people with disability. We all need to consider how we can give people with disability the opportunity to enjoy the ocean and our vibrant coastal communities and as we've seen there really is so much we can do to include superhumans in our beach lifestyle. We live in exciting times and through programmes such as these accessibility is improving as we've become more aware of the barriers faced by people living with disability and how we can overcome them. It's my hope that in the future having a disability won't stop anyone from enjoying our great beaches and coastal way of life.

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Featured researcher

Portrait of Simon Darcy

Dr Simon Darcy

Professor

Professor Simon Darcy, from the UTS Business School and co-lead of the UTS Disability Research Network, understands this reality firsthand. He was a keen board rider and surf lifesaver on Sydney’s northern beaches before a serious accident at 19 left him with a complete spinal cord injury and as a power wheelchair user.  

“Beaches are home to the body beautiful and can be intimidating places even for people without disability. So how do we make them truly open places that are accessible and inclusive to people who don’t fit the social perceptions of the bodily norm?” he asks.

“Even simple things can be a challenge whether it’s finding an accessible parking spot close to the sand, an access ramp that’s not too steep, or a changeroom that caters to our needs.”

Several years ago, Darcy and his team (Dr Mel Edwards, Dr Hazel Maxwell and Barbara Almond) started partnering with Surf Life Saving NSW, building on his previous work with the national body Surf Lifesaving Australia.

Their research focused on the organisation’s community inclusion program to improve access for people with disability at three NSW beach precincts – at Sydney’s iconic Bondi Beach, in Newcastle and at Pambula on the south coast.

They took a community development and social relational model of disability to understand the impact of some 30 different community inclusion projects that had been completed by Surf Life Saving NSW in conjunction with local councils and not-for-profit organisations. 

Professor Simon Darcy. (Photo: Andy Roberts)
We were looking at the next step where they could stake out a space that is theirs – where they, their family and friends could feel welcomed and have a sense of belonging.

Professor Simon Darcy

Access all areas

The first part of the research was to establish a baseline of the relative accessibility and program offerings in each of the beach precincts. This was completed by the team in conjunction with an accredited access auditor.

“A major local government infrastructure project was undertaken at each of the beaches. We then ran a series of action-research engagements over two years looking at other aspects of access and inclusion of the community inclusion projects,” he explains. 

“We focused on all types of disability – mobility, intellectual, vision/blind, hearing/Deaf and mental health – and all levels of support needs from people who are independent with disability through to people requiring high levels of social or physical support together with assistive technology.”

"A great deal of effort had been put into improving the infrastructure to help people get down to the beach." 

If you can't park or pee, you can't participate 

“How do we get someone with a disability into the water, first via a pool and then into the ocean itself, and then even onto the peak experience of catching a wave?”

Their research found the first steps towards accessing these experiences happen away from the sand.

At each of the beach precincts, they ran observation studies on how people with disability were welcomed into the space and place, whether that was on surrounding grass areas, the sand itself or into the water. 

One project involved looking at ways people with a disability could feel like they belong at the beach with their family and friends. This was found to be particularly challenging.

With a different sense of belonging for people with mental health disabilities, a number of projects enabled individuals to connect with others so they felt supported in the surf environment.

But for other groups, it was more about challenges with the built and natural environment to participate in community events.

“People at the beaches were generally very welcoming and this was particularly so where a group with mobility disabilities had set up their spot with banners and their assistive equipment,” Darcy explains.  

“But there were no accessible change rooms as they were being redeveloped so we were holding up towels while people were getting their togs on.”

“It served to underline a basic principle around access for people with mobility disability: if you can’t park and you can’t pee, you can’t participate.”

While many beaches have the physical equipment like beach wheelchairs and matting, there’s a big difference between having equipment and being able to use it.

“We found a number of operational issues about how to get to a beach wheelchair when it’s locked up and surf lifesavers aren’t available with the keys.”

Combined with other initiatives, practical changes in the way accessibility infrastructure is being delivered at different beaches across the state are being now implemented. 

Simon Darcy and his team have partnered with local councils and not-for-profit organisations to make beaches more accessible. (Photo: Andy Roberts)
We might look different to the average beach goer, but the goal is for everyone to feel supported and have fun. Here are groups of people with disability with their family and friends and it's amazing to watch them become part of the scene.

Professor Simon Darcy

Co-designing transformative solutions

Perhaps more importantly, they showed the value of taking a holistic approach to accessibility in the local area that puts the voices of people with disability and their communities at their centre.

“We saw this at places like Pambula. The fact that everyone knows everybody else meant the different programs were far more interconnected and personal. They now have a very active group around children with disability and their Nippers program,” Darcy says.

“Local community groups and councils also play a critical role in the inclusion process and investing in improving their capacity can really pay dividends.”

The final part of the research discussed the importance of developing co-designed transformative solutions where the lived experience of those involved is not just valued, but becomes central to the solutions.

For advocates like Paul Nunnari, research like this is the starting point for enabling more people with disability to get their feet on the sand or in the water.

“Programs such as these are seeing accessibility improving as we've come more aware of the barriers faced by people living with disability and how we can overcome them,” he says.

“It's my hope that there’s a new future where having a disability won't stop anyone from enjoying our great beaches and unique way of life.” 


 

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