Dunn, J, Ralph, N, Green, A, Frydenberg, M & Chambers, SK 2020, 'Contemporary consumer perspectives on prostate cancer survivorship: Fifty voices.', Psycho-oncology, vol. 29, no. 3, pp. 557-563.View/Download from: Publisher's site
OBJECTIVE:To describe contemporary consumer experiences and priorities of prostate cancer survivorship to inform the development of survivorship guidelines. METHOD:In a cross-sectional qualitative design, semi-structured interviews were undertaken with fifty prostate cancer support group leaders (50% response) across urban and rural/regional Australia. An interpretative phenomenological approach was used to identify participants' experiences and priorities of survivorship. RESULTS:Three themes were identified for informing the development of prostate cancer survivorship guidelines: (a) the Experience of Diagnosis and Treatment, (b) Priorities for Survivorship and (c) Mechanisms for Support. Four priorities for prostate cancer survivorship were: delivering person and men-centred care; improving communication; improving care coordination; and facilitating access to care. Mechanisms for support were as follows: advocacy; peer support; prostate cancer specialist nurses; and communication training for health professionals. CONCLUSIONS:The lack of progress in changing prostate cancer survivorship outcomes for men will become increasingly problematic as this patient population group grows. Co-production provides a way forward to ensure relevance and accessibility for future survivorship initiatives.
Goodwin, BC, Rowe, AK, Crawford-Williams, F, Baade, P, Chambers, SK, Ralph, N & Aitken, JF 2020, 'Geographical Disparities in Screening and Cancer-Related Health Behaviour.', International journal of environmental research and public health, vol. 17, no. 4.View/Download from: Publisher's site
This study aimed to identify whether cancer-related health behaviours including participation in cancer screening vary by geographic location in Australia. Data were obtained from the 2014-2015 Australian National Health Survey, a computer-assisted telephone interview that measured a range of health-related issues in a sample of randomly selected households. Chi-square tests and adjusted odds ratios from logistic regression models were computed to assess the association between residential location and cancer-related health behaviours including cancer screening participation, alcohol consumption, smoking, exercise, and fruit and vegetable intake, controlling for age, socio-economic status (SES), education, and place of birth. The findings show insufficient exercise, risky alcohol intake, meeting vegetable intake guidelines, and participation in cervical screening are more likely for those living in inner regional areas and in outer regional/remote areas compared with those living in major cities. Daily smoking and participation in prostate cancer screening were significantly higher for those living in outer regional/remote areas. While participation in cancer screening in Australia does not appear to be negatively impacted by regional or remote living, lifestyle behaviours associated with cancer incidence and mortality are poorer in regional and remote areas. Population-based interventions targeting health behaviour change may be an appropriate target for reducing geographical disparities in cancer outcomes.
Ralph, N, Chambers, SK, Laurie, K, Oliffe, J, Lazenby, M & Dunn, J 2020, 'Nurse-Led Supportive Care Intervention for Men With Advanced Prostate Cancer: Healthcare Professionals' Perspectives.', Oncology nursing forum, vol. 47, no. 1, pp. 33-43.View/Download from: Publisher's site
PURPOSE:To identify barriers and corresponding solutions for implementing a telephone-based, nurse-led supportive care intervention for men with advanced prostate cancer. PARTICIPANTS & SETTING:21 healthcare professionals with an average 15.81 years of experience in diverse prostate cancer care settings. METHODOLOGIC APPROACH:Data from semistructured interviews were coded into the Theoretical Domains Framework and mapped to behavior change techniques (BCTs) to inform the development of an implementation schema. FINDINGS:Barriers included lack of knowledge about the effectiveness of survivorship interventions and how to deliver them, low referral rates to psychosocial oncology care, low help-seeking behavior among men with advanced prostate cancer, lack of care coordination skills, and inadequate service capacity. IMPLICATIONS FOR NURSING:Interprofessional support exists for a nurse-led supportive care intervention. Causes of low engagement with supportive care among men with advanced prostate cancer extend beyond gendered patterns of response.
Ralph, N, Green, A, Sara, S, McDonald, S, Norris, P, Terry, V, Dunn, JC & Chambers, SK 2020, 'Prostate cancer survivorship priorities for men and their partners: Delphi consensus from a nurse specialist cohort.', Journal of clinical nursing, vol. 29, no. 1-2, pp. 265-273.View/Download from: Publisher's site
AIMS & OBJECTIVES:To describe the prostate cancer survivorship experience and priorities from the perspective of prostate cancer specialist nurses. BACKGROUND:Specialist nurses are providing long-term survivorship care to men and their partners however, few prostate cancer survivorship interventions are effective and priorities for nurse-led survivorship care are poorly understood. DESIGN:A three-round modified Delphi approach. METHODS:The study was conducted between 1 December 2018 and 28 February 2019 to develop a consensus view from an expert nurse cohort (43 prostate cancer specialist nurses: 90% response). First, participants described men's prostate cancer survivorship experience and priorities for improving care for men and partners. In subsequent rounds, participants identified key descriptors of the survivorship experience; rated priorities for importance and feasibility; and identified a top priority action for men and for partners. Thematic analysis and descriptive statistics were applied. Guidelines for Reporting Reliability and Agreement Studies informed the conduct of the study. RESULTS:Prostate cancer specialist nurses characterised the prostate cancer survivorship experience of men as under-resourced, disjointed and distressing. In all, 11 survivorship priorities for men and three for partners were identified within five broad areas: capacity building; care coordination; physical and psychosocial care; community awareness and early detection; and palliative care. However, feasibility for individual items was frequently described as low. CONCLUSION:Internationally, prostate cancer survivorship care for men and their partners requires urgent action to meet future need and address gaps in capacity and care coordination. Low feasibility of survivorship priorities may reflect translational challenges related to capacity. Prostate cancer survivorship care guidelines connected to practice priorities are urgently needed. RELEVANCE TO CLINICAL PRACTICE:The...
Ralph, N, Ng, SK, Zajdlewicz, L, Lepore, SJ, Heathcote, P, Kneebone, A, Dunn, JC & Chambers, SK 2020, 'Ten-year quality of life outcomes in men with prostate cancer.', Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, vol. 29, no. 2, pp. 444-449.View/Download from: Publisher's site