Dr Tim Luckett, a senior lecturer in the Faculty of Health at UTS, is interested in developing and evaluating complex interventions for people with life-limiting illnesses and their families. Tim is a speech and language pathologist by background, and has also worked as a personal carer in long term care. Tim has experience in both quantitative and qualitative research methods, especially outcome measurement and systematic reviews.
Current examples of Tim's work Tim include projects aimed at improving self-management of chronic breathlessness and understanding problematic use of opioids by people with cancer and pain.
Tim contributed as an Australian interviewee to the most recent Quality of Death Index, a measure of the quality of palliative care in 80 countries around the world released by The Economist Intelligence Unit.
Can supervise: YES
- Palliative and supportive care (especially cancer)
- Advance care planning
- Outcome measurement
Green, A, Abbott, P, Luckett, T, Davidson, P, Delaney, J, Delaney, P, Gunasekera, H & DiGiacomo, M 2020, '"'It's quite a complex trail for families now' - Provider understanding of access to services for Aboriginal children with a disability"', Journal of Child Health Care.
Green, A, Abbott, P, Luckett, T, Davidson, P, Delaney, P, Delaney, J, Gunasekera, H & DiGiacomo, M 2020, 'Collaborating across sectors to provide early intervention for Aboriginal and Torres Strait Islander children with disability and their families: a qualitative study of provider perspectives', Journal of Interprofessional Care, vol. 34, no. 3, pp. 388-399.View/Download from: Publisher's site
Aboriginal and Torres Strait Islander children experience a higher prevalence of disability than other Australian children. Early intervention from across the health, education, and social service sectors is vital for improving outcomes, but families face lack of coordination between services. This study aimed to inform improvements in service access for families of urban-dwelling Aboriginal children with disability through exploring providers' perceptions of factors that influenced working together across sectors. Semi-structured interviews were conducted. Data analysis was informed by the general inductive approach and the Collaborative Practice to Enhance Patient Care Outcomes framework. Twenty-four providers participated. Interprofessional collaborative practice was influenced by interdependent interactional and organizational factors. Interactional factors fit within one of two dimensions: the ability of providers to share common goals and vision within a complex cross-sector service landscape, and influence of interpersonal relationships on their sense of belonging working in a cross-cultural space. Organizational factors also fit within one of two dimensions: the influence of governance in relation to its role in coordination and unlocking the strength of schools as service settings, and the need to formalize processes for effective interprofessional communication. Interprofessional collaborative practice was managed within the context of systemic factors relating to policy and funding. These findings demonstrate the complex interplay of factors related to the cross-sector involvement of providers in early intervention service provision. Consideration of these factors is required to facilitate collaborative cross-sector responses to improve service access for Aboriginal families.
Disalvo, D, Luckett, T, Bennett, A, Davidson, PM & Agar, M 2020, 'Multidisciplinary perspectives on medication-related decision-making for people with advanced dementia living in long-term care: a critical incident analysis', EUROPEAN JOURNAL OF CLINICAL PHARMACOLOGY, vol. 76, no. 4, pp. 567-578.View/Download from: Publisher's site
Kochovska, S, Garcia, MV, Bunn, F, Goodman, C, Luckett, T, Parker, D, Phillips, JL, Sampson, EL, van der Steen, JT & Agar, MR 2020, 'Components of palliative care interventions addressing the needs of people with dementia living in long-term care: A systematic review.', Palliative medicine, vol. 34, no. 4, pp. 454-492.View/Download from: Publisher's site
BACKGROUND:People with dementia requiring palliative care have multiple needs, which are amplified in long-term care settings. The European Association for Palliative Care White Paper offers recommendations for optimal palliative care in dementia integral for this population, providing useful guidance to inform interventions addressing their specific needs. AIM:The aim of this study is to describe the components of palliative care interventions for people with dementia in long-term care focusing on shared decision-making and examine their alignment to the European Association for Palliative Care domains of care. DESIGN:Systematic review with narrative synthesis (PROSPERO ID: CRD42018095649). DATA SOURCES:Four databases (MEDLINE, CINAHL, PsycINFO and CENTRAL) were searched (earliest records - July 2019) for peer-reviewed articles and protocols in English, reporting on palliative care interventions for people with dementia in long-term care, addressing European Association for Palliative Care Domains 2 (person-centred) or 3 (setting care goals) and ⩾1 other domain. RESULTS:Fifty-one papers were included, reporting on 32 studies. For each domain (1-10), there were interventions found aiming to address its goal, although no single intervention addressed all domains. Domain 7 (symptom management; n = 19), 6 (avoiding overly aggressive treatment; n = 18) and 10 (education; n = 17) were the most commonly addressed; Domain 5 (prognostication; n = 7) and 4 (continuity of care; n = 2) were the least addressed. CONCLUSION:Almost all domains were addressed across all interventions currently offered for this population to various degrees, but not within a singular intervention. Future research optimally needs to be theory driven when developing dementia-specific interventions at the end of life, with the European Association for Palliative Care domains serving as a foundation to inform the best care for this population.
Luckett, T, Luscombe, G, Phillips, J, Beattie, E, Chenoweth, L, Davidson, PM, Goodall, S, Pond, D, Mitchell, G & Agar, M 2020, 'Australian long-term care personnel's knowledge and attitudes regarding palliative care for people with advanced dementia.', Dementia.View/Download from: Publisher's site
Torgbenu, E, Luckett, T, Buhagiar, MA, Chang, S & Phillips, JL 2020, 'Prevalence and incidence of cancer related lymphedema in low and middle-income countries: a systematic review and meta-analysis', BMC CANCER, vol. 20, no. 1.View/Download from: Publisher's site
Donkor, A, Luckett, T, Aranda, S, Vanderpuye, V & Phillips, J 2020, 'Developing a readiness self-assessment tool for low- and middle-income countries establishing new radiotherapy services: A participant validation study.', Physica medica : PM : an international journal devoted to the applications of physics to medicine and biology : official journal of the Italian Association of Biomedical Physics (AIFB), vol. 71, pp. 88-99.View/Download from: Publisher's site
PURPOSE:Assessing low-and middle-income countries' (LMICs') readiness to establish new radiotherapy services is an important but empirically understudied concept. The purpose of this study is to develop and confirm a core set of readiness requirements and criteria that can be used to gauge LMICs preparedness to establish radiotherapy services. METHODS:Based on a systematic review and semi-structured expert interviews, a pool of requirements and criteria were generated. To confirm or disconfirm these items, we adopted a synthesised member checking process, also known as participant validation. A purposive sampling strategy was used to recruit radiotherapy experts. Items were sent via email. Each item was reviewed by participants. Qualitative comments were analysed thematically. FINDINGS:Seven of the 17 experts who participated in an earlier semi-structured interview contributed to this participant validation study. The final version of the readiness self-assessment tool for LMICs establishing new radiotherapy services contains 37 requirements mapped into four readiness domains, grouped under the following categories: commitment; cooperation; capacity; and catalyst. Among 23 criteria for commitment domain, participants reviewed 22 as relevant for inclusion. The cooperation requirements considered important, included: "strategic planning team", "stakeholder involvement" and a "technical assistance plan". Capacity requirements, which were endorsed included: "responsible project manager"; "availability of radiotherapy expertise"; and "training for initial core staff". Participants' feedbacks supported the inclusion of all the requirements and criteria related to catalyst. CONCLUSION:The readiness self-assessment tool is a promising planning and evaluation tool for use by stakeholders interested in expanding access to radiotherapy services in LMICs.
Donkor, A, Luckett, T, Aranda, S, Vanderpuye, V & Phillips, J 2020, 'Experiences of barriers and facilitators to establishing and sustaining radiotherapy services in low- and middle-income countries: A qualitative study', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, vol. 16, no. 2, pp. E74-E85.View/Download from: Publisher's site
Luckett, T, Newton-John, T, Phillips, J, Holliday, S, Giannitrapani, K, Powell-Davies, G, Lovell, M, Liauw, W, Rowett, D, Pearson, S-A, Raymond, B, Heneka, N & Lorenz, K 2020, 'Risk of opioid misuse in people with cancer and pain and related clinical considerations: a qualitative study of the perspectives of Australian general practitioners', BMJ OPEN, vol. 10, no. 2.View/Download from: Publisher's site
Luckett, T, Roberts, MM, Smith, T, Swami, V, Cho, J-G & Wheatley, JR 2020, 'Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD', NPJ PRIMARY CARE RESPIRATORY MEDICINE, vol. 30, no. 1.View/Download from: Publisher's site
Luckett, T, Davidson, PM, Green, A, Marie, N, Birch, M-R, Stubbs, J, Phillips, J, Agar, M, Boyle, F & Lovell, M 2019, 'Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care', PALLIATIVE & SUPPORTIVE CARE, vol. 17, no. 4, pp. 472-478.View/Download from: Publisher's site
Luckett, T, Agar, M, DiGiacomo, M, Ferguson, C, Lam, L & Phillips, J 2019, 'Health status of people who have provided informal care or support to an adult with chronic disease in the last 5 years: results from a population-based cross-sectional survey in South Australia.', Australian Health Review, vol. 43, no. 4, pp. 408-414.View/Download from: Publisher's site
Support for Australian carers is warranted to ensure their continuing contributions to society and return to productivity after their caring role is completed.
Luckett, T, Agar, M, DiGiacomo, M, Lam, L & Phillips, J 2019, 'Health status in South Australians caring for people with cancer: A population-based study', PSYCHO-ONCOLOGY, vol. 28, no. 11, pp. 2149-2156.View/Download from: Publisher's site
Disalvo, D, Luckett, T, Bennett, A, Davidson, P & Agar, M 2019, 'Pharmacists' perspectives on medication reviews for long-term care residents with advanced dementia: a qualitative study.', International journal of clinical pharmacy, vol. 41, no. 4, pp. 950-962.View/Download from: Publisher's site
Background Medication reviews by pharmacists have been shown to identify and reduce drug-related problems in long-term care residents. Objective To explore pharmacist perspectives of the Australian Government funded pharmacist-conducted residential medication management review and its role improving the quality and safety of prescribing in long-term care, in particular for those living with advanced dementia. Setting Australian Long-term care pharmacists. Method A qualitative research methodology approach using semi-structured interviews was used, with participants pharmacists with Residential Medication Management Review experience. Interviews were recorded, transcribed and coded utilising a meta-model of Physician-Community Pharmacy Collaboration in medication review. Main outcome measure Pharmacists' perspectives on the Residential Medication Management Review and how to improve the quality of reviews for residents with advanced dementia. Results Fifteen accredited pharmacists participated. The majority believed that the Residential Medication Management Review had the potential to improve the quality and safety of medicines but highlighted systemic issues that worked against collaborative practice. Participants emphasised the importance of three-way collaboration between general practitioners, pharmacists and nursing staff and highlighted key strategies for its optimisation. Conclusion Incorporating avenues for greater communication between team members can improve collaboration between health professionals and ultimately the quality of medication reviews.
Fischer, T, Hosie, A, Luckett, T, Agar, M & Phillips, J 2019, 'Strategies for Pain Assessment in Adult Patients With Delirium: A Scoping Review.', Journal of pain and symptom management, vol. 58, no. 3, pp. 487-502.e11.View/Download from: Publisher's site
CONTEXT:Pain and delirium are highly prevalent in the same patient groups. Disturbances in attention, awareness, and cognition are characteristics for delirium and can compromise pain assessment. OBJECTIVES:The aim of this review was to examine and map models and understandings of pain and delirium as well as pain assessment instruments and strategies for adult patients with delirium. METHODS:A scoping review of all publications that reported on pain assessment in adult patients with delirium was conducted with no time and language constraints, searching Medline, CINAHL, Scopus, Embase, and PsycINFO and systematically assessing for inclusion. Standardized data extraction and a narrative synthesis followed. RESULTS:A total of 90 publications were included in the final analysis. Despite being recommended for practice, no evidence for the use of self-report or behavioral pain assessment instruments in patients with delirium was identified, with the exception of limited evidence for the validity of the Critical Care Pain Observation Tool and Behavioral Pain Scale in delirious intensive care patients. Proxy ratings of pain and comprehensive pain assessment hierarchies were also recommended, but not supported by evidence. Current models and/or understandings of pain and delirium were not applied in most publications. CONCLUSION:The current literature is insufficient to guide clinical practice in pain assessment in patients with delirium. Future research will be needed to address the validity of existing pain assessment instruments, apply theoretical and conceptual understandings of pain and delirium, and build on prior studies to close evidence gaps.
Kelly, AJ, Luckett, T, Clayton, JM, Gabb, L, Kochovska, S & Agar, M 2019, 'Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis.', Palliative and Supportive Care, vol. 17, no. 6, pp. 707-719.View/Download from: Publisher's site
BACKGROUND:Advance care planning (ACP) is identified as being an important process for people with dementia. However, its efficacy for improving outcomes relevant for the individual, carers and the health system has yet to be established.AimWe conducted a systematic review with the aims of testing the efficacy of ACP for people with dementia and describing the settings and population in which it has been evaluated. METHODS:A search was completed of electronic databases in August 2016. Articles were included if they described interventions aimed at increasing planning for future care of people with dementia, delivered to the person with dementia, their carers and/or health professionals. RESULTS:Of 4,772 articles returned by searches, 30 met the inclusion criteria, testing interventions in nursing home (n= 16) community (n = 10) and acute care (n = 4) settings. Only 18 interventions directly involved the person with dementia, with the remainder focusing on surrogate decision-makers. In all settings, interventions were found effective in increasing ACP practice. In nursing homes, ACP was found to influence care and increase the concordance between end of life wishes and care provided. Interventions in the community were found to improve patient quality of life but were not shown to influence concordance. CONCLUSION:Future research should focus on ways to involve people with dementia in decision-making through supported means.
Lovell, M, Birch, M-R, Luckett, T, Phillips, J, Davidson, PM, Agar, M & Boyle, F 2019, 'Screening and Audit as Service-Level Strategies to Support Implementation of Australian Guidelines for Cancer Pain Management in Adults: A Feasibility Study.', Pain Management Nursing, vol. 20, no. 2, pp. 113-117.View/Download from: Publisher's site
BACKGROUND:Pain in people with cancer is common but often under-recognized and under-treated. Guidelines can improve the quality of pain care, but need targeted strategies to support implementation. AIM:To test the feasibility of two service-level strategies for supporting guideline implementation: a screening system and medical record audit. DESIGN:Multimethods. SETTING:One oncology outpatient service, and one palliative care outpatient and inpatient service. PARTICIPANTS:Patients with advanced cancer. METHODS:Patients were screened in the waiting room with a modified version of the Edmonton Symptom Assessment System-revised either electronically or in paper-based format. Feasibility indicated the percentage of patients successfully screened from the total number attending the services. An audit assessed adherence to key indicators of pain assessment and management. Feasibility thresholds were set at 75% incidence for screening and a median of 30 minutes per patient for audit. RESULTS:Of 452 patient visits, 95% (n = 429) were successfully screened, 34% (n = 155) electronically and 61% (n = 274) paper-based. Electronic pain screening was technically challenging and time-intensive for nurses. Thirty-one patients consented to have their records audited. The median audit time was 37.5 minutes (range 10-120 minutes). Variability arose from the number and type of record (outpatient or inpatient). Adherence to indicators varied from 63% (pain assessment at first presentation) to 94% (regular pain assessment and medication prescribed at regular intervals). CONCLUSIONS:This study confirmed the need to implement evidence-based guidelines for cancer pain and generated useful insights into the feasibility of pain screening and audit.
Luckett, T, Phillips, J, Currow, DC, Agar, M & Molassiotis, A 2019, 'Cough in lung cancer: A survey of current practice among Australian health professionals', Collegian, vol. 26, no. 6, pp. 629-633.View/Download from: Publisher's site
© 2019 Australian College of Nursing Ltd Background: Systematic reviews and guidelines are available to guide management of cough in lung cancer, but evidence for intervention efficacy is limited, and little research has yet described current practice. Aim: To canvass the experiences and perspectives of Australian health professionals with regard to the clinical importance and current management of cough in people with lung cancer. Methods: An open, online, cross-sectional survey was conducted in 2018. Health professionals of all disciplines were eligible, and recruitment was by direct approach to lung cancer multidisciplinary teams, professional listservs and conferences. Findings: Fifty-eight people completed the survey, of whom 26 (45%) were medical practitioners, 21 (36%) registered nurses, and 10 (17%) allied health practitioners. Nearly all (>90%) considered cough to be of clinical concern and welcomed efforts to improve management. In most services, ≤25% of patients with clinically concerning cough receive management. Opiates were perceived to be the most consistently effective pharmacological strategy, with ≥50% participants indicating minimal or variable effectiveness for all others. The few participants who had experience of non-pharmacological strategies perceived these to be only somewhat or variably effective. Discussion: Results from this study identified variability in the management of cough associated with lung cancer, and suggest this problem may be under-treated in most services. Unmet needs identified by this study are likely under-estimated due to the volunteer effect associated with open surveys. Conclusion: Further efforts are needed to raise awareness about the importance of managing cough and provide evidence-based strategies for this population.
Sanderson, C, Sheahan, L, Kochovska, S, Luckett, T, Parker, D, Butow, P & Agar, M 2019, 'Re-defining moral distress: A systematic review and critical re-appraisal of the argument-based bioethics literature', Clinical Ethics, vol. 14, no. 4, pp. 195-210.View/Download from: Publisher's site
© The Author(s) 2019. The concept of moral distress comes from nursing ethics, and was initially defined as '...when one knows the right thing to do, but institutional constraints make it nearly impossible to pursue the right course of action'. There is a large body of literature associated with moral distress, yet multiple definitions now exist, significantly limiting its usefulness. We undertook a systematic review of the argument-based bioethics literature on this topic as the basis for a critical appraisal, identifying 55 papers for analysis. We found that moral distress is most frequently framed around individual experiences of distress in relation to local practices and constraints, and understood in terms of power relations and workplace hierarchies. This understanding is directly derived from, and often still seen as specific to, nursing. Frequently the perspective of the morally distressed individual is privileged. Understandings of moral distress have evolved towards an 'occupational health approach', with the assumption that moral distress should be measured and prevented. Counter-perspectives were identified, highlighting conceptual problems. Based on our review, we propose a redefinition of moral distress: 'Ethical unease or disquiet resulting from a situation where a clinician believes they have contributed to avoidable patient or community harm through their involvement in an action, inaction or decision that conflicts with their own values'. This definition is specific enough for research use, anchored in clinicians' professional responsibilities and concerns about harms to patients, framed relationally rather than hierarchically, and amenable to multiple perspectives on any given morally distressing situation.
Sopina, E, Chenoweth, L, Luckett, T, Agar, M, Luscombe, GM, Davidson, PM, Pond, CD, Phillips, J & Goodall, S 2019, 'Health-related quality of life in people with advanced dementia: a comparison of EQ-5D-5L and QUALID instruments.', Quality of Life Research, vol. 28, no. 1, pp. 121-129.View/Download from: Publisher's site
Assessing health-related quality of life (HRQOL) in people with advanced dementia is challenging but important for informed decision-making. Proxy measurement of this construct is difficult and is often rated lower than self-report. Accurate proxy rating of quality of life in dementia is related to identification of concepts important to the person themselves, as well as the sensitivity of the measures used. The main aim of this study was to compare the performance of two instruments-QUALID and EQ-5D-5L-on measuring HRQOL in people with advanced dementia.In a sub-study nested within a cluster-RCT we collected proxy(nurse)-completed EQ-5D-5L and QUALID measures at baseline, 3, 6, 9 and 12 months' follow-up for people with advanced dementia, residing in 20 nursing homes across Australia. Spearman's rank correlations, partial correlations and linear regressions were used to assess the relationship between the HRQOL instrument scores and their changes over time.The mean weight from 284 people for the EQ-5D-5L and QUALID at baseline were 0.004 (95% CI - 0.026, 0.033) and 24.98 (95% CI 24.13, 25.82), respectively. At 12 months' follow-up, 115 participants remained alive. EQ-5D-5L weights and QUALID scores at baseline and at follow-up were moderately correlated (r = - 0.437; p < 0.001 at 12 months). Changes within QUALID and EQ-5D-5L across the same follow-up periods were also correlated (r = - 0.266; p = 0.005). The regression analyses support these findings.Whilst these quality of life instruments demonstrated moderate correlation, the EQ-5D-5L does not appear to capture all aspects of quality of life that are relevant to people with advanced dementia and we cannot recommend the use of this instrument for use within this population. The QUALID appears to be a more suitable instrument for measuring HRQOL in people with severe dementia, but is not preference-based, which limits its application in economic evaluations of dementia care.
Garcia, MV, Luckett, T, Johnson, M, Hutchinson, A, Lal, S & Phillips, JL 2019, 'The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis.', Journal of advanced nursing, vol. 75, no. 9, pp. 1953-1965.View/Download from: Publisher's site
AIM:To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease. DESIGN:A secondary analysis of semi-structured interview data. METHODS:Interviews with patients who had advanced respiratory disease, chronic breathlessness and at least one experience where they considered presenting to Emergency but self-managed instead (a "near miss"). Participants were recruited from New South Wales, Queensland, Victoria, South Australia or Tasmania. Eligible caregivers were those who contributed to Emergency-related decision-making. Interviews were coded inductively and then deductively against the coping moderators social support and dispositional coping style, defined by the Transactional Model of Stress and Coping. RESULTS:Interviews were conducted between October 2015 - April 2016 with 20 patients and three caregivers. Social networks offered emotional and practical support but also had potential for conflict with patients' 'hardy' coping style. Patient hardiness (characterized by a sense of 'commitment' and 'challenge') promoted a proactive approach to self-management but made some patients less willing to accept support. Information-seeking tendencies varied between patients and were sometimes shared with caregivers. An optimistic coping style appeared to be less equivocally beneficial. CONCLUSION:This study shows that social support and coping style may influence how people self-manage through their breathlessness crises and identified ways coping moderators can facilitate or hinder effective self-management. IMPACT:This study confers insights into how social-support and coping style can be supported and optimized to facilitate breathlessness self-management. Acknowledging coping moderator interactions is beneficial for developing resources and strategies that recognise patient mastery.
Raymond, B, Luckett, T, Johnson, M, Hutchinson, A, Lovell, M & Phillips, J 2019, 'Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review.', NPJ primary care respiratory medicine, vol. 29, no. 1.View/Download from: Publisher's site
Chronic breathlessness is debilitating and frightening, often resulting in emergency department presentations with acute-on-chronic breathlessness. Self-management is complex, involving 14 components as identified by the Practical Systematic Review in Self-Management Support (PRISMS). Low-intensity educational interventions that support breathlessness self-management through written/visual educational materials, alongside limited health professional support, are available. Our aim was to describe components of low-intensity educational interventions that support and improve self-management for adults with chronic breathlessness and evaluate their efficacy for improving breathlessness-related outcomes. A systematic review was conducted, including RCTs that compared these interventions with usual care in adults with chronic disease. Synthesis took a narrative approach utilizing the PRISMS taxonomy and Template for Intervention Description and Replication (TIDieR) checklist. Of the 1948 articles identified, 7 met criteria reporting 7 RCTs using 6 interventions. Studies utilized 12 out of 14 PRISMS components, the most frequent being training/rehearsal for psychological strategies. Evidence for effectiveness was inconsistent and attempts to identify beneficial components were confounded by intervention complexity and heterogeneity. The optimal content and delivery of low-intensity educational interventions that support self-management to improve chronic breathlessness-related outcomes in adults cannot be defined from current published literature. Future research should incorporate more detailed, standardized reporting to enable comparison and meta-analysis.
Shepherd, HL, Geerligs, L, Butow, P, Masya, L, Shaw, J, Price, MA, Dhillon, HM, Hack, TF, Girgis, A, Luckett, T, Lovell, M, Kelly, B, Beale, P, Grimison, P, Shaw, T, Viney, R & Rankin, NM 2019, 'The elusive search for success: defining and measuring implementation outcomes in a real-world hospital trial', Frontiers in Public Health, vol. 7.View/Download from: Publisher's site
Virdun, C, Luckett, T, Gilmore, I, Brassil, M, Lilian, R, Lorenz, K & Phillips, J 2019, 'Involving consumers with palliative care needs and their families in research: A case study', Collegian: The Australian Journal of Nursing Practice, Scholarship and Research, vol. 26, no. 6, pp. 645-650.View/Download from: Publisher's site
© 2019 Australian College of Nursing Ltd Background: There are significant policy imperatives to involve consumers at the outset of and throughout research. How best to achieve this in an authentic and meaningful way is elusive, particularly within the palliative care population. Aim: To determine how best to engage people with palliative care needs and their families in co-designing a qualitative study to better understand how to improve care of the dying in the acute care setting. Methods: A case study design informed this work, informed by pre-determined research questions that focused on consumers advising on participant experience within the research, rather than research methodology per se. Findings: Eleven consumers contributed across five panel meetings. Analysis of documented feedback led to four key areas of protocol change: Getting the language in the recruitment materials and information and consent forms right; Developing a feasible and acceptable recruitment strategy; Opportunities to more clearly articulate the explicit value of this research for patients and families; Support strategies for participants. Discussion: Authentic consumer engagement requires time and effort; however, the outcomes are well worth the invested time and energy. Key foci outlined within this case study to enhance authenticity included: collaboration; preferencing the consumer voice; adequate preparation to support consumer engagement; and openness to all feedback provided. Conclusion: Co-designing research with consumers enabled the outcome to be feasible for implementation, without any modifications required. Ensuring relevance and consumer-centredness for the expanding palliative care evidence base is essential and can only be achieved through meaningful partnerships with consumer representatives.
Luckett, T, Phillips, J, Agar, M, Lam, L, Davidson, PM, McCaffrey, N, Boyle, F, Shaw, T, Currow, DC, Read, A, Hosie, A & Lovell, M 2018, 'Protocol for a phase III pragmatic stepped wedge cluster randomised controlled trial comparing the effectiveness and cost-effectiveness of screening and guidelines with, versus without, implementation strategies for improving pain in adults with cancer attending outpatient oncology and palliative care services: the Stop Cancer PAIN trial', BMC HEALTH SERVICES RESEARCH, vol. 18.View/Download from: Publisher's site
Vongmany, J, Luckett, T, Lam, L & Phillips, JL 2018, 'Family behaviours that have an impact on the self-management activities of adults living with Type 2 diabetes: a systematic review and meta-synthesis.', Diabetic Medicine, vol. 35, no. 2, pp. 184-194.View/Download from: Publisher's site
To identify family behaviours that adults with Type 2 diabetes' perceive as having an impact on their diabetes self-management.Research suggests that adults with Type 2 diabetes perceive that family members have an important impact on their self-management; however, it is unclear which family behaviours are perceived to influence self-management practices.This meta-synthesis identified and synthesized qualitative studies from the databases EMBASE, Medline and CINAHL published between the year 2000 and October 2016. Studies were eligible if they provided direct quotations from adults with Type 2 diabetes, describing the influence of families on their self-management. This meta-synthesis adheres to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement.Of the 2606 studies screened, 40 were included. This meta-synthesis identified that adults with Type 2 diabetes perceive family behaviours to be either: 1) facilitators of diabetes self-management; 2) barriers to diabetes self-management; or 3) equivocal behaviours with the potential to both support and/or impede diabetes self-management. Seven sub-themes were identified within these themes, including: four facilitator sub-themes ('positive care partnerships'; 'family watchfulness'; 'families as extrinsic motivator' and 'independence from family'); two barrier sub-themes ('obstructive behaviours' and 'limited capacity for family support'); and one equivocal behaviours subtheme ('regular reminders and/or nagging').While most family behaviours are unambiguously perceived by adults with Type 2 diabetes to act as facilitators of or barriers to self-management, some behaviours were perceived as being neither clear facilitators nor barriers; these were termed 'equivocal behaviours'. If the concept of 'equivocal behaviours' is confirmed, it may be possible to encourage the adult living with Type 2 diabetes to reframe these behaviours so that they are perceived as enabling their diabetes se...
Disalvo, D, Luckett, T, Luscombe, G, Bennett, A, Davidson, P, Chenoweth, L, Mitchell, G, Pond, D, Phillips, J, Beattie, E, Goodall, S & Agar, M 2018, 'Potentially inappropriate prescribing in Australian nursing home residents with advanced dementia: a sub-study of the IDEAL Study', Journal of Palliative Medicine, vol. 21, no. 10, pp. 1472-1479.
Kochovska, S, Luckett, T, Agar, M & Phillips, JL 2018, 'Impacts on employment, finances, and lifestyle for working age people facing an expected premature death: A systematic review.', Palliative and Supportive Care, vol. 16, no. 3, pp. 347-364.View/Download from: Publisher's site
The working ages (25-65 years) are a period when most people have significant work, financial, and family responsibilities. A small proportion of working age people will face an expected premature death from cancer or other life-limiting illness. Understanding the impact an expected premature death has on this population is important for informing support. The current study set out to summarize research describing the effects that facing an expected premature death has on employment, financial, and lifestyle of working age people and their families.A systematic review using narrative synthesis approach. Four electronic databases were searched in July 2016 for peer-reviewed, English language studies focusing on the financial, employment, and lifestyle concerns of working age adults living with an advanced life-limiting illness and/or their carers and/or children.Fifteen quantitative and 12 qualitative studies were included. Two-thirds (n = 18) were focused on cancer. All studies identified adverse effects on workforce participation, finances, and lifestyle. Many patients were forced to work less or give up work/retire early because of symptoms and reduced functioning. In addition to treatment costs, patients and families were also faced with child care, travel, and home/car modification costs. Being younger was associated with greater employment and financial burden, whereas having children was associated with lower functional well-being. Changes in family roles were identified as challenging regardless of diagnosis, whereas maintaining normalcy and creating stability was seen as a priority by parents with advanced cancer. This review is limited by the smaller number of studies focussing on the needs of working age people with nonmalignant disease. Significance of results Working age people facing an expected premature death and their families have significant unmet financial, employment, and lifestyle needs. Comparing and contrasting their severity, timing, and p...
Butow, P, Shaw, J, Shepherd, HL, Price, M, Masya, L, Kelly, B, Rankin, NM, Girgis, A, Hack, TF, Beale, P, Viney, RC, Dhillon, HM, Coll, J, Kelly, P, Lovell, M, Grimison, P, Shaw, T, Luckett, T, Cuddy, J & White, F 2018, 'Comparison of implementation strategies to influence adherence to the clinical pathway for screening, assessment and management of anxiety and depression in adult cancer patients (ADAPT CP): study protocol of a cluster randomised controlled trial', BMC Cancer, vol. 18:1077.View/Download from: Publisher's site
Donkor, A, Luckett, T, Aranda, S & Phillips, J 2018, 'Barriers and facilitators to implementation of cancer treatment and palliative care strategies in low- and middle-income countries: systematic review', INTERNATIONAL JOURNAL OF PUBLIC HEALTH, vol. 63, no. 9, pp. 1047-1057.View/Download from: Publisher's site
Sellars, M, Clayton, JM, Morton, RL, Luckett, T, Silvester, W, Spencer, L, Pollock, CA, Walker, RG, Kerr, PG & Tong, A 2018, 'An Interview Study of Patient and Caregiver Perspectives on Advance Care Planning in ESRD.', American journal of kidney diseases : the official journal of the National Kidney Foundation, vol. 71, no. 2, pp. 216-224.View/Download from: Publisher's site
Advance care planning (ACP) empowers patients to consider and communicate their current and future treatment goals. However, it can be an emotionally charged process for patients with kidney disease and their caregivers. This study aimed to describe the perspectives and attitudes of patients with end-stage renal disease (ESRD) and their caregivers toward ACP.Qualitative study.Patients with ESRD (n=24) and their caregivers (n=15) aged 36 to 91 years at various stages of ACP ("not commenced," "in progress," or "completed") from 3 renal services.Semistructured interviews.Transcripts were analyzed using thematic analysis.5 major themes were identified: articulating core values (avoiding futile and undignified treatment, reevaluating terms of dialysis, framing a life worth living, and refusing to be a burden), confronting conversations (signifying death and defeat, accepting inevitable death, and alleviating existential tension), negotiating mutual understanding (broaching taboos and assisting conflicted caregivers), challenging patient autonomy (family pressures to continue dialysis, grief diminishing caregivers' capacity, and leveraging support), and decisional disempowerment (lacking medical transparency and disappointment with clinical disinterest).Only English-speaking patients/caregivers participated in the interview.ACP provides patients with ESRD and their caregivers a conduit for accepting and planning for impending death and to express treatment preferences based on self-dignity and value of living. However, ACP can be considered taboo, may require caregivers to overcome personal and decisional conflict, and may be complex if patients and caregivers are unable to accept the reality of the patient's illness. We suggest that ACP facilitators and clinicians make ACP more acceptable and less confrontational to patients and caregivers and that strategies be put in place to support caregivers who may be experiencing overwhelming grief or who have conflicting goals...
Smith, AB, Rutherford, C, Butow, P, Olver, I, Luckett, T, Grimison, P, Toner, G, Stockler, M & King, M 2018, 'A systematic review of quantitative observational studies investigating psychological distress in testicular cancer survivors.', Psycho-Oncology, vol. 27, no. 4, pp. 1129-1137.View/Download from: Publisher's site
Testicular cancer (TC) affects young men and may cause psychological distress despite a good prognosis. This systematic review evaluated the prevalence, severity, and correlates of anxiety, depression, fear of cancer recurrence (FCR), and distress in TC survivors.A systematic search of literature published 1977 to 2017 was conducted to find quantitative studies including TC survivor-reported outcomes relevant to review objectives. The quality of included articles was assessed, and a narrative synthesis conducted.Of 6717 articles identified, 66 (39 good, 20 fair, and 7 poor quality) reporting results from 36 studies were included. Testicular cancer survivors' mean anxiety levels were higher than in the general population, while mean depression and distress were no different. Clinically significant anxiety (≈1 in 5) and to a lesser extent distress (≈1 in 7), but not depression, were more prevalent in TC survivors than the general population. Approximately 1 in 3 TC survivors experienced elevated FCR. Poorer psychological outcomes were more common among TC survivors who were single, unemployed/low socio-economic status, suffering from co-morbidities, experiencing worse symptoms/side effects, and using passive coping strategies.Many TC survivors do not experience significant psychological morbidity, but anxiety and FCR are prevalent. Inadequate coping resources (eg, low socio-economic status and social support) and strategies (eg, avoidance) and greater symptoms/side effects were associated with poorer outcomes. Theoretically driven prospective studies would aid understanding of how outcomes change over time and how to screen for risk. Age and gender appropriate interventions that prevent and manage issues specific to TC survivors are also needed.
Virdun, C, Luckett, T, Lorenz, KA & Phillips, J 2018, 'National quality indicators and policies from 15 countries leading in adult end-of-life care: a systematic environmental scan', BMJ SUPPORTIVE & PALLIATIVE CARE, vol. 8, no. 2, pp. 145-154.View/Download from: Publisher's site
Xu, X, Luckett, T, Wang, AY, Lovell, M & Phillips, JL 2018, 'Cancer pain management needs and perspectives of patients from Chinese backgrounds: a systematic review of the Chinese and English literature', PALLIATIVE & SUPPORTIVE CARE, vol. 16, no. 6, pp. 785-799.View/Download from: Publisher's site
Green, A, Luckett, T, Abbott, P, DiGiacomo, M, Delaney, P, Delaney, J & Davidson, PM 2017, 'A framework for an asset-informed approach to service mapping', Nurse Researcher, vol. 25, no. 3, pp. 19-25.View/Download from: Publisher's site
Background Asset-informed approaches are increasingly emphasised in public health, but
transferring this approach to planning health services requires prospective systematic methods.
Asset-informed approaches to service-mapping have started to develop, but there are no
standardised guidelines. These methods are becoming of particular interest, as nurses engage in
population health activities.
Aim To identify methods of asset-informed mapping for addressing health problems and develop a
framework to support the methodological rigour of service-mapping.
Discussion The authors undertook an integrative literature review using a systematic approach
and narrative synthesis. Ten articles met the inclusion criteria. Reported methods included the
formation of a core team to drive the process, as well as varying detail about methods of collecting
data and forming maps. Challenges and solutions included the effectiveness of the core team
depending on having a designated leader, frequent meetings and previous partnerships, using
community 'cultural brokers', and determining aims and scope.
Conclusion Results of the review can be used to modify existing generic resources for assetinformed
mapping to their application in health services. Four main stages seem especially
applicable and important: defining the parameters of the service-mapping process; identifying
services; mapping services; and consultation and implementation.
Implications for practice The shift towards asset-informed approaches in community and public
health is an important step in realising the potential of existing assets in communities to influence
health outcomes. The framework offered in this paper is intended to assist in developing an
evidence base, by promoting the systematic and rigorous reporting of methods used in assetinformed
approaches to service-mapping.
Luckett, T, Spencer, L, Morton, RL, Pollock, CA, Lam, L, Silvester, W, Sellars, M, Detering, KM, Butow, PN, Tong, A & Clayton, JM 2017, 'Advance care planning in chronic kidney disease: A survey of current practice in Australia.', Nephrology, vol. 22, no. 2, pp. 139-149.View/Download from: Publisher's site
Advancse care planning (ACP) in nephrology is widely advocated but not always implemented. The aims of this study were to describe current ACP practice, identify barriers/facilitators and perceived need for health professional education and chronic kidney disease (CKD)-specific approaches.An anonymous cross-sectional survey was administered online. Nephrology health professionals in Australia and New Zealand were recruited via professional societies, email lists and nephrology conferences. Multiple regression explored the influence of respondents' attributes on extent of involvement in ACP and willingness to engage in future.375 respondents included nephrologists (23%), nurses (65%), social workers (4%) and others (8%). 54% indicated that ACP at their workplace was performed ad-hoc and 61% poorly. Perceived barriers included patient/family discomfort (84%), difficulty engaging families (83%), lack of clinician expertise (83%) and time (82%), health professional discomfort (72%), cultural/language barriers (65%), lack of private space (61%) and lack of formal policy/procedures (60%). Respondents overwhelmingly endorsed the need for more dialysis-specific ACP programs (96%) and education (95%). Whilst 85% thought ACP would be optimally performed by specially-trained staff, comments emphasized that all clinicians should have a working proficiency. Respondents who were more willing to engage in future ACP tended to be non-physicians (Odds ratio [OR] 4.96, 95% confidence intervals [CI] 1.74-14.07) and reported a greater need for CKD-specific ACP materials (OR 10.88, 95% CI 2.38-49.79).ACP in nephrology needs support through education and CKD-specific resources. Endorsement by nephrologists is important. A multi-disciplinary approach with a gradient of ACP expertise is also recommended.
Agar, M, Luckett, T, Luscombe, G, Phillips, J, Beattie, E, Pond, D, Mitchell, G, Davidson, P, Cook, J, Brooks, D, Houltram, J, Goodall, S & Chenoweth, L 2017, 'Effects of facilitated family case conferencing for advanced dementia: A cluster randomised clinical trial', PLoS ONE, vol. 12, no. 8, pp. e0181020-e0181020.
Luckett, T, Chenoweth, L, Phillips, J, Brooks, D, Cook, J, Mitchell, G, Pond, D, Davidson, P, Beattie, E, Luscombe, G, Goodall, S, Fischer, T & Agar, M 2017, 'A facilitated approach to family case conferencing for people with advanced dementia living in nursing homes: Perceptions of Palliative Care Planning Coordinators and other health professionals in the IDEAL Study', International Psychogeriatrics, vol. 29, pp. 1713-1722.
Luckett, T, Phillips, J, Johnson, M, Garcia, M, Bhattarai, P, Carrieri-Kohlman, V, Hutchinson, A, Disler, RT, Currow, D, Agar, M, Ivynian, S, Chye, R, Newton, PJ & Davidson, PM 2017, 'Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department 'near miss' for breathlessness: a strengths-based qualitative study.', BMJ Open, vol. 7, no. 12, pp. 1-11.View/Download from: Publisher's site
Breathlessness 'crises' in people with chronic respiratory conditions are a common precipitant for emergency department (ED) presentations, many of which might be avoided through improved self-management and support. This study sought insights from people with experience of ED 'near misses' where they considered going to the ED but successfully self-managed instead.A qualitative approach was used with a phenomenological orientation. Participants were eligible if they reported breathlessness on most days from a diagnosed respiratory condition and experience of ≥1 ED near miss. Recruitment was through respiratory support groups and pulmonary rehabilitation clinics. Semistructured interviews were conducted with each participant via telephone or face-to-face. Questions focused on ED-related decision-making, information finding, breathlessness management and support. This analysis used an integrative approach and independent coding by two researchers. Lazarus and Cohen's Transactional Model of Stress and Coping informed interpretive themes.Interviews were conducted with 20 participants, 15 of whom had chronic obstructive pulmonary disease. Nineteen interviews were conducted via telephone. Analysis identified important factors in avoiding ED presentation to include perceived control over breathlessness, self-efficacy in coping with a crisis and desire not to be hospitalised. Effective coping strategies included: taking a project management approach that involved goal setting, monitoring and risk management; managing the affective dimension of breathlessness separately from the sensory perceptual and building three-way partnerships with primary care and respiratory services.In addition to teaching non-pharmacological and pharmacological management of breathlessness, interventions should aim to develop patients' generic self-management skills. Interventions to improve self-efficacy should ensure this is substantiated by transfer of skills and support, including knowledge...
Hossain, LN, Fernandez-Llimos, F, Luckett, TR, Moullin, JC, Durks, D, Franco Trigo, L, Benrimoj, S & Sabater Hernandez, D 2017, 'Qualitative meta-synthesis of barriers and facilitators that influence the implementation of community pharmacy services: perspectives of patients, nurses and general medical practitioners', BMJ Open, vol. 7, no. 9, pp. 1-14.View/Download from: Publisher's site
Objectives The integration of community pharmacy services (CPSs) into primary care practice can be enhanced by assessing (and further addressing) the elements that enable (ie, facilitators) or hinder (ie, barriers) the implementation of such CPSs. These elements have been widely researched from the perspective of pharmacists but not from the perspectives of other stakeholders who can interact with and influence the implementation of CPSs. The aim of this study was to synthesise the literature on patients', general practitioners' (GPs) and nurses' perspectives of CPSs to identify barriers and facilitators to their implementation in Australia.
Methods A meta-synthesis of qualitative studies was performed. A systematic search in PubMed, Scopus and Informit was conducted to identify studies that explored patients', GPs' or nurses' views about CPSs in Australia. Thematic synthesis was performed to identify elements influencing CPS implementation, which were further classified using an ecological approach.
Results Twenty-nine articles were included in the review, addressing 63 elements influencing CPS implementation. Elements were identified as a barrier, facilitator or both and were related to four ecological levels: individual patient (n=14), interpersonal (n=24), organisational (n=16) and community and healthcare system (n=9). It was found that patients, nurses and GPs identified elements reported in previous pharmacist-informed studies, such as pharmacist's training/education or financial remuneration, but also new elements, such as patients' capability to follow service's procedures, the relationships between GP and pharmacy professional bodies or the availability of multidisciplinary training/education.
Conclusions Patients, GPs and nurses can describe a large number of elements influencing CPS implementation. These elements can be combined with previous findings in pharmacists-informed studies to produce a comprehensive framework to assess barriers a...
Luckett, T, Phillips, J, Johnson, MJ, Farquhar, M, Swan, F, Assen, T, Bhattarai, P & Booth, S 2017, 'Contributions of a hand-held fan to self-management of chronic breathlessness.', The European Respiratory Journal, vol. 50, no. 2, pp. 1-10.View/Download from: Publisher's site
This study explored the benefits of a hand-held fan as perceived by patients with chronic breathlessness and their carers.A secondary multimethod analysis was conducted of interview data collected in three clinical trials. Two researchers independently coded level of benefit qualitatively reported by each patient. Univariate and multivariate statistics were used to explore perceived benefit as a factor of sex, age and diagnosis. Qualitative analysis used an integrative method.133 patients commented on the fan, of whom 72 had a carer. Diagnoses included nonmalignant (n=91, 68.4%) and malignant (n=21, 15.8%) conditions. Of 111 patients who provided codable data, four (3.6%) perceived no benefit, 16 (14.4%) were uncertain, 80 (72.0%) perceived some benefit and 11 (10.0%) perceived very substantial benefit. Multivariate analysis was inconclusive. Benefit was described in terms of shorter recovery time, especially after activity. 10 (7.5%) patients said the fan reduced their need for home oxygen or inhaled β-agonist medications. Negative perceptions of a few included dislike of the cooling sensation and embarrassment in public.Findings suggest that a hand-held fan is a portable intervention with few disadvantages from which most patients with chronic breathlessness will derive benefit alongside other nonpharmacological and pharmacological strategies. Research is needed to optimise guidance on fan administration.
Sellars, M, Tong, A, Luckett, T, Morton, RL, Pollock, CA, Spencer, L, Silvester, W & Clayton, JM 2017, 'Clinicians' Perspectives on Advance Care Planning for Patients With CKD in Australia: An Interview Study.', American Journal of Kidney Diseases, vol. 70, no. 3, pp. 315-323.View/Download from: Publisher's site
Advance care planning (ACP) empowers patients to consider and communicate their current and future treatment goals. However, ACP is not widely implemented in chronic kidney disease (CKD) care settings. This study aims to describe clinicians' beliefs, challenges, and perspectives of ACP in patients with CKD.Qualitative study.Nephrologists (n=20), nurses (n=7), and social workers (n=4) with a range of experience in facilitating ACP for patients with CKD across Australia.Semistructured interviews were digitally recorded and transcribed verbatim.Transcripts were analyzed using thematic analysis.5 major themes were identified: facilitating informed decision making (avoiding preconceptions, conveying complete truths, focusing on supportive care, and synchronizing with evolving priorities), negotiating moral boundaries (contending with medical futility and respecting patient vs family autonomy), navigating vulnerable conversations (jeopardizing the therapeutic relationship, compromising professional confidence, emotionally invested, and enriching experiences), professional disempowerment (unsupportive culture, doubting logistical feasibility, and making uncertain judgments), and clarifying responsibilities (governing facilitation, managing tensions, and transforming multidisciplinary relationships).Some findings may be specific to the Australian context.The tensions among themes reflect that ACP is paradoxically rewarding for clinicians because ACP empowers patients yet can expose personal and professional vulnerabilities. Clinicians believe that a more collaborative approach is needed, with increased efforts to identify the evolving and individualized needs and goals of patients with CKD. Models of ACP that address clinicians' personal and professional vulnerabilities when initiating ACP may foster greater confidence and cultural acceptance of ACP in the CKD setting.
Virdun, C, Luckett, T, Lorenz, K, Davidson, PM & Phillips, J 2017, 'Analyzing Consumer Priorities for Hospital End-of-Life Care Using a Systematic Review to Inform Policy and Practice', SAGE Research Methods Cases.View/Download from: Publisher's site
A systematic review is a useful method to answer a research question where prior studies have been conducted. A
well-designed and executed systematic review can inform policy and/or practice change. It can also identify gaps
and generate new research questions. Although the requirements considered essential for conducting a rigorous
systematic review are well defined in the Preferred Reporting Items for Systematic Reviews and Meta-Analyses
statement, the approaches taken to synthesize the data vary. This case study describes the narrative synthesis of
heterogeneous quantitative studies and the meta-synthesis of qualitative studies used to answer a complex
research question from the consumer perspective. The study design focused on the analysis of consumer data
only. As a result, the synthesis of both quantitative data and qualitative data has provided a detailed insight into
consumers' unique perspectives and needs. The synthesis approach for both datasets is described, and linkages
to key tools and resources to help facilitate this approach are provided. Processes used by the research team to
enable effective research governance and collaboration throughout are also detailed.
Virdun, C, Luckett, T, Lorenz, K, Davidson, PM & Phillips, J 2017, 'Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important.', Palliative medicine, vol. 31, no. 7, pp. 587-601.View/Download from: Publisher's site
Despite most expected deaths occurring in hospital, optimal end-of-life care is not available for all in this setting.To gain a richer and deeper understanding of elements of end-of-life care that consumers consider most important within the hospital setting.A meta-synthesis.A systematic search of Academic Search Complete, AMED, CINAHL, MEDLINE, EMBASE, PsycINFO, PubMed, Google, Google Scholar and CareSearch for qualitative studies published between 1990 and April 2015 reporting statements by consumers regarding important elements of end-of-life hospital care. Study quality was appraised by two independent researchers using an established checklist. A three-stage synthesis approach focusing on consumer quotes, rather than primary author themes, was adopted for this review.Of 1922 articles, 16 met the inclusion criteria providing patient and family data for analysis. Synthesis yielded 7 patient and 10 family themes including 6 common themes: (1) expert care, (2) effective communication and shared decision-making, (3) respectful and compassionate care, (4) adequate environment for care, (5) family involvement and (6) financial affairs. Maintenance of sense of self was the additional patient theme, while the four additional family themes were as follows: (1) maintenance of patient safety, (2) preparation for death, (3) care extending to the family after patient death and (4) enabling patient choice at the end of life.Consumer narratives help to provide a clearer direction as to what is important for hospital end-of-life care. Systems are needed to enable optimal end-of-life care, in accordance with consumer priorities, and embedded into routine hospital care.
Brown, N, Luckett, T, Davidson, PM & DiGiacomo, M 2017, 'Family-focussed interventions to reduce harm from smoking in primary school-aged children: A systematic review of evaluative studies.', Preventive Medicine, vol. 101, pp. 117-125.View/Download from: Publisher's site
Children living in families where adults smoke are exposed to harmful effects of tobacco smoke and risk a predisposition to smoking initiation. Interventions to support families to reduce risk of harm from smoking have been developed and tested. The purpose of this review is to identify effective family-based interventions used to promote smoke-free home environments in families with primary school age children (aged 5-12years). A systematic search of MEDLINE, Cochrane and CINAHL electronic databases was conducted. Narrative synthesis of included articles was completed. Guidelines for reporting behaviour change interventions were used to summarise and compare intervention timing, content, intensity and delivery. Quality of included studies was critiqued using United States Preventative Services Taskforce (USPST) procedures for internal and external validity. Narrative synthesis was based on methods described by Popay and colleagues. Nineteen articles that evaluated 14 intervention studies focussed on child smoking prevention (n=5), parent smoking cessation (n=4) and environmental tobacco smoke reduction (n=6). Interventions and outcomes were heterogeneous, and were rarely informed by theoretical frameworks relating to family, parenting or child development. Family based interventions may be an important strategy to reduce the effects of smoking for children. There is a need for interventions to be informed by theory relevant to children, parenting and families.
Luckett, TR, Phillips, J, Lintzeris, N, Allsop, D, Lee, J, Solowij, N, Martin, J, Lam, L, Aggarwal, R, McCaffrey, N, Currow, D, Chye, R, Lovell, M, McGregor, I & Agar, M 2016, 'Clinical trials of medicinal cannabis for appetite-related symptoms from advanced cancer: A survey of preferences, attitudes and beliefs among patients willing to consider participation', Internal Medicine Journal, vol. 46, no. 11, pp. 1269-1275.View/Download from: Publisher's site
Disalvo, D, Luckett, T, Agar, M, Bennett, A & Davidson, PM 2016, 'Systems to identify potentially inappropriate prescribing in people with advanced dementia: a systematic review', BMC GERIATRICS, vol. 16.View/Download from: Publisher's site
Davidson, PM, Phillips, JL, Dennison-Himmelfarb, C, Thompson, SC, Luckett, T & Currow, DC 2016, 'Providing palliative care for cardiovascular disease from a perspective of sociocultural diversity: a global view', CURRENT OPINION IN SUPPORTIVE AND PALLIATIVE CARE, vol. 10, no. 1, pp. 11-17.View/Download from: Publisher's site
Luckett, T, Disler, R, Hosie, A, Johnson, M, Davidson, P, Currow, D, Sumah, A & Phillips, J 2016, 'Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review', NPJ PRIMARY CARE RESPIRATORY MEDICINE, vol. 26.View/Download from: Publisher's site
Smith, AB, Butow, P, Olver, I, Luckett, T, Grimison, P, Toner, GC, Stockler, MR, Hovey, E, Stubbs, J, Turner, S, Hruby, G, Gurney, H, Alam, M, Cox, K & King, MT 2016, 'The prevalence, severity, and correlates of psychological distress and impaired health-related quality of life following treatment for testicular cancer: a survivorship study.', Journal of Cancer Survivorship, vol. 10, no. 2, pp. 223-233.View/Download from: Publisher's site
This study aimed to establish the prevalence, severity, and correlates of psychological distress and impaired generic health-related quality of life (HRQOL) in testicular cancer (TC) survivors.Men who had completed active anti-cancer treatment for TC between 6 months and 5 years previously showing no evidence of recurrence were recruited from 14 Australian cancer centers from September 2009 to February 2011. Participants completed a self-report questionnaire measuring demographic, disease, and treatment information, psychological distress (i.e., depression, anxiety, and stress; DASS21), generic health-related quality of life (HRQOL; SF-36v2), TC-specific HRQOL (EORTC QLQ-TC26), coping (MAC), social support (DUFSS), and unmet needs (CaSUN).Of 486 eligible TC survivors, 244 (50.2 %) completed the questionnaire. Compared with normative data, TC survivors reported: small but statistically significant increases in mean levels of anxiety and depression; a greater prevalence of moderate to extremely severe anxiety (19 %) and depression (20 %); and significant deficits to mostly mental aspects of generic HRQOL. The most problematic TC-specific HRQOL issues (e.g., fear of recurrence) were also more mental than physical. In multiple regression analyses, the strongest correlates of psychological distress and impaired generic HRQOL were psychosocial (e.g., helpless/hopeless coping and lower social support) rather than disease or treatment factors.Generally, TC survivors appear to experience mild psychological distress and HRQOL impairments, while a vulnerable subgroup experience more severe morbidity.There is a need to identify TC survivors at risk of poorer outcomes and for interventions to target the areas of greatest impairment (i.e., psychological distress and mental HRQOL).
Phillips, JL, Lovell, M, Luckett, T, Agar, M, Green, AR & Davidson, PM 2015, 'Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective', Collegian, vol. 22, no. 1, pp. 33-41.View/Download from: Publisher's site
Cancer pain remains a major public health concern. Despite effective treatmentsbeing available to manage the majority of cancer pain, this debilitating symptom is frequentlyunder treated. As cancer has becomes a chronic disease a range of health professionals, includ-ing community nurses in Australia are increasingly caring for people living with cancer relatedpain. Yet, little is known about community nurses capacity to assess and manage cancer painin accordance with best available evidence.
Agar, M, Beattie, E, Luckett, T, Phillips, J, Luscombe, G, Goodall, S, Mitchell, G, Pond, D, Davidson, PM & Chenoweth, L 2015, 'Pragmatic cluster randomised controlled trial of facilitated family case conferencing compared with usual care for improving end of life care and outcomes in nursing home residents with advanced dementia and their families: the IDEAL study protocol', BMC Palliative Care, vol. 14, no. 63.View/Download from: Publisher's site
Lovell, M, Luckett, T, Boyle, F, Stubbs, J, Phillips, J, Davidson, PM, Olver, I, von Dincklage, J & Agar, M 2015, 'Adaptation of international guidelines on assessment and management of cancer pain for the Australian context', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, vol. 11, no. 2, pp. 170-177.View/Download from: Publisher's site
Luckett, T, Bhattarai, P, Phillips, J, Agar, M, Currow, D, Krastev, Y & Davidson, PM 2015, 'Advance care planning in 21st century Australia: a systematic review and appraisal of online advance care directive templates against national framework criteria', AUSTRALIAN HEALTH REVIEW, vol. 39, no. 5, pp. 552-560.View/Download from: Publisher's site
Spencer, L, Luckett, T, Morton, R, Silvester, W, Pollock, C, Sellars, M, Detering, K, Tong, A, Butow, P & Clayton, J 2015, 'A SURVEY OF CLINICIANS' PRACTICES AND ATTITUDES TO ADVANCE CARE PLANNING FOR PATIENTS WITH CHRONIC KIDNEY DISEASE', NEPHROLOGY, vol. 20, pp. 56-56.
Virdun, C, Luckett, T, Davidson, PM & Phillips, J 2015, 'Dying in the hospital setting: A systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important.', Palliative Medicine, vol. 29, no. 9, pp. 774-796.View/Download from: Publisher's site
BACKGROUND: The majority of expected deaths occur in hospitals where optimal end-of-life care is not yet fully realised, as evidenced by recent reviews outlining experience of care. Better understanding what patients and their families consider to be the most important elements of inpatient end-of-life care is crucial to addressing this gap. AIM AND DESIGN: This systematic review aimed to ascertain the five most important elements of inpatient end-of-life care as identified by patients with palliative care needs and their families. DATA SOURCES: Nine electronic databases from 1990 to 2014 were searched along with key internet search engines and handsearching of included article reference lists. Quality of included studies was appraised by two researchers. RESULTS: Of 1859 articles, 8 met the inclusion criteria generating data from 1141 patients and 3117 families. Synthesis of the top five elements identified four common end-of-life care domains considered important to both patients and their families, namely, (1) effective communication and shared decision making, (2) expert care, (3) respectful and compassionate care and (4) trust and confidence in clinicians. The final domains differed with financial affairs being important to families, while an adequate environment for care and minimising burden both being important to patients. CONCLUSION: This review adds to what has been known for over two decades in relation to patient and family priorities for end-of-life care within the hospital setting. The challenge for health care services is to act on this evidence, reconfigure care systems accordingly and ensure universal access to optimal end-of-life care within hospitals.
Brown, N, Luckett, T, Davidson, PM & DiGiacomo, M 2015, 'Interventions to Reduce Harm from Smoking with Families in Infancy and Early Childhood: A Systematic Review', International Journal of Environmental Research and Public Health, vol. 12, no. 3, pp. 3091-3119.View/Download from: Publisher's site
Exposure to adult smoking can have deleterious effects on children. Interventions that assist families with smoking cessation/reduction and environmental tobacco smoke (ETS) avoidance can improve child health outcomes and reduce the risk of
smoking initiation. The purpose of this review was to describe the state of the science of interventions with families to promote smoke-free home environments for infants and young children, including parent smoking reduction and cessation interventions, ETS reduction, and anti-smoking socialisation interventions, using the socio-ecological framework as a guide. A systematic review of peer-reviewed articles identified from journal databases from 2000 to 2014 was undertaken. Of 921 articles identified, 28 were included in the review. Considerable heterogeneity characterised target populations, intervention types, complexity and intensity, precluding meta-analysis. Few studies used socio-ecological approaches, such as family theories or concepts. Studies in early parenthood (child age newborn to one
year) tended to focus on parent smoking cessation, where studies of families with children aged 1–5 years were more likely to target household SHSe reduction. results suggest that interventions for reduction in ETS may be more successful than for smoking cessation and relapse prevention in families of children aged less than 5 years. There is a need for a range of interventions to support families in creating a smoke free home environment that are both tailored and targeted to specific populations. Interventions that target the social and psychodynamics of the family should be considered further, particularly in reaching vulnerable populations. Consideration is also required for approaches to interventions that may further stigmatise families containing smokers. Further research is required to identify
successful elements of interventions and the contexts in which they are most effective.
Virdun, C, Brown, N, Phillips, JL, Luckett, T, Agar, M, Green, AR & Davidson, PM 2015, 'Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach', Collegian, vol. 22, no. 4, pp. 421-431.View/Download from: Publisher's site
Background: Models of palliative care need to address the unmet needs of children, youngpeople and families.Objective: To undertake an integrative review to identify the key elements of optimal paediatric palliative care from the perspectives of children and young people with palliative care needs and their parents.
Disler, RT, Green, AR, Luckett, T, Newton, PJ, Inglis, S, Currow, D & Davidson, PM 2014, 'Experience of advanced chronic obstructive pulmonary disease: Metasynthesis of qualitative data.', Journal of Pain and Symptom Management, vol. 48, no. 6, pp. 1182-1199.View/Download from: Publisher's site
Context. Chronic obstructive pulmonary disease (COPD) is a life-limiting illness. Despite best available treatments, individuals continue to experience symptom burden and have high health-care utilization. Objectives. To increase understanding of the experience and ongoing needs of individuals living with COPD.
Green, A, DiGiacomo, M, Luckett, T, Abbott, P, Davidson, PM, Delaney, J & Delaney, P 2014, 'Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review and theory-based synthesis', International Journal of Equity in Health, vol. 13, pp. 126-126.View/Download from: Publisher's site
Aboriginal and Torres Strait Islander children in Australia experience a higher prevalence of disability and socio-economic disadvantage than other Australian children. Early intervention is vital for improved health outcomes, but complex and fragmented service provision impedes access. There have been international and national policy shifts towards inter-sector collaborative responses to disability, but more needs to be known about how collaboration works in practice.
A systematic integrative literature review using a narrative synthesis of peer-reviewed and grey literature was undertaken to describe components of inter- and intra-sector collaborations among services to Aboriginal and Torres Strait Islander children with a disability and their families. The findings were synthesized using the conceptual model of the ecological framework.
Thirteen articles published in a peer-reviewed journal and 18 articles from the grey literature met inclusion criteria. Important factors in inter- and intra-sector collaborations identified included: structure of government departments and agencies, and policies at the macro- (government) system level; communication, financial and human resources, and service delivery setting at the exo- (organizational) system level; and relationships and inter- and intra-professional learning at the meso- (provider) system level.
The policy shift towards inter-sector collaborative approaches represents an opportunity for the health, education and social service sectors and their providers to work collaboratively in innovative ways to improve service access for Aboriginal and Torres Strait Islander children with a disability and their families. The findings of this review depict a national snapshot of collaboration, but as each community is unique, further research into collaboration within local contexts is required to ensure collaborative solutions to improve service access are responsive to local n...
Luckett, T, Davidson, PM, Boyle, F, Liauw, W, Agar, M, Green, A & Lovell, M 2014, 'Australian survey of current practice and guideline use in adult cancer pain assessment and management: Perspectives of oncologists', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, vol. 10, no. 2, pp. E99-E107.View/Download from: Publisher's site
Luckett, T, Phillips, JL, Agar, M, Virdun, C, Green, AR & Davidson, PM 2014, 'Elements of effective palliative care models: a rapid review', BMC Health Services Research, vol. 14, pp. 1-22.View/Download from: Publisher's site
Background: Population ageing, changes to the profiles of life-limiting illnesses and evolving societal attitudes prompt a critical evaluation of models of palliative care. We set out to identify evidence-based models of palliative care to inform policy reform in Australia.
Phillips, JL, Lam, L, Luckett, T, Agar, M & Currow, D 2014, 'Is the Life Space Assessment applicable to a palliative care population? : A brief methodological report on its relationship to measures of performance and quality of life. Brief Methodological Report.', Journal of Pain and Symptom Management, vol. 47, no. 6, pp. 1121-1127.View/Download from: Publisher's site
The spatial environments that palliative care patients frequent for business and leisure constrict as their disease progresses and their physical functioning deteriorates. Measuring a persons movement within his or her own environment is a clinically relevant and patient-centered outcome because it measures function in a way that reflects actual and not theoretical participation.
Lovell, MR, Luckett, T, Boyle, FM, Phillips, J, Agar, M & Davidson, PM 2014, 'Patient Education, Coaching, and Self-Management for Cancer Pain', JOURNAL OF CLINICAL ONCOLOGY, vol. 32, no. 16, pp. 1712-+.View/Download from: Publisher's site
Chang, S, Newton, PJ, Inglis, S, Luckett, T, Krum, H, MacDonald, PS & Davidson, PM 2014, 'Are all outcomes in chronic heart failure rated equally? An argument for a patient-centred approach to outcome assessment', Heart Failure Reviews, vol. 19, no. 2, pp. 153-162.View/Download from: Publisher's site
Chronic heart failure (CHF) is a multi-dimensional and complex syndrome. Outcome measures are important for determining both the efficacy and quality of care and capturing the patient's perspective in evaluating the outcomes of health care delivery. Capturing the patient's perspective via patient-reported outcomes is increasingly important; however, including objective measures such as mortality would provide more complete account of outcomes important to patients. Currently, no single measure for CHF outcomes captures all dimensions of the quality of care from the patient's perspective.
Luckett, T, Sellars, M, Tieman, J, Pollock, CA, Silvester, W, Butow, PN, Detering, KM, Brennan, F & Clayton, JM 2014, 'Advance Care Planning for Adults With CKD: A Systematic Integrative Review', American Journal of Kidney Diseases, vol. 63, no. 5, pp. 761-770.View/Download from: Publisher's site
Sellars, M, Luckett, T, Tieman, J, Pollock, CA, Silvester, W, Butow, PN, Detering, KM, Brennan, F & Clayton, JM 2014, 'ADVANCE CARE PLANNING FOR ADULTS WITH CKD: A SYSTEMATIC INTEGRATIVE REVIEW', NEPHROLOGY, vol. 19, pp. 31-32.
Lovell, M, Agar, M, Luckett, T, Davidson, PM, Green, AR & Clayton, J 2013, 'Australian survey of current practice and guideline use in adult cancer pain assessment and management: Perspectives of palliative care physicians', Journal of Palliative Medicine, vol. 16, no. 11, pp. 1403-1409.View/Download from: Publisher's site
Background: Cancer pain continues to be undertreated, despite the availability of evidence-based guidelines. The Australian National Pain Strategy identified establishment of systems and guidelines to adequately manage cancer pain as a high priority.
Luckett, T, Davidson, PM, Green, AR, Boyle, F, Stubbs, J & Lovell, M 2013, 'Assessment and Management of Adult Cancer Pain: A Systematic Review and Synthesis of Recent Qualitative Studies Aimed at Developing Insights for Managing Barriers and Optimizing Facilitators Within a Comprehensive Framework of Patient Care', Journal of Pain and Symptom Management, vol. 46, no. 2, pp. 229-253.View/Download from: Publisher's site
Objectives: To develop insights for managing barriers and optimizing facilitators to adult cancer pain assessment and management within a comprehensive framework of patient care.
Luckett, T, Davidson, PM, Lam, L, Phillips, JL, Currow, D & Agar, M 2013, 'Do Community Specialist Palliative Care Services That Provide Home Nursing Increase Rates of Home Death for People with Life-Limiting Illnesses? A Systematic Review and Meta-Analysis of Comparative Studies', Journal of Pain and Symptom Management, vol. 45, no. 2, pp. 279-297.View/Download from: Publisher's site
Context. Systematic reviews and meta-analyses suggest that community specialist palliative care services (SPCSs) can avoid hospitalizations and enable home deaths. But more information is needed regarding the relative efficacies of different models. Family caregivers highlight home nursing as the most important service, but it is also likely the most costly.
Lewis, J, DiGiacomo, M, Luckett, T, Davidson, PM & Currow, D 2013, 'A Social Capital Framework for Palliative Care: Supporting Health and Well-Being for People With Life-Limiting Illness and Their Carers Through Social Relations and Networks', Journal of Pain and Symptom Management, vol. 45, no. 1, pp. 92-103.View/Download from: Publisher's site
This paper summarizes the literature on social capital, well-being, and quality of life for key outcomes to inform a model of social capital in palliative care.
Marie, N, Luckett, T, Davidson, PM, Lovell, M & Lal, S 2013, 'Optimal patient education for cancer pain: a systematic review and theory-based meta-analysis', Supportive Care in Cancer, vol. 21, no. 12, pp. 3529-3537.View/Download from: Publisher's site
Purpose: Previous systematic reviews have found patient education to be moderately efficacious in decreasing the intensity of cancer pain, but variation in results warrants analysis aimed at identifying which strategies are optimal. Methods: A systematic review and meta-analysis was undertaken using a theory-based approach to classifying and comparing educational interventions for cancer pain. The reference lists of previous reviews andMEDLINE, PsycINFO, and CENTRAL were searched in May 2012. Studies had to be published in a peer-reviewed English language journal and compare the effect on cancer pain intensity of education with usual care. Meta-analyses used standardized effect sizes (ES) and a random effects model. Subgroup analyses compared intervention components categorized using the Michie et al. (Implement Sci 6:42, 2011) capability, opportunity, and motivation behavior (COM-B) model.
Smith, A, King, MT, Butow, P, Luckett, T, Grimison, P, Toner, G, Stockler, MR, Hovey, E, Stubbs, J, Hruby, G, Gurney, H, Turner, S, Alam, M, Cox, K & Oliver, I 2013, 'The prevalence and correlates of supportive care needs in testicular cancer survivors: A cross-sectional study', Psycho-Oncology, vol. 22, no. 11, pp. 2557-2564.View/Download from: Publisher's site
Objective This cross-sectional study aimed to identify the prevalence and correlates of supportive care needs in testicular cancer (TC) survivors. Methods Men who had completed active anti-cancer treatment for TC between 6?months and 5?years previously showing no evidence of recurrence were recruited from 14 Australian cancer centers (September 2009February 2011). Participants completed a self-report questionnaire measuring sociodemographics, disease, and treatment information, supportive care needs (CaSUN), psychological distress (DASS21) and health-related quality of life (HRQoL; SF36v2). Results Of the 486 eligible TC survivors invited to participate, 244 completed the questionnaire. Sixty-six percent reported one or more unmet supportive care needs. The mean number of unmet needs was 4.73 (SD?=?7.0, Range?=?034). The most common unmet needs related primarily to existential survivorship issues (e.g., life stress) and relationships (e.g., sex life). Younger age and presence of chronic illness other than TC were significantly associated with higher number of unmet needs. The number of unmet needs was more highly correlated with psychological distress and HRQoL than unmet need strength.
Smith, AB, King, M, Butow, P, Luckett, T, Grimison, P, Toner, G, Stockler, M, Hovey, E, Stubbs, J, Hruby, G, Gurney, H, Turner, S, Alam, M, Cox, K & Olver, I 2013, 'The Prevalence and Correlates of Supportive Care Needs in Testicular Cancer Survivors: A Cross- Sectional Study', PSYCHO-ONCOLOGY, vol. 22, pp. 38-39.
Disler, RT, Green, AR, Luckett, T, Newton, PJ, Inglis, S, Currow, D & Davidson, PM 2012, 'Unmet needs in chronic obstructive pulmonary disease: a metasynthesis protocol', International Journal of Research in Nursing, vol. 3, no. 1, pp. 15-20.View/Download from: Publisher's site
Abstract: Problem statement: Chronic obstructive pulmonary disease is a chronic progressive illness. Despite the high burden experienced by individuals in the advanced stages of illness, individuals with advanced COPD continue to have unmet needs and limited access to palliative care. This Metasynthesis seeks to describe: the barriers and facilitators care access and provision; the unmet needs of individuals with advanced COPD, their families and carers; and the experiences of health professionals. Data sources: Medline, PsychINFO, AMED, CINAHL and Sociological Abstracts were searched for articles published between 1990 and December 31st 2011. Medical Subject Headings (MeSH) and key words will be used to guide the search. The strategy will be reviewed by the CareSearch palliative knowledge network and a health informatics expert. Approach: Metasyntheses are increasingly used to gain new insights and understandings of complex research questions through the amalgamation of data from individual qualitative studies. The principles of the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) and thematic synthesis will be used to achieve consistent reporting and transparency of methods. Results: Inclusion of studies, quality assessment and allocation of free codes into EPPI-Reviewer 4 software will be carried out by two independent investigators. Auditing of random cases will be undertaken and disagreements resolved through group discussion of an expert panel. Descriptive and analytical themes will be developed through thematic synthesis and expert panel discussion. Conclusion: Qualitative data provide useful information in understanding the individual's unique experience. Combining discrete qualitative studies provides an important opportunity to provide a voice to patients, their families and professional careers in managing advanced COPD.
Purpose of review: The aim of this review is to summarize the current state of the science in physical symptoms and other end-of-life care domains and/or illness-specific outcomes in palliative care. The review includes progress in outcome measure development and interpretation, with specific reference to the clinical trial context. Recent findings: There are validated measures in a wide range of domains, which can measure outcomes specific to palliative care interventions; which are sufficiently validated to ensure the results of the trial are robust and measuring differences which are both clinically meaningful. In several areas, consensus is emerging which will allow consolidation of outcome measurement and the ability to extend measurement from the clinical trial setting into routine clinical practice. Potential exists for composite measures covering areas prioritized by patients to improve comparability and efficiency. Adverse events need to be measured with the same degree of rigor as efficacy outcomes. Summary: Clinical trials of palliative care interventions need to consider a range of outcomes, however, the choice and timing of measurement of the primary outcome need to be guided by the domain most likely to be influenced by the intervention.
Shelby-James, TM, Hardy, J, Agar, M, Yates, P, Mitchell, G, Sanderson, C, Luckett, T, Abernethy, AP & Currow, DC 2012, 'Designing and conducting randomized controlled trials in palliative care: A summary of discussions from the 2010 clinical research forum of the Australian Palliative Care Clinical Studies Collaborative', PALLIATIVE MEDICINE, vol. 26, no. 8, pp. 1042-1047.View/Download from: Publisher's site
Colagiuri, B, King, MT, Butow, P, McGrane, JA, Luckett, T, Price, MA, Birney, DP, The Australian Ovarian Cancer Study Group & The Australian Ovarian Cancer Study—Quality of Life Study Investigators 2012, 'A comparison of the FACT-G and the supportive care needs survey (SCNS) in women with ovarian cancer - unidimensionality of constructs', Quality of Life Research, vol. 21, no. 5, pp. 887-897.View/Download from: Publisher's site
Purpose: Health-related quality of life (HRQoL) and unmet needs (needs) questionnaires offer alternative perspectives for assessing cancer patientsâ concerns. We examined whether the conceptual differences underlying these alternative approaches yield corresponding empirical differences.
King, M, Colagiuri, B, Butow, P, McGrane, J, Luckett, T, Price, M & Birney, D 2012, 'Health-related Quality of Life Versus Needs Assessment: Do Conceptual Distinctions Translate Empirically? (MT)', QUALITY OF LIFE RESEARCH, vol. 20, pp. 75-76.
Bundy, AC, Naughton, G, Tranter, P, Wyver, S, Baur, L, Schiller, W, Bauman, A, Engelen, L, Ragen, J, Luckett, T, Niehues, A, Stewart, G, Jessup, G & Brentnall, J 2011, 'The Sydney playground project: popping the bubblewrap - unleashing the power of play: a cluster randomized controlled trial of a primary school playground-based intervention aiming to increase children's physical activity and social skills', BMC Public Health, vol. 11, no. 680, pp. 1-9.View/Download from: Publisher's site
Background: In the Westernised world, numerous children are overweight and have problems with bullying and mental health. One of the underlying causes for all three is postulated to be a decrease in outdoor free play. The aim of the Sydney Playground Project is to demonstrate the effectiveness of two simple interventions aimed to increase children's physical activity and social skills. Methods/Design: This study protocol describes the design of a 3-year cluster randomised controlled trial (CRCT), in which schools are the clusters. The study consists of a 13-week intervention and 1 week each of pre-and posttesting. We are recruiting 12 schools (6 control; 6 intervention), with 18 randomly chosen participants aged 5 to 7 years in each school. The two intervention strategies are: (1) Child-based intervention: Unstructured materials with no obvious play value introduced to the playground; and (2) Adult-based intervention: Risk reframing sessions held with parents and teachers with the aim of exploring the benefits of allowing children to engage in activities with uncertain outcomes. The primary outcome of the study, physical activity as measured by accelerometer counts, is assessed at baseline and post-intervention. Additional assessments include social skills and interactions, selfconcept, after school time use and anthropometric data. Qualitative data (i.e., transcriptions of audio recordings from the risk reframing sessions and of interviews with selected teacher and parent volunteers) are analysed to understand their perceptions of risk in play. The control schools have recess as usual. In addition to outcome evaluation, regular process evaluation sessions are held to monitor fidelity to the treatment. Discussion: These simple interventions, which could be adopted in every primary school, have the potential of initiating a self-sustaining cycle of prevention for childhood obesity, bullying and mental ill health.
Luckett, T, Britton, B, Clover, K & Rankin, NM 2011, 'Evidence for interventions to improve psychological outcomes in people with head and neck cancer: a systematic review of the literature', Supportive Care In Cancer, vol. 19, pp. 871-881.View/Download from: Publisher's site
Purpose In addition to cancer-related distress, people with head and neck cancer (HNC) endure facial disfigurement and difficulties with eating and communication. High rates of alcohol use and socio-economic disadvantage raise concerns that patients with HNC may be less likely than others to participate in and adhere to psychological interventions. This article aims to inform future practice and research by reviewing the evidence in support of psychological interventions for this patient group.
Luckett, T, Goldstein, D, Butow, P, Gebski, V, Aldridge, L, McGrane, J, Ng, W & King, MT 2011, 'The psychological wellbeing and quality of life of US Hispanic and Asian/Pacific Islander cancer patients compared to the majority: A systematic review and meta-analysis', Lancet Oncology, vol. 12, no. 13, pp. 1240-1248.View/Download from: Publisher's site
Background Ethnic minority is associated with higher cancer incidence and poorer survival than is being in the majority group. We did a systematic review and meta-analysis to assess whether psychological morbidity and healthrelated quality of life (HRQoL) were aff ected by minority status.
Luckett, T, King, MT & Lacey, J 2011, 'Measuring quality of life in women with gynaecological cancer', International Hospital and Equipment, vol. 37, no. Dec2010/Jan2011, pp. 16-18.
Quality of life (QOL) is an important clinical and research focus in women with gynaecological cancer. This mini-review offers advice on selecting a measurement for QOL and highlights future directions in the field. Readers are encouraged to choose a valid and reliable questionnaire and to match questionnaire content and scale structure to the purpose, patients and clinical context at hand. In the future, computer-adaptive testing may enable more precise, less burdensome assessment while maintaining the ability to compare results between studies.
Luckett, T, King, MT, Butow, P, Oguchi, M, Rankin, N, Price, M, Hackl, N & Heading, G 2011, 'Choosing between the EORTC QLQ-C30 and FACT-G for measuring health-related quality of life in cancer clinical research: issues, evidence and recommendations', Annals Of Oncology, vol. 22, no. 10, pp. 2179-2190.View/Download from: Publisher's site
Background: This review aims to assist cancer clinical researchers in choosing between the two most widely used measures of cancer-specific health-related quality of life: the European Organisation for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30 and Functional Assessment of Cancer Therapy General (FACT-G). Materials and methods: Information on QLQ-C30 and FACT-G content, scale structure, accessibility and availability was collated from websites and manuals. A systematic review was undertaken to identify all articles reporting on psychometric properties and information to assist interpretability. Evidence for reliability, validity and responsiveness was rated using a standardised checklist. Instrument properties were compared and contrasted to inform recommendations. Results: Psychometric evidence does not recommend one questionnaire over the other in general. However, there are important differences between the scale structure, social domains and tone that inform choice for any particular study. Conclusions: Where research objectives are concerned with the impact of a specific tumour type, treatment or symptom, choice should be guided by the availability, content, scale structure and psychometric properties of relevant European Organisation for the Research and Treatment of Cancer versus Functional Assessment of Chronic Illness Therapy modules. Because the FACT-G combines symptoms and concerns within each scale, individual items should always be reviewed within the context of specific research objectives. Where these issues are indecisive, researchers are encouraged to use an algorithm at the end of the current article.
Butow, P, Palmer, S, Pai, A, Goodenough, B, Luckett, T & King, M 2010, 'Review of Adherence-Related Issues in Adolescents and Young Adults With Cancer', JOURNAL OF CLINICAL ONCOLOGY, vol. 28, no. 32, pp. 4800-4809.View/Download from: Publisher's site
Giesinger, J, Petersen, M, Groenvold, M, Gamper, E, Conroy, T, King, M, Luckett, T, Arraras, J, Young, T, Verdonck-de Leeuw, I, Kemmler, G & Holzner, B 2010, 'COMPUTER-ADAPTIVE TESTING OF FATIGUE IN ONCOLOGICAL PATIENTS', VALUE IN HEALTH, vol. 13, no. 7, pp. A275-A275.View/Download from: Publisher's site
Giesinger, JM, Groenvold, M, Petersen, MA, Gamper, E-M, Kemmler, G, Young, T, Arraras, JI, Conroy, T, Luckett, T, King, MT, Verdonck-de Leeuw, IM & Holzner, B 2010, 'Development of a computer-adaptive version of the EORTC QLQ-C30 Fatigue Scale', QUALITY OF LIFE RESEARCH, vol. 19, pp. 91-92.
Giesinger, JM, Groenvold, M, Petersen, MA, Gamper, EM, Kemmler, G, Young, T, Arraras, JI, Conroy, T, Luckett, T, Verdonck-de Leeuw, I & Holzner, B 2010, 'Development of a computer-adaptive version of the EORTC QLQ-C30 Fatigue scale', JOURNAL OF PSYCHOSOMATIC RESEARCH, vol. 68S, pp. 628-629.
Luckett, T & King, MT 2010, 'Choosing patient-reported outcome measures for cancer clinical research - Practical principles and an algorithm to assist non-specialist researchers', EUROPEAN JOURNAL OF CANCER, vol. 46, no. 18, pp. 3149-3157.View/Download from: Publisher's site
Luckett, T, Butow, PN, King, MT, Oguchi, M, Heading, G, Hackl, NA, Rankin, N & Price, MA 2010, 'A review and recommendations for optimal outcome measures of anxiety, depression and general distress in studies evaluating psychosocial interventions for English-speaking adults with heterogeneous cancer diagnoses', SUPPORTIVE CARE IN CANCER, vol. 18, no. 10, pp. 1241-1262.View/Download from: Publisher's site
Luckett, T, King, M, Butow, P, Friedlander, M & Paris, T 2010, 'Assessing Health-Related Quality of Life in Gynecologic Oncology A Systematic Review of Questionnaires and Their Ability to Detect Clinically Important Differences and Change', INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER, vol. 20, no. 4, pp. 664-684.View/Download from: Publisher's site
Luckett, T, King, MT & Stockler, MR 2010, 'Quality of life research in prostate and testicular cancer', Cancer Forum, vol. 34, no. 1, pp. 20-23.
Health related quality of life research is contributing substantially to the management of prostate and testicular cancer, but in different ways. Both diseases have good prognoses, but their trajectories and affected age groups differ greatly. In early stage prostate cancer, there are many different treatment options to choose between and their relative benefits and harms are unclear. Here, health related quality of life research is providing comparative information about functioning, symptoms, wellbeing and preferences to help inform choice. In advanced prostate cancer, the big questions are about whether and when to have various treatments, rather than about the choices between them. Here, health related quality of life research is focused on determining net effects of treatment by measuring benefits in cancer related symptoms, harms from treatment toxicity and allowing these to be considered alongside modest effects on survival. In testicular cancer, the effects of treatment on survival are substantial and options are fewer. Here, health related quality of life research is focused on minimising the effects of disease and treatment on short and long-term health related quality of life by screening, improving supportive care and modifying treatments.
Luckett, T, Butow, PN & King, MT 2009, 'Improving patient outcomes through the routine use of patient-reported data in cancer clinics: future directions', PSYCHO-ONCOLOGY, vol. 18, no. 11, pp. 1129-1138.View/Download from: Publisher's site
Bundy, AC, Luckett, T, Naughton, GA, Tranter, PJ, Wyver, SR, Ragen, J, Singleton, E & Spies, G 2008, 'Playful interaction: Occupational therapy for all children on the school playground', AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, vol. 62, no. 5, pp. 522-527.View/Download from: Publisher's site
Clemson, L, Bundy, AC, Cumming, RG, Kay, L & Luckett, T 2008, 'Validating the falls behavioural (FaB) scale for older people: A Rasch analysis', DISABILITY AND REHABILITATION, vol. 30, no. 7, pp. 498-506.View/Download from: Publisher's site
Luckett, T, Butow, P, King, MT & Olver, I 2008, 'Psychosocial issues in long-term survivors of testicular cancer', Asia Pacific Journal of Clinical Oncology, vol. 4, no. 3, pp. 125-131.View/Download from: Publisher's site
Testicular cancer is the most common non-skin cancer in young men and among the most curable of all neoplasms, making patients' long-term physical, psychological and social well-being of major concern. To date, research on outcomes has been restricted almost entirely to survivors in Europe and the USA. The current article reviews the international literature with a view to developing directions for future research in the Asia-Pacific region. We conclude that planning interventions to improve outcomes awaits further, prospective, controlled studies aimed at establishing the predictive value not only of socio-demographic, disease and treatment variables but also of psycho-social variables underlying adjustment and recovery. Ideally, research of this kind would: (i) highlight aspects of the experience of testicular cancer and its treatment that might be targeted by changes to patterns of care, and (ii) identify groups at risk of poor outcomes who could be identified for early intervention through screening. Planning of prospective research would itself benefit from further, large-scale, cross-sectional research aimed at identifying those variables that would prove most informative when tracked over time.
Beltran, RO, Scanlan, JN, Hancock, N & Luckett, T 2007, 'The effect of first year mental health fieldwork on attitudes of occupational therapy students to-wards people with mental illness', AUSTRALIAN OCCUPATIONAL THERAPY JOURNAL, vol. 54, no. 1, pp. 42-48.View/Download from: Publisher's site
Luckett, T, Bundy, A & Roberts, J 2007, 'Do behavioural approaches teach children with autism to play or are they pretending?', AUTISM, vol. 11, no. 4, pp. 365-388.View/Download from: Publisher's site
Luckett, T, Blignault, I & Eisenbruch, M 2005, 'Researching culture and health: variables used to identify culturally diverse groups in New South Wales.', New South Wales public health bulletin, vol. 16, no. 9-10, pp. 151-154.View/Download from: Publisher's site
Luckett, TR & Reid, K 2015, 'Speech and language therapy in palliative care' in Cherny, N, Fallon, M, Kaasa, S, Portenoy, R & Currow, D (eds), The Oxford textbook of palliative medicine, Oxford University Press, Oxford UK, pp. 202-209.
Bundy, A, Wyver, S, Tranter, P, Naughton, G & Luckett, TR 2008, 'Children, families and communities: Contexts and consequences' in Bowes, J & Grace, R (eds), Playfulness: Reframing the value of play and play spaces for children, Oxford University Press, Oxford UK.
Luckett, T & Powell, S 2003, 'Students with autism and Asperger's syndrome' in Special Teaching in Higher Education: Successful Strategies for Access and Inclusion, pp. 81-89.View/Download from: Publisher's site
Luckett, TR & Powell, SD 2003, 'Special teaching in higher education - successful strategies for access and inclusion' in Autism, Kogan Page.
Erfani, E, Abedin, B, Luckett, T, Lawrence, C & Hanna, ASH 2020, 'A Culturally and Language Appropriate Smartphone-based Support Intervention for Enhancinng the Psychological Well-being of Indigenous Australian People with cancer.', ECIS.
Fereydooni, S, Luckett, T, Phillips, J, Lorenz, K & Giannitrapani, K 2020, 'Providers' Perspectives on Prescribing Long-term Opioid Therapy in Cancer: Qualitative Findings form the United States and Australia (GP728)', JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, Meeting of the American-Academy-of-Hospice-and-Palliative-Medicine - State of the Science in Hospice and Palliative Care, ELSEVIER SCIENCE INC, San Diego, CA, pp. 262-262.
Fereydooni, S, Luckett, T, Phillips, J, Lorenz, K & Giannitrapani, K 2020, 'Providers' Perspectives on Prescribing Long-Term Opioid Therapy in Cancer: Qualitative Findings from the United States and Australia (S777)', JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, Annual Assembly of Hospice and Palliative Care, ELSEVIER SCIENCE INC, San Diego, CA, pp. 573-573.
Roberts, M, Luckett, T, Smith, T, Swami, V & Wheatley, J 2020, 'AN AUSTRALIAN BREATHLESSNESS SERVICE FOR PATIENTS WITH MODERATE TO VERY SEVERE CHRONIC OBSTRUCTIVE PULMONARY DISEASE (COPD): RESULTS FROM THE QUALITATIVE SUB-STUDY OF A RANDOMIZED CONTROLLED TRIAL', RESPIROLOGY, WILEY, Australia, pp. 61-61.
Green, A, Abbott, P, Luckett, T, Delaney, J, Delaney, P, Davidson, P, Gunasekera, H & DiGiacomo, M 2019, 'Supporting families with an Aboriginal and Torres Strait Islander child with disability: Health, education and social service provider perspectives', Carers NSW Conference, Sydney.
DiGiacomo, M, Luckett, T, Hickman, L, Hrlec, M & Phillips, J 2019, 'Equipping tomorrow's professional leaders in palliative care to recognise and work with assets beyond the healthcare system', Public Health and Palliative Care International, Leura.
DiGiacomo, M, Luckett, T, Hickman, L, Hrlec, M & Phillips, J 2019, 'Recognising and working with assets beyond the healthcare system: preparing future leaders in palliative care', Oceanic Palliative Care Conference, Perth.
Disler, RT, Cui, Y, Luckett, T, Donesky, D, Irving, L, Currow, D, Horsfall, L & Smallwood, N 2017, 'Respiratory Nurses' Knowledge And Practice Behaviours In COPD-Related Advance Care Planning: Preliminary Findings From A Cross-Sectional Survey Study', AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, International Conference of the American-Thoracic-Society (ATS), AMER THORACIC SOC, Washington, DC.
Disler, RT, Luckett, T, Phillips, JL, Johnson, M, Garcia, M, Bhattarai, P, Hutchinson, A, Currow, D, Carrieri-Kohlman, V, Whelan, B, Newton, P, Agar, M, Chye, R, Sheehan, C, Ivynian, S & Davidson, PM 2017, 'Respiratory Patient Experiences In Self-Managing Emergency Department 'near-Miss' For Breathlessness: A Strengths-Based Qualitative Study', AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, International Conference of the American-Thoracic-Society (ATS), AMER THORACIC SOC, Washington, DC.
Luckett, T, Agar, M, DiGiacomo, M, Ferguson, C, Lam, L, Newton, P & Phillips, J 2017, 'Predictors of Health Status in South Australians Caring for People With Cancer: A Population-Based Study', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 163-163.
Phillips, JL, Kochovska, S, Luckett, T & Agar, M 2017, 'Impacts on Employment, Finances and Lifestyle for Working Age People Facing an Expected Premature Death: A Systematic Review', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 220-220.
Disler, RT, Luckett, T, Donesky, D, Irving, L, Currow, D, Horsfall, L, Cui, Y & Smallwood, N 2017, 'Palliative Care Nurses' Attitudes And Perceived Barriers To COPD-Related Advance Care Planning: Preliminary Findings From A Cross-Sectional Survey Study', AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, International Conference of the American-Thoracic-Society (ATS), AMER THORACIC SOC, Washington, DC.
Vongmany, J, Luckett, T, Lam, L & Phillips, JL 2017, 'Family Behaviours that Impact on the Capacity of Adults Living with Type 2 Diabetes to Adhere to Their Self-Management Plan: A Systematic Review and Meta-Synthesis', DIABETES, 77th Scientific Sessions of the American-Diabetes-Association, AMER DIABETES ASSOC, San Diego, CA, pp. A221-A221.
Xu, X, Luckett, T, Wang, AY, Lovell, M & Phillips, JL 2017, 'Cancer Pain Management Needs and Perspectives of Patients from Chinese Backgrounds: A Systematic Review of the Chinese and English Literature', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 220-221.
Agar, M, Luckett, T, Luscombe, G, Phillips, J, Beattie, E, Pond, D, Mitchell, G, Cook, J, Davidson, PM, Brooks, D, Houltram, J, Goodall, S & Chenoweth, L 2016, 'Pragmatic cluster randomised controlled trial of facilitated family case conferencing versus usual care for people with advanced dementia living in aged care: effects on end of life care', Palliative Care Nurses Australia Conference, Canberra.
Hossain, L, Fernandez-Llimos, F, Luckett, T, Moullin, JC, Franco-Trigo, L, Benrimoj, SI, Durks, D & Sabater-Hernández, D 2016, 'A qualitative meta-synthesis of factors that influence the implementation of community pharmacy services in Australia: the perspectives of patients, general practitioners and nurses', Simpodader International Conference, Granada, Spain.
Luckett, T, Chenoweth, L, Brooks, D, Cook, J, Mitchell, G, Pond, D, Beattie, E, Davidson, PM, Luscombe, G, Goodall, S, Allsopp, J, Grover, S & Agar, S 2016, 'Implementing facilitated case conferencing for people living in aged care with advanced dementia: benefits, barriers and facilitators', Palliative Care Nurses Australia Conference, Canberra.
Green, A, DiGiacomo, M, Luckett, T, Abbott, P, Davidson, PM, Delaney, J & Delaney, P 2015, 'Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review', 2015 Primary Health Care Research Conference, Adelaide.
Lovell, M, Luckett, T, Phillips, J, Agar, M, Ryan, L, Lam, L, McCaffrey, N, Boyle, F, Stubbs, J, Shaw, T, Currow, D, Hosie, A & Davidson, P 2015, 'Clinical Trial Protocol - Implementing Clinical Practice Guidelines For Cancer Pain In Adults To Ensure Equitable, Cost-Effective, Evidence-Based, Person-Centred Care: A Phase III Pragmatic Stepped Wedge Cluster Randomised Controlled Trial Of Guidelines And Screening With Implementation Strategies Versus Guidelines And Screening Alone To Improve Pain In Adults With Cancer Attending Outpatients Oncology And Palliative Care Centres', Asia-Pacific Journal of Clinical Oncology, pp. 162-162.
Lovell, MR, Birch, M-R, Luckett, T, Davidson, PM, Phillips, J, Agar, M, Boyle, FM, Stubbs, J & Spruyt, O 2014, 'PILOT OF PAIN INDICATOR AUDIT TOOL AS PART OF A COMPLEX INTERVENTION TO IMPROVE CANCER PAIN OUTCOMES', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 45-45.
Lovell, MR, Luckett, T, Phillips, J, Boyle, F, Davidson, PM, Stubbs, J, Birch, M-R, Spruyt, O & Agar, M 2014, 'CANCER PAIN: CLOSING THE EVIDENCE-PRACTICE GAP', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 101-101.
Clayton, J, Davidson, PM, Phillips, J, Luckett, T, Green, A, Agar, M, Broadbent, A & Lovell, M 2012, 'STOP PAIN PROJECT: A COLLABORATIVE, INTERDISCIPLINARY PROJECT TO IMPROVE THE PERSON-CENTREDNESS OF ASSESSMENT AND MANAGEMENT OF CANCER PAIN', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 267-267.
Improving Palliative Care Through Clinical Trials (ImPaCCT)