Professor Jane Phillips is at the forefront of her field and brings her considerable clinical nursing, national policy and academic expertise to deliver outcomes that are changing practice and enhancing palliative care globally. Her interdisciplinary program of research targets the delivery of care that enables people to spend more days in their place of choice, to move seamlessly between care settings and to receive best evidence based palliative care. Since transitioning to academia in 2009, Professor Phillips has secured over $2.4M as a lead investigator and $37M as a co-investigator in competitive research grants and co-authored more than 150 peer-reviewed publications. She is currently supervising or co-supervising 13 doctoral students from medicine, nursing and allied health.
Professor Jane Phillips has a compelling vision for the future of palliative care, which she has been able to operationalise since joining the University of Technology Sydney, Faculty of Health in 2014 through the establishment of the Centre for Improving Palliative, Aged and Chronic Care through Clinical research and Translation (IMPACCT). As the inaugural Director of IMPACCT, Professor Phillips has brought many of the world’s leading palliative care researchers, including the Palliative Care Clinical Studies Collaborative (PaCCSC) to UTS. Collectively, this team are working to address some of societies greatest palliative care challenges. To assist with this quest, in 2017, she established a Consumer Advisory Group to co-design patient focussed palliative care research and education initiatives in partnership with the IMPACCT team.
During 2017, under Professor Phillips leadership the IMPACCT team secured $17.3M in competitive research grants, generated 115 publications and supported 39 PhD candidates.
Professor Phillips is currently leading the development of a suite of new interdisciplinary palliative care courses that will be available from 2019 onwards. During 2018, the IMPACCT clinical academics will be providing a series of bespoke Palliative Care Masterclasses across the State to build palliative care workforce capacity.
Professor Phillips is a mentor to a number of doctoral and post-doctoral research fellows, a reviewer for numerous national and international research agencies including the National Health and Medical Research Council, Marie Currie and the European Union Health Service; and an Editor of three journals, Collegian, International Journal of Palliative Nursing and Chronic Illness.
She is an Honorary Professor at the Schools of Nursing at Oxford Brookes, University Oxford, UK, Hong Kong Polytechnic University, Honk Kong, Sun Yat-Sen, University, Guangzhou, China and the University of Notre Dame Australia, Sydney; plus the School of Medicine, Sydney University. She is the Chair of the Scientific Committee of the Wolfson Palliative Care Research Centre, University of Hull, in the UK.
Professor Phillips is the current President of Palliative Care Nurses Australia, a Fellow of Australian College of Nursing and is a member of Sigma Theta Tau Nursing Honour Society. She is a member of the International Society of Nurses in Cancer Care Policy-Advocacy Committee’s and contributed to the development of their global palliative care position statement.
Prior to joining UTS, she was the Professor Palliative Nursing at the University of Notre Dame, Sydney Australia and Sacred Heart Hospice, Sydney Australia.
- Fellow, Australian College of Nursing
- President, Palliative Care Nurses Australia
- Member, Cancer Nurses Society Australia
- Member, Clinical Oncology Society of Australia
- Member, International Society Nursing Cancer Care
- Member, NSW Palliative Care Association
- Member, Sigma Theta Tau International, Honour Society of Nursing, Xi Omicron Chapter
Can supervise: YES
- Cancer and palliative care
- Pain and symptom management
- Non-pharmacological interventions for pain management
- Geriatric Oncology
- Palliative care
- Non-communicable diseases
- Care of older peoples
- Mixed methods
- Translational research
Murray-Parahi, P, DiGiacomo, M, Jackson, D, Phillips, J & Davidson, P 2020, 'Primary health care content in Australian undergraduate nursing curricula', Collegian: The Australian Journal of Nursing Practice, Scholarship and Research.View/Download from: Publisher's site
Rao, A, Zecchin, R, Newton, PJ, Phillips, JL, DiGiacomo, M, Denniss, AR & Hickman, LD 2020, 'The prevalence and impact of depression and anxiety in cardiac rehabilitation: A longitudinal cohort study.', European Journal of Preventive Cardiology.View/Download from: Publisher's site
BACKGROUND:Co-morbid depression and anxiety symptoms are frequently under-recognised and under-treated in heart disease and this negatively impacts self-management. AIMS:The purpose of this study was to determine the prevalence, correlates and predictors of depression and anxiety in cardiac rehabilitation programmes, the impact of cardiac rehabilitation on moderate depression, anxiety and stress symptoms, and the relationship between moderate depression, anxiety and stress symptoms and cardiac rehabilitation adherence. METHODS:This was a retrospective cohort study of 5908 patients entering cardiac rehabilitation programmes from 2006-2017, across two Sydney metropolitan teaching hospitals. Variables included demographics, diagnoses, cardiovascular risk factors, medication use, participation rates, health status (Medical Outcomes Study Short Form-36) and psychological health (Depression Anxiety Stress Scales) subscale scores. RESULTS:Moderate depression, anxiety or stress symptoms were prevalent in 18%, 28% and 13% of adults entering cardiac rehabilitation programmes, respectively. Adults with moderate depression (24% vs 13%), anxiety (32% vs 23%) or stress (18% vs 10%) symptoms were significantly less likely to adhere to cardiac rehabilitation compared with those with normal-mild symptoms (p < 0.001). Anxiety (odds ratio 4.395, 95% confidence interval 3.363-5.744, p < 0.001) and stress (odds ratio 4.527, 95% confidence interval 3.315-6.181, p < 0.001) were the strongest predictors of depression. Depression (odds ratio 3.167, 95% confidence interval 2.411-4.161) and stress (odds ratio 5.577, 95% confidence interval 4.006-7.765, p < 0.001) increased the risk of anxiety on entry by more than three times, above socio-demographic factors, cardiovascular risk factors, diagnoses and quality of life. CONCLUSION:Monitoring depression and anxiety symptoms on entry and during cardiac rehabilitation can assist to improve adherence and may identify the need for additional psyc...
Kochovska, S, Garcia, M, Bunn, F, Goodman, C, Luckett, T, Parker, D, Phillips, JL, Sampson, EL, van der Steen, JT & Agar, MR 2020, 'Components of palliative care interventions addressing the needs of people with dementia living in long-term care: A systematic review', PALLIATIVE MEDICINE.View/Download from: Publisher's site
Asano, R, Mathai, SC, Macdonald, PS, Newton, PJ, Currow, DC, Phillips, J, Yeung, WF & Davidson, PM 2020, 'Oxygen use in chronic heart failure to relieve breathlessness: A systematic review', Heart Failure Reviews, vol. 25, no. 2, pp. 195-205.View/Download from: UTS OPUS or Publisher's site
© 2019, Springer Science+Business Media, LLC, part of Springer Nature. To appraise published studies on the use of supplemental oxygen in chronic heart failure. Chronic breathlessness is a characterizing symptom of symptomatic heart failure resulting in substantial disability and healthcare utilization and is the primary reason for emergency room visits and hospitalizations. In spite of the variable evidence, oxygen therapy is commonly administered both acutely and chronically. Moreover, the role of oxygen therapy to relieve chronic breathlessness in heart failure is not well described, particularly in normoxemic or mild or intermittent hypoxemic states. In fact, several studies have shown the detrimental effects of oxygen therapy with normal oxygen saturation levels. A systematic review using PRISMA guidelines. Four databases PubMed, Embase, CINAHL, and Web of Science were systematically searched from January 2001 to January 2019 investigating the use of oxygen in heart failure. Duplicate articles were removed from the review. Titles and abstracts were screened for inclusion and exclusion criteria. The remaining full-text articles were reviewed and hand-searched for additional references. The quality of the full-text articles was assessed using standardized critical appraisal instruments by the Joanna Briggs Institute. A total of 11 studies, including three intervention and eight non-interventions studies, were included in this review from 1072 non-duplicated records retrieved. Sample size ranged from 4 to 5862. In spite of common usage, this review suggests that there are scant data available to justify the use of oxygen in individuals with non-hypoxemic chronic heart failure and chronic breathlessness.
Asano, R, Newton, PJ, Currow, DC, Macdonald, PS, Leung, D, Phillips, JL, Perrin, N & Davidson, PM 2020, 'Rationale for targeted self-management strategies for breathlessness in heart failure.', Heart failure reviews.View/Download from: Publisher's site
To provide a conceptual rationale for targeted self-management strategies for breathlessness in chronic heart failure. Breathlessness is a defining symptom of chronic heart failure and is the primary cause for hospital readmissions and emergency room visits, resulting in extensive health care utilization. Chronic breathlessness, punctuated by acute physiological decompensation, is a sentinel symptom of the heart failure syndrome and often intensifies towards the end of life. Drawing upon evidence-based guidelines, physiological mechanisms and existing conceptual models for the management of breathlessness is proposed. Key elements of this model include adherence to evidence-based approaches (pharmacological and non-pharmacological management to optimize heart failure treatment), self-monitoring of symptoms, identification of modifiable factors (such as fluid overload), and targeted strategies for breathlessness including distraction and gas flow. Self-management is an essential component in heart failure management which could positively influences health outcomes and quality of life. Refining programs to focus on breathlessness may have the potential to reduce symptom burden and improve quality of life.
Asano, R, Newton, PJ, Currow, DC, Macdonald, PS, Leung, D, Phillips, JL, Perrin, N & Davidson, PM 2020, 'Reply to Kako, Kajiwara, Kobayashi, and Oosono letter to the editor response.', Heart failure reviews.View/Download from: Publisher's site
Currow, DC, Agar, MR & Phillips, JL 2020, 'Role of Hospice Care at the End of Life for People With Cancer.', Journal of clinical oncology : official journal of the American Society of Clinical Oncology, vol. 38, no. 9, pp. 937-943.View/Download from: Publisher's site
Patient-defined factors that are important at the end of life include being physically independent for as long as possible, good symptom control, and spending quality time with friends and family. Hospice care adds to the quality of care and these patient-centered priorities for people with cancer and their families in the last weeks and days of life. Evidence from large observational studies demonstrate that hospice care can improve outcomes directly and support better and more appropriate health care use for people in the last stages of cancer.Team-based community hospice care has measurable benefits for patients, their family caregivers, and health services. In addition to improved symptom control for patients and a greater likelihood of time spent at home, caregiver outcomes are better when hospice care is accessed: informational needs are better met, and caregivers have an improved ability to move on with life after the patient's death compared with people who did not have access to these services.Hospice care continues to evolve as its reach expands and the needs of patients continue to broaden. This is reflected in the transition from hospice being based on excellence in nursing to teams with a broad range of health professionals to meet the complex and changing needs of patients and their families. Additional integration of cancer services with hospice care will help to provide more seamless care for patients and supporting family caregivers during their caregiving and after the death of the patient.
Donkor, A, Luckett, T, Aranda, S, Vanderpuye, V & Phillips, J 2020, 'Experiences of barriers and facilitators to establishing and sustaining radiotherapy services in low- and middle-income countries: A qualitative study', Asia-Pacific Journal of Clinical Oncology.View/Download from: UTS OPUS or Publisher's site
© 2020 John Wiley & Sons Australia, Ltd Aims: The factors contributing to the establishment of high-quality radiotherapy services in low- and middle-income countries (LMICs) are poorly understood. The aim was to identify and describe barriers and facilitators to establishing and sustaining high-quality and accessible radiotherapy services in LMICs based on the experience of successful and unsuccessful attempts. Methods: An exploratory-descriptive qualitative study using semistructured telephone interviews was undertaken. Purposive and snowball sampling techniques were used to recruit participants. The World Health Organization Innovative Care for Chronic Conditions Framework informed the interview guide. A constant comparative data analysis approach was adopted. Findings: Seventeen participants were interviewed. Ten were working permanently in nine LMICs and seven were permanently employed in four high-income countries. Three themes were developed: committing to a vision of improving cancer care; making it happen and sustaining a safe service; and leveraging off radiotherapy to strengthen integrated cancer care. Identified barriers included lack of political leadership continuity, lack of a coordinated advocacy effort, non-Member State of the IAEA, lack of reliable epidemiological data, lack of a comprehensive budget and lack of local expertise. Facilitators identified included strong political support, vision champion, availability of a regulator, costed cancer control plan, diversified sources of funding, responsible project manager, adoption of evidence-based practice, strategic partnerships, motivation to provide patient-centered care, and availability of supportive technology. Conclusions: Assessing the level of readiness to establish and sustain a radiotherapy service is highly recommended. Future research is recommended to develop a readiness assessment tool for radiotherapy services implementation at LMICs.
Heneka, N, Bhattarai, P, Shaw, T, Rowett, D, Lapkin, S & Phillips, JL 2020, 'Mitigating opioid errors in inpatient palliative care: A qualitative study', Collegian.View/Download from: Publisher's site
© 2019 Australian College of Nursing Ltd Background: Opioids are high-risk medicines used in high doses and volumes in specialist palliative care inpatient services to manage palliative patients’ pain and other symptoms. Despite the high volume of opioid use in this care setting, serious errors with opioids are exceedingly rare. However, little is known about the factors that mitigate opioid errors in specialist palliative care inpatient services. Aim: To explore palliative care clinicians’ perceptions of factors that mitigate opioid errors in specialist palliative care inpatient services. Methods and design: A qualitative study using focus groups and semi-structured interviews. Participants and setting: Registered nurses, doctors, and/or pharmacists (‘clinicians’) who were involved with and/or had oversight of the services’ opioid delivery and/or opioid quality and safety processes, employed by one of three specialist palliative care inpatient services in metropolitan NSW. Findings: Fifty-eight participants took part in this study, three-quarters (76%) of whom were palliative care nurses. A positive opioid safety culture was central to mitigating opioid errors in specialist palliative care inpatient services. This culture of opioid safety was founded on clear and consistent safety messages from leadership, clinicians empowered to work together and practise safely, and a non-punitive approach to errors when they occurred. The clinical nurse educator was seen as pivotal to shaping, driving and reinforcing safe opioid delivery practices across the palliative care service. Conclusion: Creating and sustaining a positive opioid safety culture, and promoting non-punitive approaches to opioid error and reporting, is essential to mitigating opioid errors in the specialist palliative care inpatient setting.
Luckett, T, Luscombe, G, Phillips, J, Beattie, E, Chenoweth, L, Davidson, PM, Goodall, S, Pond, D, Mitchell, G & Agar, M 2020, 'Australian long-term care personnel's knowledge and attitudes regarding palliative care for people with advanced dementia.', Dementia (London, England).View/Download from: Publisher's site
Stone, E, Rankin, NM, Vinod, SK, Nagarajah, M, Donnelly, C, Currow, DC, Fong, KM, Phillips, JL & Shaw, T 2020, 'Clinical impact of data feedback at lung cancer multidisciplinary team meetings: A mixed methods study.', Asia-Pacific journal of clinical oncology.View/Download from: Publisher's site
AIM:Multidisciplinary team (MDT) meetings can facilitate optimal lung cancer care, yet details of structured data collection and feedback remain sparse. This study aimed to investigate data collection and the impact of feedback to lung cancer MDTs. METHODS:A mixed-methods study using pre and post-test surveys, semistructured interviews, and observation to evaluate data collection and response to modeled data feedback in three Australian lung cancer MDTs at different locations and development stage (site A: outer metropolitan, established; site B, outer metropolitan, new; and site C, inner metropolitan, established). RESULTS:MDT attendees (range 13-25) discussed 5-8 cases per meeting. All sites collected data prospectively (80% prepopulated) into local oncology medical information systems. The pretest survey had 17 respondents in total (88% clinicians). At sites A and C, 100% of respondents noted regular data audits, occasional at site B. Regular audit data included number of cases, stage, final diagnosis, and time to diagnosis and treatment. The post-test survey had 25 respondents in total, all clinicians. The majority (88-96%) of respondents found modeled data easy to interpret, relevant to clinical practice and the MDT, and welcomed future regular data presentations (as rated on a 5-point Likert scale mean weighted average 4.5 where > 4 demonstrates agreement). Semistructured interviews identified five major themes for MDTs: current practice, attitudes, enablers, barriers, and benefits for the MDT. CONCLUSIONS:MDT teams exhibited positive responses to modeled data feedback. Key characteristics of MDT data were identified and may assist with future team research and development.
Virdun, C, Luckett, T, Gilmore, I, Brassil, M, Lilian, R, Lorenz, K & Phillips, J 2019, 'Involving consumers with palliative care needs and their families in research: A case study', COLLEGIAN, vol. 26, no. 6, pp. 645-650.View/Download from: UTS OPUS or Publisher's site
Ferguson, C, Hickman, LD, Phillips, J, Newton, PJ, Inglis, SC, Lam, L & Bajorek, BV 2019, 'An mHealth intervention to improve nurses' atrial fibrillation and anticoagulation knowledge and practice: the EVICOAG study.', European Journal of Cardiovascular Nursing, vol. 18, no. 1, pp. 7-15.View/Download from: UTS OPUS or Publisher's site
There is a need to improve cardiovascular nurses' knowledge and practices related to stroke prevention, atrial fibrillation and anticoagulation therapy.The aim of this study was to evaluate the efficacy of EVICOAG - a novel mHealth, smartphone-based, spaced-learning intervention on nurses' knowledge of atrial fibrillation and anticoagulation.Nurses employed in four clinical specialties (neuroscience, stroke, rehabilitation, cardiology) across three hospitals were invited to participate. In this quasi-experimental study, 12 case-based atrial fibrillation and anticoagulation learning scenarios (hosted by an mHealth platform) were delivered to participants' smartphones over a 6-week period (July-December 2016) using a spaced timing algorithm. Electronic surveys to assess awareness and knowledge were administered pre (T1) and post (T2) intervention.From 74 participants recruited to T1, 40 completed T2. There was a 54% mean improvement in knowledge levels post-intervention. The largest improvement was achieved in domains related to medication interaction and stroke and bleeding risk assessment. Post-intervention, those who completed T2 were significantly more likely to use CHA2DS2-VASc (2.5% vs. 37.5%) and HAS-BLED (2.5% vs. 35%) tools to assess stroke and bleeding risk, respectively ( P<0.01).The EVICOAG intervention improved nurses' knowledge of atrial fibrillation and anticoagulation, and influenced their uptake and use of stroke and bleeding risk assessment tools in clinical practice. Future research should focus on whether a similar intervention might improve patient-centred outcomes such as patients' knowledge of their condition and therapies, medication adherence, time in the therapeutic range and quality of life.
Rao, A, DiGiacomo, M, Newton, P, Phillips, J & Hickman, L 2019, 'Meditation and secondary prevention of depression and anxiety in heart disease: A systematic review', Mindfulness, vol. 10, no. 1, pp. 1-14.View/Download from: UTS OPUS or Publisher's site
Heart disease is the leading cause of global mortality, accounting for 13.7 million deaths annually. Optimising depression and anxiety symptoms in adults with heart disease is an international priority. Heart disease secondary prevention is best achieved through implementation of sustainable pharmacological and non-pharmacological interventions, including meditation. Meditation is a means of generating self-awareness and has implications for enhanced self-management of depression and anxiety symptoms. This review aims to identify high-level quantitative evidence for meditation interventions designed to improve depression and/or anxiety symptoms among adults with heart disease and ascertain the most important elements of meditation interventions that facilitate positive depression and/or anxiety outcomes. This systematic review and narrative synthesis was completed in accordance with the PRISMA Statement and has adhered to the Cochrane Risk of Bias guideline. Six databases were searched between 1975 and 2017. Statistically significant outcomes were demonstrated in over half (5/9) of phase II meditation studies for depression and/or anxiety and involved 477 participants. Meditation interventions that generated positive outcomes for depression and/or anxiety included elements such as focused attention to body parts (or body scan) (3/4 studies) and/or group meetings (4/5 studies). Meditation is a means of reframing heart disease outpatient services towards an integrated model of care. Future adequately powered phase III studies are needed to confirm which meditation elements are associated with reductions in depression and anxiety; and the differential effects between concentrative and mindfulness-based meditation types among adults with heart disease.
DiGiacomo, M, Chang, S, Luckett, T, Phillips, J, Agar, M & Lam, L 2019, 'Financial stress experienced by informal carers of adults with a chronic disease: results from an Australian population-based cross-sectional survey', Australasian Journal of Ageing.View/Download from: UTS OPUS or Publisher's site
To identify caregiving characteristics that are associated with financial stress in Australian carers of people with a chronic disease.
Data were collected via the South Australian Health Omnibus, an annual population-based, cross-sectional survey. Individuals who provided care to someone with prevalent chronic conditions were asked about financial stress and caregiving characteristics.
Of 32.4% (988/3047) who were carers, 13.4% (132/988) experienced financial stress. Adjusting for age and household income, providing more than 20 hours of care per week (AOR=2.39,95%CI=1.48-3.86), transport assistance (AOR=1.89,95%CI=1.15-3.09) and assistance with household tasks (AOR=1.92,95%CI=1.14-3.26) and caring for a person with a mental illness (AOR=2.01, 95%CI=1.24-3.28) were associated with a significant increase in odds of experiencing financial stress. Caring for a person with cancer (AOR=0.49, 95%CI=0.30-0.81) or dementia (AOR=0.40, 95%CI=0.21-0.76) was associated with a decrease in odds.
Financial stress was reported by more than 13% of carers and factors other than household income were implicated.
Luckett, T, Agar, M, DiGiacomo, M, Ferguson, C, Lam, L & Phillips, J 2019, 'Health status of people who have provided informal care or support to an adult with chronic disease in the last 5 years: results from a population-based cross-sectional survey in South Australia.', Australian Health Review, vol. 43, no. 4, pp. 408-414.View/Download from: UTS OPUS or Publisher's site
Support for Australian carers is warranted to ensure their continuing contributions to society and return to productivity after their caring role is completed.
Luckett, T, Agar, M, DiGiacomo, M, Lam, L & Phillips, J 2019, 'Health status in South Australians caring for people with cancer: A population-based study', PSYCHO-ONCOLOGY, vol. 28, no. 11, pp. 2149-2156.View/Download from: UTS OPUS or Publisher's site
Bhattarai, P, Newton-John, T & Phillips, JL 2019, 'Apps for Older People's Pain Self-Management: Perspectives of Primary Care and Allied Health Clinicians.', Pain medicine (Malden, Mass.).View/Download from: UTS OPUS or Publisher's site
BACKGROUND:Chronic arthritic pain is one of the major causes of physical suffering and disability among older people. Primary care and allied health clinicians use various approaches to help their older clients better manage their arthritic pain. The growing uptake of technology among older people offers the potential for clinicians to integrate an arthritic pain app into their patients' self-management plans. This study explored the perspectives of Australian primary care and allied health clinicians regarding the use of pain self-management apps to help their older patients/clients better manage their arthritic pain. METHODS:Qualitative design using a semistructured interview approach. Interviews were conducted via telephone with primary and allied health clinicians (N = 17) across Australia. RESULTS:The overarching theme underlying participants' views on integration of apps into older people's pain self-management strategy was that this approach is an idealistic but uniquely challenging endeavor. Four subthemes emerged, namely: 1) self-management apps are a potentially useful tool but require careful consideration; 2) clinicians' involvement is crucial yet potentially onerous; 3) no single app is right for every older person with arthritic pain; and 4) patient data access is beneficial, but caution is needed for real-time data access. DISCUSSION:The predominant clinician perspective of integrating apps into their older patients/clients' pain self-management strategies was that this approach is an idealistic but uniquely challenging endeavor. Apps were seen as having potential to support various aspects of patients' self-management behaviors; however, there were notable concerns with regards to the challenges inherent in this approach for both clinicians and older users (patients/clients).
Bhattarai, P, Newton-John, TRO & Phillips, JL 2019, 'Feasibility evaluation of a pain self-management app-based intervention among older people living with arthritic pain: study protocol.', Pilot and feasibility studies, vol. 5, pp. 57-57.View/Download from: UTS OPUS or Publisher's site
Background:Optimal management of chronic arthritic pain experienced by older adults involves applying active self-management strategies every day. Cost-effective and innovative strategies to help build older people's pain self-management capability are required. This study protocol is designed to evaluate the feasibility, acceptability, and preliminary outcomes of a pain self-management app among older people living in the community with arthritic pain. Methods/design:This is a phase I feasibility study. A pre-post test study design will be used to trial a freely available pain self-management app named Rheumatoid Arthritis Information Support and Education ("RAISE") for 14 days. Thirty community-dwelling older people living with arthritic pain who use a smartphone will be recruited from (1) various community-based social clubs/organizations/groups or (2) via Facebook groups with potentially high number of older members. In addition, snowballing sampling approach will also be utilized.These participants will trial the RAISE app, which was selected following a systematic evaluation of all available chronic pain apps by the investigator team. A face-to-face or telephone-based meeting will be organized with all consenting participants in order to seek their informed consent, download and set up the intervention app on their mobile device, be provided with app training, and complete the pre-test data (Time 1 (T1)). Participants will be asked to use the RAISE app as desired for 14 days. Post-test data collection (Time 2 (T2)) will occur on day 15. Data collected includes participant's demographic and clinical information, pain scores, pain self-efficacy, and online technology self-efficacy. Participants will be invited to take part in a semi-structured telephone interview at T2 to explore their experiences of using the app.An evaluation of patterns of app use, recruitment, retention, attrition rates, and analysis of the missing data will inform the study and intervent...
Heneka, N, Bhattarai, P, Shaw, T, Rowett, D, Lapkin, S & Phillips, JL 2019, 'Clinicians' perceptions of opioid error-contributing factors in inpatient palliative care services: A qualitative study.', Palliative medicine, vol. 33, no. 4, pp. 430-444.View/Download from: UTS OPUS or Publisher's site
BACKGROUND::Opioid errors are a leading cause of patient harm and adversely impact palliative care inpatients' pain and symptom management. Yet, the factors contributing to opioid errors in palliative care are poorly understood. Identifying and better understanding the individual and system factors contributing to these errors is required to inform targeted strategies. OBJECTIVES::To explore palliative care clinicians' perceptions of the factors contributing to opioid errors in Australian inpatient palliative care services. DESIGN::A qualitative study using focus groups or semi-structured interviews. SETTINGS::Three specialist palliative care inpatient services in New South Wales, Australia. PARTICIPANTS::Inpatient palliative care clinicians who are involved with, and/or have oversight of, the services' opioid delivery or quality and safety processes. METHODS::Deductive thematic content analysis of the qualitative data. The Yorkshire Contributory Factors Framework was applied to identify error-contributing factors. FINDINGS::A total of 58 clinicians participated in eight focus groups and 20 semi-structured interviews. Nine key error contributory factor domains were identified, including: active failures; task characteristics of opioid preparation; clinician inexperience; sub-optimal skill mix; gaps in support from central functions; the drug preparation environment; and sub-optimal clinical communication. CONCLUSION::This study identified multiple system-level factors contributing to opioid errors in inpatient palliative care services. Any quality and safety initiatives targeting safe opioid delivery in specialist palliative care services needs to consider the full range of contributing factors, from individual to systems/latent factors, which promote error-causing conditions.
Phillips, JL, Heneka, N, Bhattarai, P, Fraser, C & Shaw, T 2019, 'Effectiveness of the spaced education pedagogy for clinicians' continuing professional development: a systematic review.', Medical education, vol. 53, pp. 886-902.View/Download from: UTS OPUS or Publisher's site
CONTEXT:Ensuring clinical practice reflects current evidence is challenging given the rapid proliferation of new knowledge. Changing entrenched clinical behaviours and facilitating the adoption of best practice evidence requires a range of strategies, including affordable, scalable and effective continuing professional development (CPD). Yet, identifying the CPD delivery method most likely to effectively change and improve patient outcomes is difficult given the variability in the evidence for different learning approaches. Although there is moderate level evidence for outreach education, audit and feedback, and face-to-face or online learning, little is known about the capacity of spaced education to change ineffective clinical practice(s). Spaced education harnesses the power of spacing, repetition and testing learning content to increase topic-specific knowledge. Although spaced education is widely used in undergraduate and postgraduate medical programmes, its effectiveness as a CPD delivery method that improves patient outcomes is less certain. AIM:To determine the effectiveness of the spaced education CPD programmes to change targeted clinical knowledge and practice(s) to improve patient outcomes. METHOD:A systematic review, appraising the spaced education CPD evidence generated from searching six specialist medical and psychosocial databases. Studies published in English peer-reviewed journals from 1 January, 2000 to 31 August, 2018 were eligible for inclusion. A modified Kirkpatrick four levels of evaluation framework assisted with appraising the effect of spaced education CPD interventions on clinicians and patients. RESULTS:Of the 2396 studies identified, 17 met the inclusion criteria, involving 2701 practising clinicians from multiple disciplines and specialties. Five randomised controlled trials generated level II evidence, with the remaining 12 studies generating lower levels of evidence. The majority of studies (n = 14) involved the delivery of onlin...
Barbetta, C, Allgar, V, Maddocks, M, Ribeiro, C, Wilcock, A, Currow, DC, Phillips, J & Johnson, MJ 2019, 'Australia-modified Karnofsky Performance Scale and physical activity in COPD and lung cancer: An exploratory pooled data analysis', BMJ Supportive and Palliative Care.View/Download from: Publisher's site
© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. Objectives: Patient-relevant measures of functional status are required in chronic obstructive pulmonary disease (COPD) and lung cancer in clinical practice and research. We explored the relationship between the Australia-modified Karnofsky Performance Scale (AKPS) and measures of functional capacity and physical activity in these patient groups. Methods: Pooled clinical trial data were analysed to explore the relationship between AKPS and average daily steps (ADS), 6 min walk distance (6MWD), and body mass index, airflow obstruction, dyspnoea and exercise score (COPD group). Receiver operator characteristic curves were produced to compare sensitivity and specificity of cut-offs (no dependency >70, high dependency <60) and area under the curve (AUC). Results: Seven clinical trials included people with COPD (n=79) and lung cancer (n=150). To detect an AKPS of >70, the optimal ADS cut-points were COPD, 3342 steps (AUC 0.88, 95% CI 0.79 to 0.97, sensitivity 82%, specificity 76%), and lung cancer, 3380 steps (AUC 0.72, 95% CI 0.64 to 0.81, sensitivity 61%, specificity 74%), and for 6MWD (COPD only) 242 m (AUC 0.72, 95% CI 0.63 to 0.81, sensitivity 73%, specificity 34%). Conclusions: An AKPS score is strongly related to ADS in people with COPD and lung cancer. The AKPS may be useful in clinical practice and research to indicate levels of physical activity where ADS and 6 min walk test are not possible. Longitudinal data are needed to confirm these findings.
Barnes-Harris, M, Allgar, V, Booth, S, Currow, D, Hart, S, Phillips, J, Swan, F & Johnson, MJ 2019, 'Battery operated fan and chronic breathlessness: does it help?', BMJ SUPPORTIVE & PALLIATIVE CARE, vol. 9, no. 4, pp. 478-481.View/Download from: UTS OPUS or Publisher's site
Breaden, K, Collier, A, Litster, C, Allcroft, P, Currow, DC & Phillips, JL 2019, 'Stigma and the in(visible) perspectives and expectations of home oxygen therapy among people with chronic breathlessness syndrome: A qualitative study.', Palliative medicine, vol. 33, no. 1, pp. 82-90.View/Download from: UTS OPUS or Publisher's site
BACKGROUND:Chronic breathlessness syndrome in the context of advancing disease is distressing for all concerned. Oxygen is commonly prescribed in this setting; however, little is known about the perspectives of breathless people who either are on oxygen or are yet to have it prescribed. AIM:To understand and describe the perspectives and experiences of breathless people towards oxygen use at home. DESIGN:This qualitative study utilised an interpretive description approach using semi-structured interviews and thematic analysis. SETTING/PARTICIPANTS:A total of 19 people with chronic breathlessness syndrome living in South Australia participated in semi-structured interviews. Participants were divided into sub-groups according to whether they were chronically breathless and (1) not using home oxygen ( n = 6), (2) using funded home oxygen for severe hypoxaemia ( n = 7) and (3) using home oxygen for palliation outside of funding guidelines ( n = 6). RESULTS:Three main themes were identified: (1) managing distress and living with chronic breathlessness syndrome, with or without oxygen, requires a range of self-management strategies; (2) expectations of oxygen use: 'Not as good as I thought it would be'; and (3) the stigma of using oxygen: the visible and invisible. CONCLUSION:People living with chronic breathlessness struggle daily with both the progression of the underlying disease and the distressing nature of the syndrome. While oxygen does provide benefit for some people, its use and the perceptions of its use are often associated with both the visible and invisible manifestations of stigma. Clinicians need to promote self-management strategies and give careful thought to the prescribing of home oxygen, especially outside the current funding guidelines.
Clark, K, Allingham, S, Phillips, JL, Brown, L & Currow, DC 2019, 'A Response to: Challenges in Recruiting Patients to a Controlled Feasibility Study of a Drug for Opioid-Induced Constipation: Lessons From the Population With Advanced Cancer.', Journal of Pain and Symptom Management, vol. 58, no. 3, pp. e1-e2.View/Download from: Publisher's site
Fischer, T, Hosie, A, Luckett, T, Agar, M & Phillips, J 2019, 'Strategies for Pain Assessment in Adult Patients With Delirium: A Scoping Review.', Journal of pain and symptom management, vol. 58, no. 3, pp. 487-502.e11.View/Download from: UTS OPUS or Publisher's site
CONTEXT:Pain and delirium are highly prevalent in the same patient groups. Disturbances in attention, awareness, and cognition are characteristics for delirium and can compromise pain assessment. OBJECTIVES:The aim of this review was to examine and map models and understandings of pain and delirium as well as pain assessment instruments and strategies for adult patients with delirium. METHODS:A scoping review of all publications that reported on pain assessment in adult patients with delirium was conducted with no time and language constraints, searching Medline, CINAHL, Scopus, Embase, and PsycINFO and systematically assessing for inclusion. Standardized data extraction and a narrative synthesis followed. RESULTS:A total of 90 publications were included in the final analysis. Despite being recommended for practice, no evidence for the use of self-report or behavioral pain assessment instruments in patients with delirium was identified, with the exception of limited evidence for the validity of the Critical Care Pain Observation Tool and Behavioral Pain Scale in delirious intensive care patients. Proxy ratings of pain and comprehensive pain assessment hierarchies were also recommended, but not supported by evidence. Current models and/or understandings of pain and delirium were not applied in most publications. CONCLUSION:The current literature is insufficient to guide clinical practice in pain assessment in patients with delirium. Future research will be needed to address the validity of existing pain assessment instruments, apply theoretical and conceptual understandings of pain and delirium, and build on prior studies to close evidence gaps.
Garcia, MV, Luckett, T, Johnson, M, Hutchinson, A, Lal, S & Phillips, JL 2019, 'The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis.', Journal of advanced nursing, vol. 75, no. 9, pp. 1953-1965.View/Download from: UTS OPUS or Publisher's site
AIM:To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease. DESIGN:A secondary analysis of semi-structured interview data. METHODS:Interviews with patients who had advanced respiratory disease, chronic breathlessness and at least one experience where they considered presenting to Emergency but self-managed instead (a "near miss"). Participants were recruited from New South Wales, Queensland, Victoria, South Australia or Tasmania. Eligible caregivers were those who contributed to Emergency-related decision-making. Interviews were coded inductively and then deductively against the coping moderators social support and dispositional coping style, defined by the Transactional Model of Stress and Coping. RESULTS:Interviews were conducted between October 2015 - April 2016 with 20 patients and three caregivers. Social networks offered emotional and practical support but also had potential for conflict with patients' 'hardy' coping style. Patient hardiness (characterized by a sense of 'commitment' and 'challenge') promoted a proactive approach to self-management but made some patients less willing to accept support. Information-seeking tendencies varied between patients and were sometimes shared with caregivers. An optimistic coping style appeared to be less equivocally beneficial. CONCLUSION:This study shows that social support and coping style may influence how people self-manage through their breathlessness crises and identified ways coping moderators can facilitate or hinder effective self-management. IMPACT:This study confers insights into how social-support and coping style can be supported and optimized to facilitate breathlessness self-management. Acknowledging coping moderator interactions is beneficial for developing resources and strategies that recognise patient mastery.
Hosie, A, Phillips, J, Lam, L, Kochovska, S, Noble, B, Brassil, M, Kurrle, SE, Cumming, A, Caplan, GA, Chye, R, Le, B, Ely, EW, Lawlor, PG, Bush, SH, Davis, JM, Lovell, M, Brown, L, Fazekas, B, Cheah, SL, Edwards, L & Agar, M 2019, 'Multicomponent non-pharmacological intervention to prevent delirium for hospitalised people with advanced cancer: study protocol for a phase II cluster randomised controlled trial.', BMJ open, vol. 9, no. 1, pp. e026177-e026177.View/Download from: UTS OPUS or Publisher's site
INTRODUCTION:Delirium is a significant medical complication for hospitalised patients. Up to one-third of delirium episodes are preventable in older inpatients through non-pharmacological strategies that support essential human needs, such as physical and cognitive activity, sleep, hydration, vision and hearing. We hypothesised that a multicomponent intervention similarly may decrease delirium incidence, and/or its duration and severity, in inpatients with advanced cancer. Prior to a phase III trial, we aimed to determine if a multicomponent non-pharmacological delirium prevention intervention is feasible and acceptable for this specific inpatient group. METHODS AND ANALYSIS:The study is a phase II cluster randomised wait-listed controlled trial involving inpatients with advanced cancer at four Australian palliative care inpatient units. Intervention sites will introduce delirium screening, diagnostic assessment and a multicomponent delirium prevention intervention with six domains of care: preserving natural sleep; maintaining optimal vision and hearing; optimising hydration; promoting communication, orientation and cognition; optimising mobility; and promoting family partnership. Interdisciplinary teams will tailor intervention delivery to each site and to patient need. Control sites will first introduce only delirium screening and diagnosis, later implementing the intervention, modified according to initial results. The primary outcome is adherence to the intervention during the first seven days of admission, measured for 40 consecutively admitted eligible patients. Secondary outcomes relate to fidelity and feasibility, acceptability and sustainability of the study intervention, processes and measures in this patient population, using quantitative and qualitative measures. Delirium incidence and severity will be measured to inform power calculations for a future phase III trial. ETHICS AND DISSEMINATION:Ethical approval was obtained for all four sites. Trial r...
Hosie, A, Siddiqi, N, Featherstone, I, Johnson, M, Lawlor, PG, Bush, SH, Amgarth-Duff, I, Edwards, L, Cheah, SL, Phillips, J & Agar, M 2019, 'Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review.', Palliative medicine, vol. 33, no. 8, pp. 878-899.View/Download from: UTS OPUS or Publisher's site
BACKGROUND:Delirium is common, distressing, serious and under-researched in specialist palliative care settings. OBJECTIVES:To examine whether people requiring palliative care were included in non-pharmacological delirium intervention studies in inpatient settings, how they were characterised and what their outcomes were. DESIGN:Systematic review (PROSPERO 2017 CRD42017062178). DATA SOURCES:Systematic search in March 2017 for non-pharmacological delirium intervention studies in adult inpatients. Database search terms were 'delirium', 'hospitalisation', 'inpatient', 'palliative care', 'hospice', 'critical care' and 'geriatrics'. Scottish Intercollegiate Guidelines Network methodological checklists guided risk of bias assessment. RESULTS:The 29 included studies were conducted between 1994 and 2015 in diverse settings in 15 countries (9136 participants, mean age = 76.5 years (SD = 8.1), 56% women). Most studies tested multicomponent interventions (n = 26) to prevent delirium (n = 19). Three-quarters of the 29 included studies (n = 22) excluded various groups of people requiring palliative care; however, inclusion criteria, participant diagnoses, illness severity and mortality indicated their presence in almost all studies (n = 26). Of these, 21 studies did not characterise participants requiring palliative care or report their specific outcomes (72%), four reported outcomes for older people with frailty, dementia, cancer and comorbidities, and one was explicitly focused on people receiving palliative care. Study heterogeneity and limitations precluded definitive determination of intervention effectiveness and only allowed interpretations of feasibility for people requiring palliative care. Acceptability outcomes (intervention adverse events and patients' subjective experience) were rarely reported overall. CONCLUSION:Non-pharmacological delirium interventions have frequently excluded and under-characterised people requiring palliative care and infrequently reported ...
Jacobs, C, White, S & Phillips, J 2019, 'Genetics in palliative care: too much to ask?', International journal of palliative nursing, vol. 25, no. 5, pp. 212-214.View/Download from: UTS OPUS or Publisher's site
People with an inherited condition who receive palliative care may be missing out on the opportunity to store a DNA sample for future use by their families and offspring. A DNA sample from a family member affected with an inherited condition can help at-risk relatives to access accurate risk assessment and, where relevant, enhanced surveillance and risk-reducing measures. As genetic and genomic testing becomes increasingly important in all aspects of healthcare, health professionals specialising in palliative care will be asked to communicate about family history risk and testing. This article highlights the importance of discussing genetics and genomics issues for people receiving palliative care, their families and the health professionals caring for them.
Lovell, M, Birch, M-R, Luckett, T, Phillips, J, Davidson, PM, Agar, M & Boyle, F 2019, 'Screening and Audit as Service-Level Strategies to Support Implementation of Australian Guidelines for Cancer Pain Management in Adults: A Feasibility Study.', Pain Management Nursing, vol. 20, no. 2, pp. 113-117.View/Download from: UTS OPUS or Publisher's site
BACKGROUND:Pain in people with cancer is common but often under-recognized and under-treated. Guidelines can improve the quality of pain care, but need targeted strategies to support implementation. AIM:To test the feasibility of two service-level strategies for supporting guideline implementation: a screening system and medical record audit. DESIGN:Multimethods. SETTING:One oncology outpatient service, and one palliative care outpatient and inpatient service. PARTICIPANTS:Patients with advanced cancer. METHODS:Patients were screened in the waiting room with a modified version of the Edmonton Symptom Assessment System-revised either electronically or in paper-based format. Feasibility indicated the percentage of patients successfully screened from the total number attending the services. An audit assessed adherence to key indicators of pain assessment and management. Feasibility thresholds were set at 75% incidence for screening and a median of 30 minutes per patient for audit. RESULTS:Of 452 patient visits, 95% (n = 429) were successfully screened, 34% (n = 155) electronically and 61% (n = 274) paper-based. Electronic pain screening was technically challenging and time-intensive for nurses. Thirty-one patients consented to have their records audited. The median audit time was 37.5 minutes (range 10-120 minutes). Variability arose from the number and type of record (outpatient or inpatient). Adherence to indicators varied from 63% (pain assessment at first presentation) to 94% (regular pain assessment and medication prescribed at regular intervals). CONCLUSIONS:This study confirmed the need to implement evidence-based guidelines for cancer pain and generated useful insights into the feasibility of pain screening and audit.
Luckett, T, Davidson, PM, Green, A, Marie, N, Birch, M-R, Stubbs, J, Phillips, J, Agar, M, Boyle, F & Lovell, M 2019, 'Development of a cancer pain self-management resource to address patient, provider, and health system barriers to care', PALLIATIVE & SUPPORTIVE CARE, vol. 17, no. 4, pp. 472-478.View/Download from: UTS OPUS or Publisher's site
Luckett, T, Phillips, J, Currow, DC, Agar, M & Molassiotis, A 2019, 'Cough in lung cancer: A survey of current practice among Australian health professionals', Collegian, vol. 26, no. 6, pp. 629-633.View/Download from: UTS OPUS or Publisher's site
© 2019 Australian College of Nursing Ltd Background: Systematic reviews and guidelines are available to guide management of cough in lung cancer, but evidence for intervention efficacy is limited, and little research has yet described current practice. Aim: To canvass the experiences and perspectives of Australian health professionals with regard to the clinical importance and current management of cough in people with lung cancer. Methods: An open, online, cross-sectional survey was conducted in 2018. Health professionals of all disciplines were eligible, and recruitment was by direct approach to lung cancer multidisciplinary teams, professional listservs and conferences. Findings: Fifty-eight people completed the survey, of whom 26 (45%) were medical practitioners, 21 (36%) registered nurses, and 10 (17%) allied health practitioners. Nearly all (>90%) considered cough to be of clinical concern and welcomed efforts to improve management. In most services, ≤25% of patients with clinically concerning cough receive management. Opiates were perceived to be the most consistently effective pharmacological strategy, with ≥50% participants indicating minimal or variable effectiveness for all others. The few participants who had experience of non-pharmacological strategies perceived these to be only somewhat or variably effective. Discussion: Results from this study identified variability in the management of cough associated with lung cancer, and suggest this problem may be under-treated in most services. Unmet needs identified by this study are likely under-estimated due to the volunteer effect associated with open surveys. Conclusion: Further efforts are needed to raise awareness about the importance of managing cough and provide evidence-based strategies for this population.
Phillips, JL, Heneka, N, Lovell, M, Lam, L, Davidson, P, Boyle, F, McCaffrey, N, Fielding, S & Shaw, T 2019, 'A phase III wait-listed randomised controlled trial of novel targeted inter-professional clinical education intervention to improve cancer patients' reported pain outcomes (The Cancer Pain Assessment (CPAS) Trial): study protocol.', Trials, vol. 20, no. 1.View/Download from: UTS OPUS or Publisher's site
BACKGROUND:Variations in care models contribute to cancer pain being under-recognised and under-treated in half of all patients with cancer. International and national cancer pain management guidelines are achievable with minimal investment but require practice changes. While much of the cancer pain research over the preceding decades has focused on management interventions, little attention has been given to achieving better adherence to recommended cancer pain guideline screening and assessment practices. This trial aims to reduce unrelieved cancer pain by improving cancer and palliative doctors' and nurses' ('clinicians') pain assessment capabilities through a targeted inter-professional clinical education intervention delivered to participants' mobile devices ('mHealth'). METHODS:A wait-listed, randomised control trial design. Cancer and/or palliative care physicians and nurses employed at one of the six participating sites across Australia will be eligible to participate in this trial and, on enrolment, will be allocated to the active or wait-listed arm. Participants allocated to the active arm will be invited to complete the mHealth cancer pain assessment intervention. In this trial, mHealth is defined as medical or public health practice supported by mobile devices (i.e. phones, patient monitoring devices, personal digital assistants and other wireless devices). This mHealth intervention integrates three evidence-based elements, namely: the COM-B theoretical framework; spaced learning pedagogy; and audit and feedback. This intervention will be delivered via the QStream online platform to participants' mobile devices over four weeks. The trial will determine if a tailored mHealth intervention, targeting clinicians' cancer pain assessment capabilities, is effective in reducing self-reported cancer pain scores, as measured by a Numerical Rating Scale (NRS). DISCUSSION:If this mHealth intervention is found to be effective, in addition to improving cancer pain ...
Phillips, JL, Lobb, EA, Bellemore, F, Hays, T & Currow, DC 2019, '‘Through the eyes of the dying’—Identifying who may benefit from bereavement follow-up: A qualitative study', Collegian, vol. 26, no. 6, pp. 615-620.View/Download from: UTS OPUS or Publisher's site
© 2019 Introduction: Bereavement support is an integral element of palliative care. Emerging evidence stipulates that bereavement support should be reserved for those most at risk of poor outcomes. While this evidence makes identifying those at risk of experiencing a complex bereavement a necessary first step, it has been difficult to arrive at a consensus as to whom that should be. Aim: To explore whether palliative care in-patients with advanced disease are concerned about the bereavement needs of others and, if so, is it their next-of-kin. Design: A qualitative study using semi-structured interviews, and thematic analysis using a constant comparative method. Setting/participants: Patients identified by their physicians as being aware of their limited prognosis (n = 19) in a specialist palliative care service in Sydney, Australia. Findings: Three key themes emerged: 1) Families considered close and supportive may not require bereavement follow-up; 2) Families with previous significant losses or who have more complex lives are perceived by patients as having greater risk; and 3) Asking palliative care patients about whom they are most concerned in their network after their death is difficult but possible. Conclusions: There are potentially people in the palliative patients’ networks who may be in need of bereavement support, but who are unlikely to be informed about available bereavement services. New strategies are needed to identify people who may benefit from bereavement support.
Raymond, B, Luckett, T, Johnson, M, Hutchinson, A, Lovell, M & Phillips, J 2019, 'Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review.', NPJ primary care respiratory medicine, vol. 29, no. 1.View/Download from: UTS OPUS or Publisher's site
Chronic breathlessness is debilitating and frightening, often resulting in emergency department presentations with acute-on-chronic breathlessness. Self-management is complex, involving 14 components as identified by the Practical Systematic Review in Self-Management Support (PRISMS). Low-intensity educational interventions that support breathlessness self-management through written/visual educational materials, alongside limited health professional support, are available. Our aim was to describe components of low-intensity educational interventions that support and improve self-management for adults with chronic breathlessness and evaluate their efficacy for improving breathlessness-related outcomes. A systematic review was conducted, including RCTs that compared these interventions with usual care in adults with chronic disease. Synthesis took a narrative approach utilizing the PRISMS taxonomy and Template for Intervention Description and Replication (TIDieR) checklist. Of the 1948 articles identified, 7 met criteria reporting 7 RCTs using 6 interventions. Studies utilized 12 out of 14 PRISMS components, the most frequent being training/rehearsal for psychological strategies. Evidence for effectiveness was inconsistent and attempts to identify beneficial components were confounded by intervention complexity and heterogeneity. The optimal content and delivery of low-intensity educational interventions that support self-management to improve chronic breathlessness-related outcomes in adults cannot be defined from current published literature. Future research should incorporate more detailed, standardized reporting to enable comparison and meta-analysis.
Sopina, E, Chenoweth, L, Luckett, T, Agar, M, Luscombe, GM, Davidson, PM, Pond, CD, Phillips, J & Goodall, S 2019, 'Health-related quality of life in people with advanced dementia: a comparison of EQ-5D-5L and QUALID instruments.', Quality of Life Research, vol. 28, no. 1, pp. 121-129.View/Download from: UTS OPUS or Publisher's site
Assessing health-related quality of life (HRQOL) in people with advanced dementia is challenging but important for informed decision-making. Proxy measurement of this construct is difficult and is often rated lower than self-report. Accurate proxy rating of quality of life in dementia is related to identification of concepts important to the person themselves, as well as the sensitivity of the measures used. The main aim of this study was to compare the performance of two instruments-QUALID and EQ-5D-5L-on measuring HRQOL in people with advanced dementia.In a sub-study nested within a cluster-RCT we collected proxy(nurse)-completed EQ-5D-5L and QUALID measures at baseline, 3, 6, 9 and 12 months' follow-up for people with advanced dementia, residing in 20 nursing homes across Australia. Spearman's rank correlations, partial correlations and linear regressions were used to assess the relationship between the HRQOL instrument scores and their changes over time.The mean weight from 284 people for the EQ-5D-5L and QUALID at baseline were 0.004 (95% CI - 0.026, 0.033) and 24.98 (95% CI 24.13, 25.82), respectively. At 12 months' follow-up, 115 participants remained alive. EQ-5D-5L weights and QUALID scores at baseline and at follow-up were moderately correlated (r = - 0.437; p < 0.001 at 12 months). Changes within QUALID and EQ-5D-5L across the same follow-up periods were also correlated (r = - 0.266; p = 0.005). The regression analyses support these findings.Whilst these quality of life instruments demonstrated moderate correlation, the EQ-5D-5L does not appear to capture all aspects of quality of life that are relevant to people with advanced dementia and we cannot recommend the use of this instrument for use within this population. The QUALID appears to be a more suitable instrument for measuring HRQOL in people with severe dementia, but is not preference-based, which limits its application in economic evaluations of dementia care.
To, THM, Soo, WK, Lane, H, Khattak, A, Steer, C, Devitt, B, Dhillon, HM, Booms, A & Phillips, J 2019, 'Utilisation of geriatric assessment in oncology - a survey of Australian medical oncologists.', Journal of geriatric oncology, vol. 10, no. 2, pp. 216-221.View/Download from: UTS OPUS or Publisher's site
Geriatric assessment (GA) is a multidimensional health assessment of the older person to evaluate their physical and cognitive function, comorbidities, nutrition, medications, psychological state, and social supports. GA may help oncologists optimise care for older patients with cancer. The aim of this study was to explore the views of Australian medical oncologists regarding the incorporation of geriatric screening tools, GA and collaboration with geriatricians into routine clinical practice.Members of the Medical Oncology Group of Australia were invited to complete an online survey that evaluated respondent demographics, practice characteristics, treatment decision-making factors, use of GA, and access to geriatricians.Sixty-nine respondents identified comorbidities, polypharmacy, and poor functional status as the most frequent challenges in caring for older patients with cancer. Physical function, social supports and nutrition were the most frequent factors influencing treatment decision-making. The majority of respondents perceived value in GA and geriatrician review, although access was a barrier for referral. Such services would need to be responsive, providing reports within two weeks for the majority of respondents.Despite an emerging evidence base for the potential benefits of GA and collaboration with geriatricians, medical oncologists reported a lack of access but a desire to engage with these services.
Yee, J, Davis, GM, Hackett, D, Beith, JM, Wilcken, N, Currow, D, Emery, J, Phillips, J, Martin, A, Hui, R, Harrison, M, Segelov, E & Kilbreath, SL 2019, 'Physical Activity for Symptom Management in Women With Metastatic Breast Cancer: A Randomized Feasibility Trial on Physical Activity and Breast Metastases', JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, vol. 58, no. 6, pp. 929-939.View/Download from: UTS OPUS or Publisher's site
Hickman, L, DiGiacomo, M, Phillips, J, Rao, A, Newton, P, Jackson, D & Ferguson, C 2018, 'Improving evidence based practice in postgraduate nursing programs: Asystematic review', Nurse Education Today, vol. 63, pp. 69-75.View/Download from: UTS OPUS or Publisher's site
The nursing profession has a significant evidence to practice gap in an increasingly complex and dynamic health care environment.
To evaluate effectiveness of teaching and learning strategies related to a capstone project within a Masters of Nursing program that encourage the development of evidence based practice capabilities.
Systematic review that conforms to the PRISMA statement. Sample: Master's Nursing programs that include elements of a capstone project within a university setting.
Data Sources/Review Methods
MEDLINE, CINAHL, Cochrane Database of Systematic Reviews, ERIC and PsycInfo were used to search for RCT's or quasi experimental studies conducted between 1979 and 9 June 2017, published in a peer reviewed journal in English.
Of 1592 studies, no RCT's specifically addressed the development of evidence based practice capabilities within the university teaching environment. Five quasi-experimental studies integrated blended learning, guided design processes, small group work, role play and structured debate into Masters of Nursing research courses. All five studies demonstrated some improvements in evidence based practice skills and/or research knowledge translation, with three out of five studies demonstrating significant improvements.
There is a paucity of empirical evidence supporting the best strategies to use in developing evidence based practice skills and/or research knowledge translation skills for Master's Nursing students. As a profession, nursing requires methodologically robust studies that are discipline specific to identify the best approaches for developing evidence-based practice skills and/or research knowledge translation skills within the university teaching environment. Provision of these strategies will enable the nursing profession to integrate the best empirical evidence into nursing practice.
Wyllie, A, DiGiacomo, M, Jackson, D, Davidson, P & Phillips, J 2018, 'Corrigendum to "Acknowledging attributes that enable the career academic nurse to thrive in the tertiary education sector: A qualitative systematic review" [Nurse Educ. Today 45, October 2016, 212-218].', Nurse Education Today, vol. 62, pp. 164-164.View/Download from: UTS OPUS or Publisher's site
Virdun, C, Luckett, T, Lorenz, KA & Phillips, J 2018, 'National quality indicators and policies from 15 countries leading in adult end-of-life care: a systematic environmental scan', BMJ SUPPORTIVE & PALLIATIVE CARE, vol. 8, no. 2, pp. 145-154.View/Download from: UTS OPUS or Publisher's site
Phillips, JL, Heneka, N, Hickman, L & Lam, L 2018, 'Self-Perceived Pain Assessment Knowledge and Confidence (Self-PAC) Scale for Cancer and Palliative Care Nurses: a Preliminary Validation Study.', Pain Management Nursing, vol. 19, no. 6, pp. 819-626.View/Download from: UTS OPUS or Publisher's site
BACKGROUND:Pain is highly prevalent in all health care settings, and frequently poorly managed. Effective pain management is predicated on a continuous cycle of screening, assessing, intervening and evaluating. Identifying gaps in nurses' self-perceived pain assessment competencies is an essential first step in the design of tailored interventions to embed effective pain assessment into routine clinical practice, and improve patient reported pain outcomes. Yet, few validated instruments focus on the competencies required for undertaking a comprehensive pain assessment, with most focusing on clinician's pain management competencies. AIM:To examine the validity of the 'Self-Perceived Pain Assessment Knowledge and Confidence' (Self-PAC) Scale. DESIGN:Preliminary instrument validation. SETTING:Two Australian cancer and palliative care services. PARTICIPANTS/SUBJECTS:186 cancer and palliative care nurses. METHODS:The Self-PAC Scale was administered to participants online. Factor Analyses, including Exploratory and Confirmatory, were applied to examine the structural validity, Cronbach's alpha was calculated for internal consistency. Criterion validity was investigated by comparing responses from experienced and non-experienced nurses. RESULTS:Two components resulted with a single factor structure for pain assessment confidence and a two-factor structure for the knowledge of pain assessment. The factor loading for the subscales ranged from 0.653 to 0.969, with large proportions of the variances explained by the factors. Cronbach's alpha of the subscales ranged from 0.87-0.92 and significant difference in responses were found between experienced and non-experienced nurses. CONCLUSION:Preliminary validation of the Self-PAC Scale suggests that it is a helpful instrument for assessing cancer and palliative care nurse' pain assessment competencies.
Bhattarai, P, Newton-John, TRO & Phillips, JL 2018, 'Quality and Usability of Arthritic Pain Self-Management Apps for Older Adults: A Systematic Review.', Pain Medicine, vol. 19, no. 3, pp. 471-484.View/Download from: UTS OPUS or Publisher's site
To appraise the quality and usability of currently available pain applications that could be used by community-dwelling older adults to self-manage their arthritic pain.A systematic review. Searches were conducted in App Store and Google Play to identify pain self-management apps relevant to arthritic pain management. English language pain management apps providing pain assessment and documentation function and pain management education were considered for inclusion. A quality evaluation audit tool based on the Stanford Arthritis Self-Management Program was developed a priori to evaluate app content quality. The usability of included apps was assessed using an established usability evaluation tool.Out of the 373 apps that were identified, four met the inclusion criteria. The included apps all included a pain assessment and documentation function and instructions on medication use, communication with health professionals, cognitive behavioral therapy-based pain management, and physical exercise. Management of mood, depression, anxiety, and sleep were featured in most apps (N = 3). Three-quarters (N = 3) of the apps fell below the acceptable moderate usability score (≥3), while one app obtained a moderate score (3.2).Few of the currently available pain apps offer a comprehensive pain self-management approach incorporating evidence-based strategies in accordance with the Stanford Arthritis Self-Management Program. The moderate-level usability across the included apps indicates a need to consider the usability needs of the older population in future pain self-management app development endeavors.
Cahill, PJ, Sanderson, CR, Lobb, EA & Phillips, JL 2018, 'The VOICE Study: Valuing Opinions, Individual Communication and Experience: building the evidence base for undertaking Patient-Centred Family Meetings in palliative care - a mixed methods study.', Pilot and Feasibility Studies, vol. 4, pp. 51-51.View/Download from: UTS OPUS or Publisher's site
Despite family meetings being widely used to facilitate discussion among patients, families, and clinicians in palliative care, there is limited evidence to support their use. This study aims to assess the acceptability and feasibility of Patient-Centred Family Meetings in specialist inpatient palliative care units for patients, families, and clinicians and determine the suitability and feasibility of validated outcome measures from the patient and family perspectives.The study is a mixed-methods quasi-experimental design with pre-planned Patient-Centred Family Meetings at the intervention site. The patient will set the meeting agenda a priori allowing an opportunity for their issues to be prioritised and addressed. At the control site, usual care will be maintained which may include a family meeting. Each site will recruit 20 dyads comprising a terminally ill inpatient and their nominated family member. Pre- and post-test administration of the Distress Thermometer, QUAL-EC, QUAL-E, and Patient Health Questionnaire-4 will assess patient and family distress and satisfaction with quality of life. Patient, family, and clinician interviews post-meeting will provide insights into the meeting feasibility and outcome measures. Recruitment percentages and outcome measure completion will also inform feasibility.Descriptive statistics will summarise pre- and post-meeting data generated by the outcome measures. SPSS will analyse the quantitative data. Grounded theory will guide the qualitative data analysis.This study will determine whether planned Patient-Centred Family Meetings are feasible and acceptable and assess the suitability and feasibility of the outcome measures. It will inform a future phase III randomised controlled trial.Australian New Zealand Clinical Trials Registry ACTRN12616001083482 on 11 August 2016.
Chroinin, DN, Goldsbury, DE, Beveridge, A, Davidson, PM, Girgis, A, Ingham, N, Phillips, JL, Wilkinson, AM, Ingham, JM & O'Connell, DL 2018, 'Health-services utilisation amongst older persons during the last year of life: a population-based study', BMC GERIATRICS, vol. 18.View/Download from: UTS OPUS or Publisher's site
Clark, K, Lam, L, Talley, NJ, Watts, G, Phillips, JL, Byfieldt, NJ & Currow, DC 2018, 'A pragmatic comparative study of palliative care clinician's reports of the degree of shadowing visible on plain abdominal radiographs.', Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, vol. 26.View/Download from: UTS OPUS or Publisher's site
The assessment of constipation symptoms is based on history and physical examination. However, the experience is highly subjective perhaps explaining why palliative medicine doctors continue to use plain abdominal radiographs as part of routine assessment of constipation. Previous studies have demonstrated poor agreement between clinicians with this work in palliative care, limited further by disparity of clinicians' experience and training. The aim of this work was to explore whether there was less variation in the assessments of faecal shadowing made by more experienced clinicians compared to their less experienced colleagues. This pragmatic study was conducted across six palliative care services in Sydney (NSW, Australia). Doctors of varying clinical experience were asked to independently report their opinions of the amount of shadowing seen on 10 plain abdominal radiographs all taken from cancer patients who self-identified themselves as constipated. There were 46 doctors of varying clinical experience who participated including qualified specialists, doctors in specialist training and lastly, doctors in their second- and third post-graduate years. Poor agreement was seen between the faecal shadowing scores allocated by doctors of similar experience and training (Fleiss's kappa (FK): RMO 0.05; registrar 0.06; specialist 0.11). Further, when the levels of agreement between groups were considered, no statistically significant differences were observed. Although the doctors did not agree on the appearance of the film, the majority felt they were able to extrapolate patients' experiences from the radiograph's appearance. As it remains challenging in palliative care to objectively assess and diagnose constipation by history and imaging, uniform and objective assessment and diagnostic criteria are required. It is likely that any agreed criteria will include a combination of imaging and history. The results suggest the use of radiographs alone to diagnose and assess...
Disalvo, D, Luckett, T, Luscombe, G, Bennett, A, Davidson, P, Chenoweth, L, Mitchell, G, Pond, D, Phillips, J, Beattie, E, Goodall, S & Agar, M 2018, 'Potentially inappropriate prescribing in Australian nursing home residents with advanced dementia: a sub-study of the IDEAL Study', Journal of Palliative Medicine, vol. 21, no. 10, pp. 1472-1479.View/Download from: UTS OPUS
Donkor, A, Luckett, T, Aranda, S & Phillips, J 2018, 'Barriers and facilitators to implementation of cancer treatment and palliative care strategies in low- and middle-income countries: systematic review', INTERNATIONAL JOURNAL OF PUBLIC HEALTH, vol. 63, no. 9, pp. 1047-1057.View/Download from: UTS OPUS or Publisher's site
Ferreira, DH, Boland, JW, Phillips, JL, Lam, L & Currow, DC 2018, 'The impact of therapeutic opioid agonists on driving-related psychomotor skills assessed by a driving simulator or an on-road driving task: A systematic review.', Palliative Medicine, vol. 32, no. 4, pp. 786-803.View/Download from: UTS OPUS or Publisher's site
Driving cessation is associated with poor health-related outcomes. People with chronic diseases are often prescribed long-term opioid agonists that have the potential to impair driving. Studies evaluating the impact of opioids on driving-related psychomotor skills report contradictory results likely due to heterogeneous designs, assessment tools and study populations. A better understanding of the effects of regular therapeutic opioid agonists on driving can help to inform the balance between individual's independence and community safety.To identify the literature assessing the impact of regular therapeutic opioid agonists on driving-related psychomotor skills for people with chronic pain or chronic breathlessness.Systematic review reported in accordance with the Preferred Reporting Items for Systematic Review and Meta-analysis statement; PROSPERO Registration CRD42017055909.Six electronic databases and grey literature were systematically searched up to January, 2017. Inclusion criteria were as follows: (1) empirical studies reporting data on driving simulation, on-the-road driving tasks or driving outcomes; (2) people with chronic pain or chronic breathlessness; and (3) taking regular therapeutic opioid agonists. Critical appraisal used the National Institutes of Health's quality assessment tools.From 3809 records screened, three studies matched the inclusion criteria. All reported data on people with chronic non-malignant pain. No significant impact of regular therapeutic opioid agonists on people's driving-related psychomotor skills was reported. One study reported more intense pain significantly worsened driving performance.This systematic review does not identify impaired simulated driving performance when people take regular therapeutic opioid agonists for symptom control, although more prospective studies are needed.
Heneka, N, Shaw, T, Azzi, C & Phillips, JL 2018, 'Clinicians' perceptions of medication errors with opioids in cancer and palliative care services: a priority setting report.', Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, vol. 26, no. 10, pp. 3315-3318.View/Download from: UTS OPUS or Publisher's site
This paper reports the findings of a priority setting process, undertaken with cancer and palliative care clinicians, to better understand the characteristics of medication errors with opioids within their services. Participants representing six public hospitals in one Australian state took part in a series of priority setting workshops and, drawing on actual incidents occurring in their services, sought to identify where in the opioid medication process errors were most frequently occurring. Opioid error types and perceived contributing factors were explored, and strategies to reduce/prevent opioid errors were proposed. The priority setting process provided valuable insights into the types of opioid errors that occur in cancer and palliative care services and the complexity of addressing opioid errors from the clinician's perspective. The findings from this priority setting process will inform future targeted quality improvement initiatives to support safe opioid medication practices in cancer and palliative care services.
Heneka, N, Shaw, T, Rowett, D, Lapkin, S & Phillips, JL 2018, 'Exploring factors contributing to medication errors with opioids in australian specialist palliative care inpatient services: A multi-incident analysis', Journal of Palliative Medicine, vol. 21, no. 6, pp. 825-835.View/Download from: UTS OPUS or Publisher's site
© 2018 Mary Ann Liebert, Inc. Background: Opioid errors have the potential to cause significant patient harm. These high-risk medications are used in high volumes in palliative care services to manage pain and other symptoms. Palliative patients are at greater risk of harm from opioid errors, as they are generally older and taking numerous medications to manage multiple comorbidities. Understanding factors contributing to opioid errors in inpatient palliative care services is a largely underexplored, yet, essential aspect of patient safety. Objective: To explore and identify the characteristics and associated contributing factors of reported opioid errors in palliative care inpatient services using a multi-incident analysis framework. Design: A multi-incident analysis of opioid errors reported over three years in two Australian specialist palliative care inpatient services. Results: A total of 78 opioid errors were reported. The majority (76%) of these errors occurred during opioid administration, primarily due to omitted dose (34%) and wrong dose (17%) errors. Eighty-five percent of reported errors reached the patient resulting in opioid underdose for over half (59%) of these patients. Over one-third (37%) of errors caused patient harm, which required clinical intervention. Error contributing factors included the following: noncompliance with policy; individual factors such as distraction; poor clinical communication systems; and workload. Conclusions: This multi-incident analysis has provided initial insights into factors contributing to opioid errors in palliative care inpatient services. Further exploration is warranted to understand palliative care clinicians' perspectives of systems, individual, and patient factors that influence safe opioid delivery processes.
Heneka, N, Shaw, T, Rowett, D, Lapkin, S & Phillips, JL 2018, 'Opioid errors in inpatient palliative care services: A retrospective review', BMJ Supportive and Palliative Care, vol. 8, no. 2, pp. 175-179.View/Download from: UTS OPUS or Publisher's site
© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. Opioids are a high-risk medicine frequently used to manage palliative patients' cancer-related pain and other symptoms. Despite the high volume of opioid use in inpatient palliative care services, and the potential for patient harm, few studies have focused on opioid errors in this population. Objectives: To (i) identify the number of opioid errors reported by inpatient palliative care services, (ii) identify reported opioid error characteristics and (iii) determine the impact of opioid errors on palliative patient outcomes. Methods: A 24-month retrospective review of opioid errors reported in three inpatient palliative care services in one Australian state. Results: Of the 55 opioid errors identified, 84% reached the patient. Most errors involved morphine (35%) or hydromorphone (29%). Opioid administration errors accounted for 76% of reported opioid errors, largely due to omitted dose (33%) or wrong dose (24%) errors. Patients were more likely to receive a lower dose of opioid than ordered as a direct result of an opioid error (57%), with errors adversely impacting pain and/or symptom management in 42% of patients. Half (53%) of the affected patients required additional treatment and/or care as a direct consequence of the opioid error. Conclusion: This retrospective review has provided valuable insights into the patterns and impact of opioid errors in inpatient palliative care services. Iatrogenic harm related to opioid underdosing errors contributed to palliative patients' unrelieved pain. Better understanding the factors that contribute to opioid errors and the role of safety culture in the palliative care service context warrants further investigation.
Kochovska, S, Luckett, T, Agar, M & Phillips, JL 2018, 'Impacts on employment, finances, and lifestyle for working age people facing an expected premature death: A systematic review.', Palliative and Supportive Care, vol. 16, no. 3, pp. 347-364.View/Download from: UTS OPUS or Publisher's site
The working ages (25-65 years) are a period when most people have significant work, financial, and family responsibilities. A small proportion of working age people will face an expected premature death from cancer or other life-limiting illness. Understanding the impact an expected premature death has on this population is important for informing support. The current study set out to summarize research describing the effects that facing an expected premature death has on employment, financial, and lifestyle of working age people and their families.A systematic review using narrative synthesis approach. Four electronic databases were searched in July 2016 for peer-reviewed, English language studies focusing on the financial, employment, and lifestyle concerns of working age adults living with an advanced life-limiting illness and/or their carers and/or children.Fifteen quantitative and 12 qualitative studies were included. Two-thirds (n = 18) were focused on cancer. All studies identified adverse effects on workforce participation, finances, and lifestyle. Many patients were forced to work less or give up work/retire early because of symptoms and reduced functioning. In addition to treatment costs, patients and families were also faced with child care, travel, and home/car modification costs. Being younger was associated with greater employment and financial burden, whereas having children was associated with lower functional well-being. Changes in family roles were identified as challenging regardless of diagnosis, whereas maintaining normalcy and creating stability was seen as a priority by parents with advanced cancer. This review is limited by the smaller number of studies focussing on the needs of working age people with nonmalignant disease. Significance of results Working age people facing an expected premature death and their families have significant unmet financial, employment, and lifestyle needs. Comparing and contrasting their severity, timing, and p...
Luckett, T, Phillips, J, Agar, M, Lam, L, Davidson, PM, McCaffrey, N, Boyle, F, Shaw, T, Currow, DC, Read, A, Hosie, A & Lovell, M 2018, 'Protocol for a phase III pragmatic stepped wedge cluster randomised controlled trial comparing the effectiveness and cost-effectiveness of screening and guidelines with, versus without, implementation strategies for improving pain in adults with cancer attending outpatient oncology and palliative care services: the Stop Cancer PAIN trial', BMC HEALTH SERVICES RESEARCH, vol. 18.View/Download from: UTS OPUS or Publisher's site
Phillips, J 2018, 'Smoking, stereotyping and stigma: Time for a new approach', Australian Journal of Cancer Nursing, vol. 19, no. 1.
Phillips, J & Hosie, A 2018, 'Imprecise communication and perceptions of palliative care', International Journal of Palliative Nursing, vol. 24, no. 2, p. 55.View/Download from: UTS OPUS or Publisher's site
Phillips, JL, Lobb, E, Mohacsi, P, Heneka, N & Currow, D 2018, 'Identifying systems barriers that may prevent bereavement service access to bereaved carers: A report from an Australian specialist palliative care service', Collegian, vol. 25, no. 1, pp. 39-43.View/Download from: UTS OPUS or Publisher's site
© 2017 Australian College of Nursing Ltd. Background: Bereavement follow up is an integral element of palliative care. However, little is known about the systems that link bereavement services with bereaved carers. Aim: To map how effectively a specialist palliative care service linked bereavement service to bereaved carers. Methodology: A retrospective medical audit, using process mapping was undertaken within one Australian specialist palliative care service to identify the systems that linked bereavement services to a consecutive cohort of palliative care decedents (n=60) next of kin. Results: Bereavement records were located for 80% of decedents. Nearly all (98%) had a nominated next of kin, with just over half (54%) of those nominated contacted by bereavement services. Incomplete or missing contact details was the main reason (75%) that the bereavement service was unable to contact the decedents' next of kin. Conclusion: Having access to a designated bereavement service can ensure that bereaved next of kin are contract routinely and in a timely way. However the effectiveness of this type of service is dependent upon the bereavement service having access to all relevant contact information. There are numerous opportunities to refine and strengthen the recording of palliative care next of kin details to optimize follow up.
Shaw, T, Janssen, A, Barnet, S, Nicholson, J, Avery, J, Heneka, N & Phillips, J 2018, 'The CASE Methodology: A guide to developing clinically authentic case-based scenarios for online learning programs targeting evidence-based practice', Health Education in Practice: Journal of Research for Professional Learning, vol. 1, no. 1, pp. 18-31.View/Download from: UTS OPUS
Stone, E, Rankin, N, Kerr, S, Fong, K, Currow, DC, Phillips, J, Connon, T, Zhang, L & Shaw, T 2018, 'Does presentation at multidisciplinary team meetings improve lung cancer survival? Findings from a consecutive cohort study', LUNG CANCER, vol. 124, pp. 199-204.View/Download from: UTS OPUS or Publisher's site
Stone, E, Rankin, N, Phillips, J, Fong, K, Currow, DC, Miller, A, Largey, G, Zielinski, R, Flynn, P & Shaw, T 2018, 'Consensus minimum data set for lung cancer multidisciplinary teams: Results of a Delphi process', RESPIROLOGY, vol. 23, no. 10, pp. 927-934.View/Download from: UTS OPUS or Publisher's site
Vongmany, J, Luckett, T, Lam, L & Phillips, JL 2018, 'Family behaviours that have an impact on the self-management activities of adults living with Type 2 diabetes: a systematic review and meta-synthesis.', Diabetic Medicine, vol. 35, no. 2, pp. 184-194.View/Download from: UTS OPUS or Publisher's site
To identify family behaviours that adults with Type 2 diabetes' perceive as having an impact on their diabetes self-management.Research suggests that adults with Type 2 diabetes perceive that family members have an important impact on their self-management; however, it is unclear which family behaviours are perceived to influence self-management practices.This meta-synthesis identified and synthesized qualitative studies from the databases EMBASE, Medline and CINAHL published between the year 2000 and October 2016. Studies were eligible if they provided direct quotations from adults with Type 2 diabetes, describing the influence of families on their self-management. This meta-synthesis adheres to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement.Of the 2606 studies screened, 40 were included. This meta-synthesis identified that adults with Type 2 diabetes perceive family behaviours to be either: 1) facilitators of diabetes self-management; 2) barriers to diabetes self-management; or 3) equivocal behaviours with the potential to both support and/or impede diabetes self-management. Seven sub-themes were identified within these themes, including: four facilitator sub-themes ('positive care partnerships'; 'family watchfulness'; 'families as extrinsic motivator' and 'independence from family'); two barrier sub-themes ('obstructive behaviours' and 'limited capacity for family support'); and one equivocal behaviours subtheme ('regular reminders and/or nagging').While most family behaviours are unambiguously perceived by adults with Type 2 diabetes to act as facilitators of or barriers to self-management, some behaviours were perceived as being neither clear facilitators nor barriers; these were termed 'equivocal behaviours'. If the concept of 'equivocal behaviours' is confirmed, it may be possible to encourage the adult living with Type 2 diabetes to reframe these behaviours so that they are perceived as enabling their diabetes se...
Xu, X, Luckett, T, Wang, AY, Lovell, M & Phillips, JL 2018, 'Cancer pain management needs and perspectives of patients from Chinese backgrounds: a systematic review of the Chinese and English literature', PALLIATIVE & SUPPORTIVE CARE, vol. 16, no. 6, pp. 785-799.View/Download from: UTS OPUS or Publisher's site
Virdun, C, Luckett, T, Lorenz, K, Davidson, PM & Phillips, J 2017, 'Analyzing Consumer Priorities for Hospital End-of-Life Care Using a Systematic Review to Inform Policy and Practice', SAGE Research Methods Cases.View/Download from: UTS OPUS or Publisher's site
A systematic review is a useful method to answer a research question where prior studies have been conducted. A
well-designed and executed systematic review can inform policy and/or practice change. It can also identify gaps
and generate new research questions. Although the requirements considered essential for conducting a rigorous
systematic review are well defined in the Preferred Reporting Items for Systematic Reviews and Meta-Analyses
statement, the approaches taken to synthesize the data vary. This case study describes the narrative synthesis of
heterogeneous quantitative studies and the meta-synthesis of qualitative studies used to answer a complex
research question from the consumer perspective. The study design focused on the analysis of consumer data
only. As a result, the synthesis of both quantitative data and qualitative data has provided a detailed insight into
consumers' unique perspectives and needs. The synthesis approach for both datasets is described, and linkages
to key tools and resources to help facilitate this approach are provided. Processes used by the research team to
enable effective research governance and collaboration throughout are also detailed.
Virdun, C, Luckett, T, Lorenz, K, Davidson, PM & Phillips, J 2017, 'Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important.', Palliative medicine, vol. 31, no. 7, pp. 587-601.View/Download from: UTS OPUS or Publisher's site
Despite most expected deaths occurring in hospital, optimal end-of-life care is not available for all in this setting.To gain a richer and deeper understanding of elements of end-of-life care that consumers consider most important within the hospital setting.A meta-synthesis.A systematic search of Academic Search Complete, AMED, CINAHL, MEDLINE, EMBASE, PsycINFO, PubMed, Google, Google Scholar and CareSearch for qualitative studies published between 1990 and April 2015 reporting statements by consumers regarding important elements of end-of-life hospital care. Study quality was appraised by two independent researchers using an established checklist. A three-stage synthesis approach focusing on consumer quotes, rather than primary author themes, was adopted for this review.Of 1922 articles, 16 met the inclusion criteria providing patient and family data for analysis. Synthesis yielded 7 patient and 10 family themes including 6 common themes: (1) expert care, (2) effective communication and shared decision-making, (3) respectful and compassionate care, (4) adequate environment for care, (5) family involvement and (6) financial affairs. Maintenance of sense of self was the additional patient theme, while the four additional family themes were as follows: (1) maintenance of patient safety, (2) preparation for death, (3) care extending to the family after patient death and (4) enabling patient choice at the end of life.Consumer narratives help to provide a clearer direction as to what is important for hospital end-of-life care. Systems are needed to enable optimal end-of-life care, in accordance with consumer priorities, and embedded into routine hospital care.
Phillips, JL, Heneka, N, Hickman, L, Lam, L & Shaw, T 2017, 'Can A Complex Online Intervention Improve Cancer Nurses' Pain Screening and Assessment Practices? Results from a Multicenter, Pre-post Test Pilot Study.', Pain Management Nursing, vol. 18, no. 2, pp. 75-89.View/Download from: UTS OPUS or Publisher's site
Unrelieved cancer pain has an adverse impact on quality of life. While routine screening and assessment forms the basis of effective cancer pain management, it is often poorly done, thus contributing to the burden of unrelieved cancer pain. The aim of this study was to test the impact of an online, complex, evidence-based educational intervention on cancer nurses' pain assessment capabilities and adherence to cancer pain screening and assessment guidelines. Specialist inpatient cancer nurses in five Australian acute care settings participated in an intervention combining an online spaced learning cancer pain assessment module with audit and feedback of pain assessment practices. Participants' self-perceived pain assessment competencies were measured at three time points. Prospective, consecutive chart audits were undertaken to appraise nurses' adherence with pain screening and assessment guidelines. The differences in documented pre-post pain assessment practices were benchmarked and fed back to all sites post intervention. Data were analyzed using inferential statistics. Participants who completed the intervention (n = 44) increased their pain assessment knowledge, assessment tool knowledge, and confidence undertaking a pain assessment (p < .001). The positive changes in nurses' pain assessment capabilities translated into a significant increasing linear trend in the proportion of documented pain assessments in patients' charts at the three time points (χ(2) trend = 18.28, df = 1, p < .001). There is evidence that learning content delivered using a spaced learning format, augmented with pain assessment audit and feedback data, improves inpatient cancer nurses' self-perceived pain screening and assessment capabilities and strengthens cancer pain guideline adherence.
Luckett, T, Phillips, J, Johnson, M, Garcia, M, Bhattarai, P, Carrieri-Kohlman, V, Hutchinson, A, Disler, RT, Currow, D, Agar, M, Ivynian, S, Chye, R, Newton, PJ & Davidson, PM 2017, 'Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department 'near miss' for breathlessness: a strengths-based qualitative study.', BMJ Open, vol. 7, no. 12, pp. 1-11.View/Download from: UTS OPUS or Publisher's site
Breathlessness 'crises' in people with chronic respiratory conditions are a common precipitant for emergency department (ED) presentations, many of which might be avoided through improved self-management and support. This study sought insights from people with experience of ED 'near misses' where they considered going to the ED but successfully self-managed instead.A qualitative approach was used with a phenomenological orientation. Participants were eligible if they reported breathlessness on most days from a diagnosed respiratory condition and experience of ≥1 ED near miss. Recruitment was through respiratory support groups and pulmonary rehabilitation clinics. Semistructured interviews were conducted with each participant via telephone or face-to-face. Questions focused on ED-related decision-making, information finding, breathlessness management and support. This analysis used an integrative approach and independent coding by two researchers. Lazarus and Cohen's Transactional Model of Stress and Coping informed interpretive themes.Interviews were conducted with 20 participants, 15 of whom had chronic obstructive pulmonary disease. Nineteen interviews were conducted via telephone. Analysis identified important factors in avoiding ED presentation to include perceived control over breathlessness, self-efficacy in coping with a crisis and desire not to be hospitalised. Effective coping strategies included: taking a project management approach that involved goal setting, monitoring and risk management; managing the affective dimension of breathlessness separately from the sensory perceptual and building three-way partnerships with primary care and respiratory services.In addition to teaching non-pharmacological and pharmacological management of breathlessness, interventions should aim to develop patients' generic self-management skills. Interventions to improve self-efficacy should ensure this is substantiated by transfer of skills and support, including knowledge...
DiGiacomo, M, Hatano, Y, Phillips, J, Lewis, J, Abernathy, A & Currow, D 2017, 'Caregiver characteristics and bereavement needs: findings from a population study', Palliative Medicine, vol. 31, no. 5, pp. 465-474.View/Download from: UTS OPUS or Publisher's site
Background: Globally, the majority of care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can enable provision of better support to facilitate their adjustment.
Aim: We compared characteristics, expressed unmet needs, and outcomes for spousal caregivers, with other caregivers at the end of life, by gender and age.
Design: The South Australian Health Omnibus is an annual, random, face-to-face, cross-sectional survey wherein respondents are asked about end-of-life care.
Setting/Participants: Participants were aged over 15, resided in households in South Australia, and had someone close to them die from a terminal illness in the last five years.
Results: Of the 1,540 respondents who provided hands-on care for someone close at the end of life, 155 were widows/widowers. Bereaved spousal caregivers were more likely to: be older, female, better educated, have lower incomes, less full-time work, English as second language, sought help with grief, and provided more day-to-day care for longer periods. Spousal caregivers were less likely to be willing to take on caregiving again, less able to ‘move on’ with life, and needed greater emotional support and more information about the illness and services. The only difference between widows and widowers was older age of spouse in women. Younger spousal caregivers perceived greater unmet emotional needs and were significantly less likely to be able to ‘move on’.
Conclusions: Spousal caregivers are different from other caregivers, with more intense needs that are not fully met. These have implications for bereavement, health, and social services.
Rihari-Thomas, J, DiGiacomo, M, Phillips, J, Newton, P & Davidson, PM 2017, 'Clinician Perspectives of Barriers to Effective Implementation of a Rapid Response System in an Academic Health Centre: A Focus Group Study', International Journal of Health Policy and Management, vol. 6, no. 8, pp. 447-456.View/Download from: UTS OPUS or Publisher's site
Background: Systemic and structural issues of rapid response system (RRS) models can hinder implementation. This study sought to understand the ways in which acute care clinicians (physicians and nurses) experience and negotiate care for deteriorating patients within the RRS.
Methods: Physicians and nurses working within an Australian academic health centre within a jurisdictional-based model of clinical governance participated in focus group interviews. Verbatim transcripts were analysed using thematic content analysis.
Results: Thirty-four participants (21 physicians and 13 registered nurses [RNs]) participated in six focus groups over five weeks in 2014. Implementing the RRS in daily practice was a process of informal communication and negotiation in spite of standardised protocols. Themes highlighted several systems or organisational-level barriers to an effective RRS, including (1) responsibility is inversely proportional to clinical experience; (2) actions around system flexibility contribute to deviation from protocol; (3) misdistribution of resources leads to perceptions of inadequate staffing levels inhibiting full optimisation of the RRS; and (4) poor communication and documentation of RRS increases clinician workloads.
Conclusion: Implementing a RRS is complex and multifactorial, influenced by various inter- and intra-professional factors, staffing models and organisational culture. The RRS is not a static model; it is both reflexive and iterative, perpetually transforming to meet healthcare consumer and provider demands and local unit contexts and needs. Requiring more than just a strong initial implementation phase, new models of care such as a RRS demand good governance processes, ongoing support and regular evaluation and refinement. Cultural, organizational and professional factors, as well as systems-based processes, require consideration if RRSs are to achieve their intended outcomes in dynamic healthcare settings.
Bhattarai, P & Phillips, JL 2017, 'The role of digital health technologies in management of pain in older people: An integrative review.', Archives of Gerontology and Geriatrics, vol. 68, pp. 14-24.View/Download from: UTS OPUS or Publisher's site
Pain is one of the most distressing and debilitating health issues faced by older people. The burden of unrelieved pain experienced by older people and its associated high symptom and economic costs demands consideration of new strategies to better this condition. As the global uptake of digital technology increases, exploring its potential to impact positively on older peoples' pain self-management practices warrants investigation. This integrative review aimed to evaluate the use of digital health technology for management of older people's pain across care-settings. Searches were conducted to identify relevant English language studies published in CINHAL, Medline, Academic Search Complete, EMBASE, Cochrane library databases, and Google and Google Scholar websites. A total of 1003 papers were identified, 9 met the inclusion criteria. The highest level of evidence (Level II) was generated by three Phase II randomized controlled trials. These trials demonstrated the feasibility of computer based interactive or instructive video interventions however there was limited evidence to support their use for reduction of pain intensity and interference. Qualitative evidence demonstrated older people's willingness to use mobile technologies (iPhone or digital pen) to help manage their pain, however, the need of device-use training and connectedness with clinicians were highlighted. In conclusion, there is some evidence that integrating digital health technology into older peoples' pain self-management plan is feasible and acceptable. However, the provision of high-quality technological interventions informed by a thorough understanding of older people's digital technology pain management needs is required to ensure greater integration of this technology in clinical practice.
Luckett, T, Phillips, J, Johnson, MJ, Farquhar, M, Swan, F, Assen, T, Bhattarai, P & Booth, S 2017, 'Contributions of a hand-held fan to self-management of chronic breathlessness.', The European Respiratory Journal, vol. 50, no. 2, pp. 1-10.View/Download from: UTS OPUS or Publisher's site
This study explored the benefits of a hand-held fan as perceived by patients with chronic breathlessness and their carers.A secondary multimethod analysis was conducted of interview data collected in three clinical trials. Two researchers independently coded level of benefit qualitatively reported by each patient. Univariate and multivariate statistics were used to explore perceived benefit as a factor of sex, age and diagnosis. Qualitative analysis used an integrative method.133 patients commented on the fan, of whom 72 had a carer. Diagnoses included nonmalignant (n=91, 68.4%) and malignant (n=21, 15.8%) conditions. Of 111 patients who provided codable data, four (3.6%) perceived no benefit, 16 (14.4%) were uncertain, 80 (72.0%) perceived some benefit and 11 (10.0%) perceived very substantial benefit. Multivariate analysis was inconclusive. Benefit was described in terms of shorter recovery time, especially after activity. 10 (7.5%) patients said the fan reduced their need for home oxygen or inhaled β-agonist medications. Negative perceptions of a few included dislike of the cooling sensation and embarrassment in public.Findings suggest that a hand-held fan is a portable intervention with few disadvantages from which most patients with chronic breathlessness will derive benefit alongside other nonpharmacological and pharmacological strategies. Research is needed to optimise guidance on fan administration.
Agar, M, Luckett, T, Luscombe, G, Phillips, J, Beattie, E, Pond, D, Mitchell, G, Davidson, P, Cook, J, Brooks, D, Houltram, J, Goodall, S & Chenoweth, L 2017, 'Effects of facilitated family case conferencing for advanced dementia: A cluster randomised clinical trial', PLoS ONE, vol. 12, no. 8, pp. e0181020-e0181020.View/Download from: UTS OPUS
Cahill, PJ, Lobb, EA, Sanderson, C & Phillips, JL 2017, 'What is the evidence for conducting palliative care family meetings? A systematic review.', Palliative Medicine, vol. 31, no. 3, pp. 197-211.View/Download from: UTS OPUS or Publisher's site
Structured family meeting procedures and guidelines suggest that these forums enhance family-patient-team communication in the palliative care inpatient setting. However, the vulnerability of palliative patients and the resources required to implement family meetings in accordance with recommended guidelines make better understanding about the effectiveness of this type of intervention an important priority.This systematic review examines the evidence supporting family meetings as a strategy to address the needs of palliative patients and their families. The review conforms to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Statement.Six medical and psychosocial databases and "CareSearch," a palliative care-specific database, were used to identify studies reporting empirical data, published in English in peer-reviewed journals from 1980 to March 2015. Book chapters, expert opinion, and gray literature were excluded. The Cochrane Collaboration Tool assessed risk of bias.Of the 5051 articles identified, 13 met the inclusion criteria: 10 quantitative and 3 qualitative studies. There was low-level evidence to support family meetings. Only two quantitative pre- and post-studies used a validated palliative care family outcome measure with both studies reporting significant results post-family meetings. Four other quantitative studies reported significant results using non-validated measures.Despite the existence of consensus-based family meeting guidelines, there is a paucity of evidence to support family meetings in the inpatient palliative care setting. Further research using more robust designs, validated outcome measures, and an economic analysis are required to build the family meeting evidence before they are routinely adopted into clinical practice.
Clark, K, Lam, LT, Talley, NJ, Phillips, JL & Currow, DC 2017, 'Identifying Factors That Predict Worse Constipation Symptoms in Palliative Care Patients: A Secondary Analysis.', Journal of Palliative Medicine, vol. 20, no. 5, pp. 528-532.View/Download from: UTS OPUS or Publisher's site
OBJECTIVE: The aim of this work was to investigate whether variables identified as likely to impact the experience of constipation in other clinical settings similarly affected the experiences of constipated palliative care patients. BACKGROUND: The majority of palliative care patients with cancer are likely to be bothered by constipation symptoms at some point in their disease trajectory. Despite this, it remains unclear as to which factors predict more severe problems. METHODS: This study was conducted in a sample of 94 constipated palliative care patients who were asked to voluntarily complete a series of questions regarding their demographic and other characteristics, including whether they had chronic constipation symptoms, that is, constipation symptoms for 12 months. Other variables included age, body mass index, sex, performance status, and regular opioids and their doses. At the same time, they were asked to complete the Patient Assessment of Constipation Symptoms (PAC-SYM) and Patient Assessment of Constipation Quality of Life (PAC-QOL) questionnaires. RESULTS: Descriptive statistics summarized baseline data. Unadjusted associations between the selected variables on PAC-SYM were examined by using bi-variate analyses. Significant variables identified on bi-variate analyses were included in a multivariate analysis. The final results identified that only the chronicity of constipation symptoms predicted more severe symptoms. This relationship persisted when this single variable was retained in the final model, illustrating that PAC-SYM scores are 0.41 higher in patients with chronic constipation compared with those without it (p = 0.02). In contrast, regular opioid use was not identified as a significant factor (p = 0.56). DISCUSSION: This study suggests that the factor most likely to predict worse constipation symptoms was the duration that people had experienced problems. Further, those who perceived their constipation symptoms to be more severe had a po...
Collier, A, Breaden, K, Phillips, JL, Agar, M, Litster, C & Currow, DC 2017, 'Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study.', Journal of Pain and Symptom Management, vol. 53, no. 1, pp. 33-39.View/Download from: UTS OPUS or Publisher's site
CONTEXT: Despite limited clinical evidence, long-term oxygen therapy (LTOT) is used for the management of refractory breathlessness in people with life-limiting illnesses who are not necessarily hypoxemic. OBJECTIVES: The aim of this study was to understand caregiver factors associated with caring for someone with LTOT from the perspectives and experiences of caregivers themselves. METHODS: The qualitative study used semistructured interviews. The study was conducted in two states in Australia. Participants (n = 20) were self-nominated caregivers of people receiving LTOT for refractory breathlessness in the palliative setting. RESULTS: Data analyses established one overarching theme titled: "Oxygen giveth (something to help caregivers relieve breathlessness) and oxygen taketh away (from patients who lose some autonomy)." The theme captured caregivers' feelings of extreme distress in response to witnessing refractory breathlessness, and oxygen fulfilling several critical and beneficial roles in this context. In parallel, caregivers also explicitly and implicitly articulated several downsides to the use of LTOT. CONCLUSION: Caregivers find caring for someone with refractory breathlessness extremely distressing. The benefits of LTOT are often overestimated, whereas its potential harms are underestimated. As significant stakeholders of people receiving LTOT, caregivers should be provided with opportunities to collaborate with clinicians in evidence-based decision making, efforts should be made to provide them with information and education about the most effective pharmacological and nonpharmacological strategies to manage refractory breathlessness in a palliative care setting including the appropriate use of LTOT to enable them to do so.
Currow, DC, Phillips, J & Agar, M 2017, 'Population-based models of planning for palliative care in older people.', Current Opinion in Supportive and Palliative Care, vol. 11, no. 4, pp. 310-314.View/Download from: UTS OPUS or Publisher's site
Health service planning requires demographic, clinical, and health systems data and is unique to each health system. Planning for palliative care in older people must include patients and their carers. This review explores literature from the last 24 months.The proportion of people living in skilled nursing facilities is increasing and many residents require quality palliative care. Simultaneously, the complexity of care for older people is also increasing. Systematic approaches to improving palliative care in these facilities have shown benefits that are cost-effective.Although advance care planning is widely promoted, a randomized controlled trial failed to show the benefits seen in nonrandomized trials. This requires a reconceptualization of current programs that seek to increase uptake.Caregivers take on complex decision-making which can be stressful. By contrast, patients are often very confident that the people who are close to them will make good decisions on their behalf.Specific subgroups considered in this review include carers (and the challenges they face), the 'oldest old' and people with dementia.Excellent research is being done to improve the care of older people with palliative care needs. Ultimately, how can key findings be incorporated into clinical care?
Hayes, JE, Hart, B & Phillips, J 2017, 'Specialist palliative care nurses’ management of the needs of patients with depression', International Journal of Palliative Nursing, vol. 23, no. 6, pp. 298-305.View/Download from: UTS OPUS or Publisher's site
© 2017 MA Healthcare Ltd. Background: Depression is an important condition to consider if we are to optimise the care outcomes for patients with palliative care needs. Depression has a high incidence in palliative patients, with up to 15% diagnosed with major depression and 37% expressing some form of depressive symptoms (O'Connor et al, 2010). The challenge is to ensure that palliative care patients with depression are identified in a timely manner and that their depression is effectively managed. Aim: To examine how Australian specialist inpatient palliative care nurses perceive, assess and respond to depression in a patient case study. Method: This descriptive pilot study is a replication of a United States study by Little et al (2005), exploring contemporary Australian specialist palliative care nurses’ screening, assessment and management of depression in people with a progressive life-limiting illness. A survey titled ‘Specialist palliative care nurses managing patients with complex care needs’ questioned the nursing assessment, knowledge and clinical care priorities related to a case vignette of a patient demonstrating signs of depression. Results: A total of 33 nurses completed this survey. Less than half (39.4%) of the participants identified depression as a major issue arising from the case vignette. Depression screening tools were not widely known. Functionality assessments measuring activities of daily living were the most recognised and widely used tools by participants. Conclusion: This small sample pilot study demonstrated that specialist palliative care nurses are still not confident in their screening and responding to a patient with depression. The available evidenced based depression screening tools were unfamiliar to these nurses and not widely used which can result in depression remaining undetected and undermanaged. The connections between physical health and mental health need stronger recognition and response within nursing care of palliat...
Hosie, A, Agar, M, Lobb, E, Davidson, PM & Phillips, J 2017, 'Improving delirium recognition and assessment for people receiving inpatient palliative care: a mixed methods meta-synthesis', INTERNATIONAL JOURNAL OF NURSING STUDIES, vol. 75, pp. 123-129.View/Download from: UTS OPUS or Publisher's site
Luckett, T, Chenoweth, L, Phillips, J, Brooks, D, Cook, J, Mitchell, G, Pond, D, Davidson, P, Beattie, E, Luscombe, G, Goodall, S, Fischer, T & Agar, M 2017, 'A facilitated approach to family case conferencing for people with advanced dementia living in nursing homes: Perceptions of Palliative Care Planning Coordinators and other health professionals in the IDEAL Study', International Psychogeriatrics, vol. 29, pp. 1713-1722.View/Download from: UTS OPUS
Maltby, KF, Sanderson, CR, Lobb, EA & Phillips, JL 2017, 'Sleep disturbances in caregivers of patients with advanced cancer: A systematic review.', Palliative and Supportive Care, vol. 15, no. 1, pp. 125-140.View/Download from: UTS OPUS or Publisher's site
OBJECTIVE: Sleep disturbances are a common issue for those who provide informal care to someone with a life-limiting condition. The negative consequences of poor sleep are well documented. The purpose of the present study was to determine the sleep patterns of caregivers of patients with advanced cancer. METHOD: An extensive systematic review of studies reporting empirical sleep data was undertaken in 2015 in accordance with the PRISMA Statement. A total of eight electronic databases were searched, with no date restrictions imposed. Additionally, a search of the bibliographies of the studies identified during the electronic search was conducted. Search terms included: "sleep," "insomnia," "sleep disturbance," "circadian rhythm," "caregiver," "carer," "advanced cancer," "palliative cancer," and MESH suggestions. The inclusion criteria required studies to be in English and to report primary qualitative and/or quantitative research that examined sleep in caregivers of patients with advanced cancer. Unpublished studies, conference papers, and dissertations were excluded. RESULTS: Overall, 10 studies met the inclusion criteria and were included in the review. Two major findings emerged from the data synthesis. First, at least 72% of caregivers reported moderate to severe sleep disturbance as measured by the Pittsburgh Sleep Quality Index. Second, objective measurement of caregivers' sleep identified that some caregivers experienced up to a 44% reduction in their total sleep time compared to the recommended eight hours. SIGNIFICANCE OF RESULTS: Reduction in total sleep time appears to be the biggest issue facing caregivers' sleep. Future studies need to explore the specific factors that cause these sleep disturbances and thus help to identify interventions to optimize sleep.
McGregor, D, Rankin, N, Butow, P, York, S, White, K, Phillips, J, Stone, E, Barnes, D, Jones, R & Shaw, T 2017, 'Closing evidence-practice gaps in lung cancer: Results from multi-methods priority setting in the clinical context.', Asia-Pacific Journal of Clinical Oncology, vol. 13, no. 1, pp. 28-36.View/Download from: UTS OPUS or Publisher's site
To establish priorities for implementation research to reduce evidence-practice gaps in lung cancer care.A modified Nominal Group Technique was used to prioritize evidence-practice gaps in lung cancer care with oncology professionals at three clinical study sites: one rural and two metropolitan. A multimethods design was used to gather quantitative and qualitative data. Quantitative data were analyzed with descriptive statistics, while qualitative data were thematically analyzed.Forty-two health professionals participated, representing a multidisciplinary spread across the care trajectory. A standout priority was identified: reducing the time from first presentation of symptoms to diagnosis and referral for treatment (gap 1), as well as significant focus on a number of presented priorities, including: utilization of active treatments; timely referral to palliative care services; screening as a potential diagnostic tool; and focusing on the care needs of our vulnerable population groups. We describe emerging themes from the qualitative analysis, including: patient help-seeking behavior, provider knowledge about lung cancer, service factors, patient and provider factors in not receiving treatment, the "flow on" effect of variations from optimal care, vulnerable populations of patients, psychosocial needs and early referral to palliative care services.This study is an example of a priority setting partnership between clinicians and health researchers. The priorities highlighted by this study guide future decision making for collaborative implementation of research in lung cancer care.
Phillips, JL & Currow, DC 2017, 'Would reframing aged care facilities as a ‘hospice’ instead of a ‘home’ enable older people to get the care they need?', Collegian, vol. 24, no. 1, pp. 1-2.View/Download from: UTS OPUS or Publisher's site
Sanderson, CR, Cahill, PJ, Phillips, JL, Johnson, A & Lobb, EA 2017, 'Patient-centered family meetings in palliative care: A quality improvement project to explore a new model of family meetings with patients and families at the end of life', Annals of Palliative Medicine, vol. 6, pp. S195-S205.View/Download from: UTS OPUS or Publisher's site
© Annals of Palliative Medicine. All rights reserved. Background: Family meetings in palliative care can enhance communication with family members and identify unmet needs. However, the patient’s voice may not be heard. Methods: This pre and post-test quality improvement project was conducted from 2013–2014 and investigated a patient-centered family meeting, which is a different approach to palliative care family meetings, to determine its feasibility and acceptability for patients, family and the palliative care team. Newly admitted patients to an Australian in-patient specialist palliative care unit were invited to ask anyone they wished to join them in a meeting with the palliative care team and to identify issues they wished to discuss. Consenting inpatients were interviewed shortly after admission; participated in a family meeting and re-interviewed 2–3 days after the meeting. Family members provided feedback at the end of the meeting. A focus group was held with staff for feedback on this new approach for family meetings. Meetings were observed, documented and thematically analyzed. Results: Thirty-one newly admitted patients were approached to participate in a family meeting. Eighty-four percent had family meetings and the majority (96%) was attended by the patient. Thematic analysis revealed 69% of patient-centered meetings raised end-of-life concerns and 54% were “family-focused”. Conclusions: Patient-centered family meetings in palliative care were shown to be feasible and acceptable for staff, patients and family members. Many patients and families spontaneously shared end-of-life concerns. A patient-centered approach to family meetings that includes active patient involvement may provide additional and valued opportunities for patients and families to: express mutual concerns, deliver messages of comfort and appreciation, and prepare for death. Further investigation of this approach, including families’ bereavement outcomes, is warranted.
Forber, J, DiGiacomo, M, Carter, B, Davidson, P, Phillips, J & Jackson, D 2016, 'In pursuit of an optimal model of undergraduate nurse clinical education: An integrative review', Nurse Education in Practice, vol. 21, pp. 83-92.View/Download from: UTS OPUS or Publisher's site
Clinical learning experiences are an essential part of nurse education programs. Numerous approaches to clinical education and student supervision exist. The aim of this integrative review was to explore how studies have compared or contrasted different models of undergraduate nurse clinical education. A search of eight databases was undertaken to identify peer-reviewed literature published between 2006 and 2015. Eighteen studies met the inclusion criteria. A diverse range of methodologies and data collection methods were represented, which primarily explored student experiences or perceptions. The main models of undergraduate nurse clinical education identified were: traditional or clinical facilitator model; the preceptorship or mentoring model; and the collaborative education unit model in addition to several novel alternatives. Various limitations and strengths were identified for each model with no single optimal model evident. Thematic synthesis identified four common elements across the models: the centrality of relationships; the need for consistency and continuity; the potential for variety of models; and the viability/sustainability of the model. The results indicate that effective implementation and key elements within a model may be more important than the overarching concept of any given model. Further research is warranted to achieve an agreed taxonomy and relate model elements to professional competence.
Wyllie, A, DiGiacomo, M, Phillips, J, Davidson, PM & Jackson, D 2016, 'Acknowledging attributes that enable the career academic nurse to thrive in the tertiary education sector: a qualitative systematic review', Nurse Education Today, vol. 45, pp. 212-218.View/Download from: UTS OPUS or Publisher's site
Bhattarai, P, Hickman, L & Phillips, JL 2016, 'Pain among hospitalized older people with heart failure and their preparation to manage this symptom on discharge: a descriptive-observational study', CONTEMPORARY NURSE, vol. 52, no. 2-3, pp. 204-215.View/Download from: UTS OPUS or Publisher's site
Hickman, LD, Neville, S, Fischer, T, Davidson, PM & Phillips, JL 2016, 'Editorial: Call to action: greater investment in the registered nurse role is required to improve care outcomes for dementia patients living in residential aged care and their families.', Contemporary nurse, vol. 52, no. 2-3, pp. 137-139.View/Download from: UTS OPUS or Publisher's site
The number of people living with dementia will triple by 2050 (World Health Organization,
2012). Dementia is a complex terminal illness and international global public health priority
(World Health Organization, 2012). Whilst enormous efforts focus on dementia treatments,
there is an equally urgent need to address workforce issues and invest in increasing the registered
nurse role and ratios in residential aged care to meet the projections. In most high-income
countries residential aged care facilities have evolved over the past two to three decades from
homes for the aged into slow-stream hospices, caring for our most vulnerable community
members (Allen, Chapman, O’Connor, & Francis, 2008). This population has complex care
needs requiring the input of a range of health professionals, such as geriatricians, general practitioners,
registered nurses and care assistants (Hickman, Rolley, & Davidson, 2010; Phillips,
Heneka, Hickman, Lam, & Shaw, 2014). Over this same time period the number of registered
or enrolled nurses working in residential aged care facilities has fallen and those that remain
have been largely relegated to managerial responsibilities. As a result the bulk of nursing care
in residential aged care is now provided by a largely unskilled and unregulated workforce.
Without the prerequisite dementia knowledge, skills or training, these staff are supervised by a
small number of registered nurses (Hullick et al., 2016). This is in contrast to emerging evidence
from long-term care and acute care setting, that nurse qualifications impact outcome. It also differs
significantly from standards in countries like Germany, where a minimum RN ratio of 50% is
mandatory (Aiken et al., 2010)
Rao, A, Hickman, LD, Phillips, JL & Sibbritt, D 2016, 'Prevalence and characteristics of Australian women who use prayer or spiritual healing: A nationally representative cross-sectional study', COMPLEMENTARY THERAPIES IN MEDICINE, vol. 27, pp. 35-42.View/Download from: UTS OPUS or Publisher's site
Rao, A, Hickman, LD, Sibbritt, D, Newton, PJ & Phillips, JL 2016, 'Is energy healing an effective non-pharmacological therapy for improving symptom management of chronic illnesses? A systematic review', COMPLEMENTARY THERAPIES IN CLINICAL PRACTICE, vol. 25, pp. 26-41.View/Download from: UTS OPUS or Publisher's site
Vongmany, J, Hickman, LD, Lewis, J, Newton, PJ & Phillips, JL 2016, 'Anxiety in chronic heart failure and the risk of increased hospitalisations and mortality: A systematic review.', European Journal of Cardiovascular Nursing.View/Download from: UTS OPUS or Publisher's site
Anxiety is a serious affective mood disorder that affects many chronic heart failure patients. While there is ample evidence that depression increases hospitalisations and mortality in chronic heart failure patients, it is unclear whether this association also exists for anxiety.The purpose of this study was to report on prospective cohort studies investigating anxiety in chronic heart failure patients and its association with hospitalisations and mortality rates. This systematic review aims to improve the current knowledge of anxiety as a potential prognostic predictor in chronic heart failure populations.This systematic review adheres to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. Studies were identified by accessing electronic databases Embase, Medline, Cumulative Index to Nursing and Allied Health Literature and PsycINFO. Studies were included if they: employed a prospective cohort study design, included chronic heart failure participants with a confirmed clinical diagnosis plus anxiety confirmed by a validated anxiety assessment tool and/or clinical diagnosis and reported longitudinal hospitalisation rates and mortality data in chronic heart failure.Six studies were identified for inclusion. A study investigating hospitalisations and mortality rates found a significant (p<0.05) association solely between hospitalisation and anxiety. Of four studies reporting on hospitalisations alone, only two reported significant associations with anxiety. One study reported rates of mortality alone and identified no significant associations between mortality and anxiety. There was some variation in quality of the studies in regards to their methodology, analysis and reported measures/outcomes, which may have affected the results reported.It is possible that anxiety does predict hospitalisations in chronic heart failure populations, however further research is required to confirm this observation.
Agar, MR, Quinn, SJ, Crawford, GB, Ritchie, CS, Phillips, JL, Collier, A & Currow, DC 2016, 'Predictors of Mortality for Delirium in Palliative Care', JOURNAL OF PALLIATIVE MEDICINE, vol. 19, no. 11, pp. 1205-1209.View/Download from: UTS OPUS or Publisher's site
Athari, F, Davidson, PM, Hillman, KM & Phillips, J 2016, 'Implementing a palliative approach in the intensive care unit: An oxymoron or a realistic possibility?', International Journal of Palliative Nursing, vol. 22, no. 4, pp. 163-165.View/Download from: UTS OPUS or Publisher's site
© 2016 MA Healthcare Ltd. Providing a palliative approach in an ICU is not an oxymoron and is within our reach today. Implementing a palliative approach will better ensure the needs of older patients and their families are met. Investing in developing the palliative care capabilities of ICUs and implementing appropriate policies that support the delivery of best evidence-based palliative care, will help ICU clinicians move seamlessly from implementing intensive therapies focusing on cure to palliation and relief of symptoms and care of families.
Currow, DC, Abernethy, AP, Allcroft, P, Banzett, RB, Bausewein, C, Booth, S, Carrieri-Kohlman, V, Davidson, P, Disler, R, Donesky, D, Dudgeon, D, Ekstrom, M, Farquhar, M, Higginson, I, Janssen, D, Jensen, D, Jolley, C, Krajnik, M, Laveneziana, P, McDonald, C, Maddocks, M, Morelot-Panzini, C, Moxham, J, Mularski, RA, Noble, S, O'Donnell, D, Parshall, MB, Pattinson, K, Phillips, J, Ross, J, Schwartzstein, RM, Similowski, T, Simon, ST, Smith, T, Wells, A, Yates, P, Yorke, J & Johnson, MJ 2016, 'The need to research refractory breathlessness', EUROPEAN RESPIRATORY JOURNAL, vol. 47, no. 1, pp. 342-+.View/Download from: UTS OPUS or Publisher's site
Currow, DC, Phillips, J & Clark, K 2016, 'Using opioids in general practice for chronic non-cancer pain: an overview of current evidence', MEDICAL JOURNAL OF AUSTRALIA, vol. 204, no. 8, pp. 305-+.View/Download from: UTS OPUS or Publisher's site
Currow, DC, Phillips, J & Clark, K 2016, 'Using opioids in general practice for chronic non-cancer pain: an overview of current evidence REPLY', MEDICAL JOURNAL OF AUSTRALIA, vol. 205, no. 7, pp. 334-335.View/Download from: UTS OPUS or Publisher's site
Davidson, PM, Phillips, JL, Dennison-Himmelfarb, C, Thompson, SC, Luckett, T & Currow, DC 2016, 'Providing palliative care for cardiovascular disease from a perspective of sociocultural diversity: a global view', CURRENT OPINION IN SUPPORTIVE AND PALLIATIVE CARE, vol. 10, no. 1, pp. 11-17.View/Download from: UTS OPUS or Publisher's site
Heneka, N, Shaw, T, Rowett, D & Phillips, JL 2016, 'Quantifying the burden of opioid medication errors in adult oncology and palliative care settings: A systematic review', Palliative Medicine, vol. 30, no. 6, pp. 520-532.View/Download from: UTS OPUS or Publisher's site
Hosie, A, Agar, M & Phillips, J 2016, 'Re-thinking our approach to care of the dying person with delirium: Time for a new care paradigm', International Journal of Palliative Nursing, vol. 22, no. 10, pp. 472-473.View/Download from: UTS OPUS or Publisher's site
Hosie, A, Lobb, E, Agar, M, Davidson, P, Chye, R, Lam, L & Phillips, J 2016, 'Measuring delirium point-prevalence in two Australian palliative care inpatient units', INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, vol. 22, no. 1, pp. 13-21.View/Download from: UTS OPUS
Janssen, A, Shaw, T, Nagrial, A, Pene, C, Rabbets, M, Carlino, M, Zachulski, C, Phillips, J, Birnbaum, R, Gandhi, T & Harnett, P 2016, 'An Online Learning Module to Increase Self-Efficacy and Involvement in Care for Patients With Advanced Lung Cancer: Research Protocol', JMIR Research Protocols, vol. 5, no. 3, pp. 1-8.View/Download from: UTS OPUS or Publisher's site
Background: Improving patient care for individuals with lung cancer is a priority due to the increasing burden of the disease globally. One way this can be done is by improving patient self-management capabilities through increasing their self-efficacy. This can improve positive outcomes for patients with chronic conditions and increase their ability to manage the challenges of such illnesses. Unfortunately, patients with chronic conditions often struggle to travel far from home to engage with patient education events, a common means of improving self-efficacy. The development of more accessible tools for improving patient self-efficacy is required to increase quality of life for patients with chronic conditions.
Objective: To evaluate the feasibility of delivering symptom identification and management information to patients with advanced lung cancer using an online program.
Methods: This article describes a pre-post test study to evaluate a Qstream online learning platform to improve patient self-efficacy for managing advanced lung cancer symptoms. Undertaking this program should increase participant knowledge about the side-effects they may experience as a result of their treatment and in turn increase help-seeking behavior and self-efficacy for the participant cohort. Quantitative data collected by the Qstream platform on the completion rates of participants will be used as a tool to evaluate the intervention. Additionally, validated scales will be used to collect data on patient self-efficacy. Qualitative data will also be collected via an exit survey and thematic content analysis of semi-structured interviews.
Results: The research is in the preliminary stages but thus far a protocol has been approved in support of the project. Additionally, advisory committee members have been identified and initial meetings have been undertaken.
Conclusions: Development of new approaches for increasing patient understanding of their care is important to ensure high qualit...
Johnson, MJ, Booth, S, Currow, DC, Lam, LT & Phillips, JL 2016, 'A Mixed-Methods, Randomized, Controlled Feasibility Trial to Inform the Design of a Phase III Trial to Test the Effect of the Handheld Fan on Physical Activity and Carer Anxiety in Patients With Refractory Breathlessness', JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, vol. 51, no. 5, pp. 807-815.View/Download from: UTS OPUS or Publisher's site
Luckett, T, Disler, R, Hosie, A, Johnson, M, Davidson, P, Currow, D, Sumah, A & Phillips, J 2016, 'Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review', NPJ PRIMARY CARE RESPIRATORY MEDICINE, vol. 26.View/Download from: UTS OPUS or Publisher's site
Luckett, TR, Phillips, J, Lintzeris, N, Allsop, D, Lee, J, Solowij, N, Martin, J, Lam, L, Aggarwal, R, McCaffrey, N, Currow, D, Chye, R, Lovell, M, McGregor, I & Agar, M 2016, 'Clinical trials of medicinal cannabis for appetite-related symptoms from advanced cancer: A survey of preferences, attitudes and beliefs among patients willing to consider participation', Internal Medicine Journal, vol. 46, no. 11, pp. 1269-1275.View/Download from: UTS OPUS or Publisher's site
Phillips, J & Ferguson, C 2016, 'New approaches to care for acute stroke patients with uncertain prognoses', International Journal of Palliative Nursing, vol. 22, no. 10, pp. 471-471.View/Download from: UTS OPUS or Publisher's site
Phillips, JL & Agar, MR 2016, 'Exemplary nursing leadership is central to improving care of the dying', Journal of Nursing Management, vol. 24, no. 1, pp. 1-3.View/Download from: UTS OPUS or Publisher's site
Rankin, NM, McGregor, D, Butow, PN, White, K, Phillips, JL, Young, JM, Pearson, SA, York, S & Shaw, T 2016, 'Adapting the nominal group technique for priority setting of evidence-practice gaps in implementation science', BMC MEDICAL RESEARCH METHODOLOGY, vol. 16.View/Download from: UTS OPUS or Publisher's site
Virdun, C & Phillips, J 2015, 'Commentary on Jack B, Baldry C, Groves K, Whelan A, Sephton J and Gaunt K (2013) Supporting home care for the dying: an evaluation of healthcare professionals' perspectives of an individually tailored hospice at home service. Journal of Clinical Nursing 22, 2778-2786', JOURNAL OF CLINICAL NURSING, vol. 24, no. 7-8, pp. 1147-1148.View/Download from: UTS OPUS or Publisher's site
Virdun, C, Brown, N, Phillips, JL, Luckett, T, Agar, M, Green, AR & Davidson, PM 2015, 'Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach', Collegian, vol. 22, no. 4, pp. 421-431.View/Download from: UTS OPUS or Publisher's site
Background: Models of palliative care need to address the unmet needs of children, youngpeople and families.Objective: To undertake an integrative review to identify the key elements of optimal paediatric palliative care from the perspectives of children and young people with palliative care needs and their parents.
Virdun, C, Luckett, T, Davidson, PM & Phillips, J 2015, 'Dying in the hospital setting: A systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important.', Palliative Medicine, vol. 29, no. 9, pp. 774-796.View/Download from: UTS OPUS or Publisher's site
BACKGROUND: The majority of expected deaths occur in hospitals where optimal end-of-life care is not yet fully realised, as evidenced by recent reviews outlining experience of care. Better understanding what patients and their families consider to be the most important elements of inpatient end-of-life care is crucial to addressing this gap. AIM AND DESIGN: This systematic review aimed to ascertain the five most important elements of inpatient end-of-life care as identified by patients with palliative care needs and their families. DATA SOURCES: Nine electronic databases from 1990 to 2014 were searched along with key internet search engines and handsearching of included article reference lists. Quality of included studies was appraised by two researchers. RESULTS: Of 1859 articles, 8 met the inclusion criteria generating data from 1141 patients and 3117 families. Synthesis of the top five elements identified four common end-of-life care domains considered important to both patients and their families, namely, (1) effective communication and shared decision making, (2) expert care, (3) respectful and compassionate care and (4) trust and confidence in clinicians. The final domains differed with financial affairs being important to families, while an adequate environment for care and minimising burden both being important to patients. CONCLUSION: This review adds to what has been known for over two decades in relation to patient and family priorities for end-of-life care within the hospital setting. The challenge for health care services is to act on this evidence, reconfigure care systems accordingly and ensure universal access to optimal end-of-life care within hospitals.
Hickman, LD, Phillips, JL, Newton, PJ, Halcomb, EJ, Al Abed, N & Davidson, PM 2015, 'Multidisciplinary team interventions to optimise health outcomes for older people in acute care settings: A systematic review', Archives of Gerontology and Geriatrics, vol. 61, no. 3, pp. 322-329.View/Download from: UTS OPUS or Publisher's site
Rao, A, Sibbritt, D, Phillips, JL & Hickman, LD 2015, 'Prayer or spiritual healing as adjuncts to conventional care: a cross sectional analysis of prevalence and characteristics of use among women', BMJ Open, vol. 5, no. 6, pp. e007345-e007345.View/Download from: UTS OPUS or Publisher's site
DiGiacomo, M, Lewis, J, Phillips, J, Nolan, M & Davidson, PM 2015, 'The business of death: a qualitative study of financial concerns of widowed older women', BMC Women's Health, vol. 15, pp. 1-10.View/Download from: UTS OPUS or Publisher's site
The feminisation of ageing and increasing number of widowed women in contemporary society has significant implications. Older women are at risk of poor health, social, and economic outcomes upon widowhood. The aim of the study was to describe women’s experiences in the period soon after their husbands’ death, including their financial issues and concerns, and the ways in which these experiences impacted on the transition to widowhood late in life.
This was a longitudinal study using serial in-depth semi-structured interviews with 21 community-dwelling women over the age of 65 in Australia. Verbatim transcripts underwent Interpretive Phenomenological Analysis.
Thematic analysis revealed: 1) administrative burden increases vulnerability; 2) gender roles impact on transitions; and 3) financial adjustments render housing insecurity and health risk. High administrative burden within the context of significant grief and mourning was a defining feature of the early bereavement period. Complicated protracted administrative processes, insensitive interactions, and reminders of loss contributed to distress, anxiety and feelings of demoralisation. Several women identified assumption of household financial management as the most difficult aspect of coping with their husband’s death.
Older women may have unmet needs for assistance with administrative, financial, and legal issues immediately following spousal death and potentially for years afterward. Lack of familiarity and absence of instrumental support with financial and legal issues signal the need for policy reform, resources to improve financial literacy in women throughout the life course, increased advocacy, and consideration of different support and service models.
Luckett, T, Bhattarai, P, Phillips, J, Agar, M, Currow, D, Krastev, Y & Davidson, PM 2015, 'Advance care planning in 21st century Australia: a systematic review and appraisal of online advance care directive templates against national framework criteria', AUSTRALIAN HEALTH REVIEW, vol. 39, no. 5, pp. 552-560.View/Download from: UTS OPUS or Publisher's site
Agar, M, Beattie, E, Luckett, T, Phillips, J, Luscombe, G, Goodall, S, Mitchell, G, Pond, D, Davidson, PM & Chenoweth, L 2015, 'Pragmatic cluster randomised controlled trial of facilitated family case conferencing compared with usual care for improving end of life care and outcomes in nursing home residents with advanced dementia and their families: the IDEAL study protocol', BMC Palliative Care, vol. 14, no. 63.View/Download from: UTS OPUS or Publisher's site
Collier, A, Phillips, JL & Iedema, R 2015, 'The meaning of home at the end of life: A video-reflexive ethnography study', PALLIATIVE MEDICINE, vol. 29, no. 8, pp. 695-702.View/Download from: UTS OPUS or Publisher's site
Currow, DC, Clark, K, Kamal, A, Collier, A, Agar, MR, Lovell, MR, Phillips, JL & Ritchie, C 2015, 'The Population Burden of Chronic Symptoms that Substantially Predate the Diagnosis of a Life-Limiting Illness', JOURNAL OF PALLIATIVE MEDICINE, vol. 18, no. 6, pp. 480-485.View/Download from: UTS OPUS or Publisher's site
Goldsbury, DE, O'Connell, DL, Girgis, A, Wilkinson, A, Phillips, JL, Davidson, PM & Ingham, JM 2015, 'Acute hospital-based services used by adults during the last year of life in New South Wales, Australia: a population-based retrospective cohort study', BMC HEALTH SERVICES RESEARCH, vol. 15.View/Download from: UTS OPUS or Publisher's site
Halkett, GKB, Lobb, EA, Miller, L, Phillips, JL, Shaw, T, Moorin, R, Long, A, King, A, Clarke, J, Fewster, S, Hudson, P, Agar, M & Nowak, AK 2015, 'Protocol for the Care-IS Trial: a randomised controlled trial of a supportive educational intervention for carers of patients with high-grade glioma (HGG)', BMJ OPEN, vol. 5, no. 10.View/Download from: UTS OPUS or Publisher's site
Hosie, A, Lobb, E, Agar, M, Davidson, PM, Chye, R & Phillips, J 2015, 'Nurse perceptions of the Nursing Delirium Screening Scale in two palliative care inpatient units: a focus group study', JOURNAL OF CLINICAL NURSING, vol. 24, no. 21-22, pp. 3276-3285.View/Download from: UTS OPUS or Publisher's site
Koch, J, Everett, B, Phillips, J & Davidson, PM 2015, 'Is there a relationship between the diversity characteristics of nursing students and their clinical placement experiences? A literature review', Collegian, vol. 22, no. 3, pp. 307-318.View/Download from: UTS OPUS or Publisher's site
Background: There has been an increase in ethno-cultural, linguistic, and socio-demographical diversity in students enrolling in undergraduate nursing programs. Diversity also involves other characteristics, but little is known about how diversity impacts on the clinical experiences of nursing students. Aim: The aim of this review is to identify studies which describe the clinical placement experiences of nursing students who have a broad range of diversity characteristics. Methods: Major databases were searched and original studies published from 2003 to 30 June 2013 were eligible for inclusion. An expanded definition of diversity was used to include characteristics such as ethnicity, language, age, religion, gender, socioeconomic status, carer responsibilities, sexual orientation and special needs/disability. Findings: Male gender and speaking English as a second language are diversity characteristics associated with a less positive clinical experience. These students are also more likely to leave their nursing program. Mature-aged students and those from ethnic minority groups were also noted to have a less positive clinical experience and in some cases, this also increased attrition. However, it was difficult to determine the impact of these characteristics alone as they appeared to be linked with other characteristics such as financial difficulties and carer responsibilities in the case of mature-aged students, and language and international student status in the case of ethnicity. Conclusions: Given the significant benefits associated with preparing a diverse nursing workforce, it is an imperative to better understand the impact of diversity on nursing students to ensure that every placement becomes a positive and valuable learning experience. © 2014 Australian College of Nursing Ltd.
Lovell, M, Luckett, T, Boyle, F, Stubbs, J, Phillips, J, Davidson, PM, Olver, I, von Dincklage, J & Agar, M 2015, 'Adaptation of international guidelines on assessment and management of cancer pain for the Australian context', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, vol. 11, no. 2, pp. 170-177.View/Download from: UTS OPUS or Publisher's site
Lovell, MR, Phillips, J, Luckett, T & Agar, M 2015, 'Improving the system for managing cancer pain', INTERNAL MEDICINE JOURNAL, vol. 45, no. 3, pp. 361-362.View/Download from: UTS OPUS or Publisher's site
Phillips, J, Dal Grande, E, Ritchie, C, Abernethy, AP & Currow, DC 2015, 'A population-based cross-sectional study that defined normative population data for the Life-Space Mobility Assessment-composite score.', Journal of pain and symptom management, vol. 49, no. 5, pp. 885-893.View/Download from: UTS OPUS or Publisher's site
Mobility is linked to health status and quality of life. Life-Space Mobility Assessment (LSMA; range 0-120) measures the spatial extent of people's excursion and physical support needs over the preceding month.The aim of this study was to generate normative population data for an LSMA-Composite (LSMA-C) score, irrespective of age or health service contact and explore the LSM of people with diabetes, current asthma, arthritis, and osteoporosis.LSMA questions were included in the 2011 South Australian Health Omnibus Survey, a multistage, systematic, and clustered sample of household face-to-face interviews. Sociodemographic and clinical variables were explored in relation to LSMA scores using descriptive, univariable, and multivariable analyses and receiver operator curves.For the 3032 respondents, the mean LSMA score was 98.3 (SD 20.3; median 100; interquartile range 34 [86-120]; range 6-120). Five percent of respondents scored <60, 11% scored between ≥ 60 and 79, 27% scored between ≥ 80 and 99, and the remainder scored between 100 and 120. After 55 years of age, LSMA-C scores declined, more so in females. In multivariable analysis, declining scores were associated with being female, being older, living in rural areas, lower educational attainment, not working, lower household income, and higher numbers of chronic conditions (R(2) = 0.35, P < 0.001). The receiver operator curve demonstrated a highly specific but relatively insensitive measure.Having controlled for known confounders, the male/female difference cannot be easily explained. These data will help to contextualize studies in the future that use the LSMA-C score.
Integrating a palliative approach with active management can help identify and address the significant needs of patients with advanced heart failure.
Introducing a palliative approach to care of patients with heart failure while still attempting to modify the disease course through treatment can improve patients’ quality of life.
Patients who would benefit from a palliative approach can be better identified by tools that assess needs rather than prognosis.
Optimal palliative care of patients with heart failure integrates ongoing active management with specific interventions to manage symptoms such as breathlessness and oedema.
A plan for deactivation of implantable cardioverter defibrillators at the end of life should be devised and discussed with patients.
Patients should be given the opportunity to reflect on and communicate their preferences for end-of-life care early in the disease process.
Phillips, JL, Lovell, M, Luckett, T, Agar, M, Green, AR & Davidson, PM 2015, 'Australian survey of current practice and guideline use in adult cancer pain assessment and management: The community nurse perspective', Collegian, vol. 22, no. 1, pp. 33-41.View/Download from: UTS OPUS or Publisher's site
Cancer pain remains a major public health concern. Despite effective treatmentsbeing available to manage the majority of cancer pain, this debilitating symptom is frequentlyunder treated. As cancer has becomes a chronic disease a range of health professionals, includ-ing community nurses in Australia are increasingly caring for people living with cancer relatedpain. Yet, little is known about community nurses capacity to assess and manage cancer painin accordance with best available evidence.
Luckett, T, Phillips, JL, Agar, M, Virdun, C, Green, AR & Davidson, PM 2014, 'Elements of effective palliative care models: a rapid review', BMC Health Services Research, vol. 14, pp. 1-22.View/Download from: UTS OPUS or Publisher's site
Background: Population ageing, changes to the profiles of life-limiting illnesses and evolving societal attitudes prompt a critical evaluation of models of palliative care. We set out to identify evidence-based models of palliative care to inform policy reform in Australia.
Hickman, LD, Kelly, H & Phillips, JL 2014, 'EVITEACH: A study exploring ways to optimise the uptake of evidence-based practice to undergraduate nurses', NURSE EDUCATION IN PRACTICE, vol. 14, no. 6, pp. 598-604.View/Download from: UTS OPUS or Publisher's site
Phillips, JL, Andrews, L & Hickman, L 2014, 'Role ambiguity, role conflict or burnout: are these areas of concern for Australian palliative care volunteers?', American Journal of Hospice and Palliative Medicine, vol. 31, no. 7, pp. 749-755.View/Download from: UTS OPUS or Publisher's site
To determine whether burnout, role ambiguity, or conflict affects Australian hospice volunteers.
Phillips, JL, Heneka, NA, Hickman, L, Lam, L & Shaw, T 2014, 'Impact of a novel online learning module on specialist palliative care nurses' pain assessment competencies and patients' reports of pain: Results from a quasi-experimental pilot study', Palliative Medicine, vol. 28, no. 6, pp. 521-529.View/Download from: UTS OPUS or Publisher's site
Background: Pain is a complex multidimensional phenomenon moderated by consumer, provider and health system factors. Effective pain management cuts across professional boundaries, with failure to screen and assess contributing to the burden of unrelieved pain.
Chan, RJ, Webster, J, Phillips, J & Currow, DC 2014, 'The withdrawal of the Liverpool Care Pathway in the United Kingdom: what are the implications for Australia?', The Medical journal of Australia, vol. 200, no. 10, pp. 573-573.View/Download from: UTS OPUS or Publisher's site
Integrated care pathways are documents that outline the essential steps of multidisciplinary care in dealing with a specific clinical problem.1 They can be used to introduce best clinical practice, to ensure that the most appropriate management occurs at the most appropriate time, and that it is provided by the most appropriate health professional. By providing clear instructions, decision support and a framework for clinician–patient interactions, care pathways guide the systematic provision of best evidence-based care. The Liverpool Care Pathway for the Dying Patient (LCP) is an example of an integrated care pathway — it was designed in the United Kingdom in the 1990s to guide care for people with cancer who were in their last days of life and expected to die in hospital.2,3 This pathway evolved out of a recognised local need to better support non-specialist palliative care providers to care for patients dying of cancer in their inpatient units. Historically, despite the many people in acute care settings whose treatment intent was palliative,4 dying patients in these settings tended to receive insufficient attention from senior medical and nursing staff.5 As the quality of end-of-life care was considered inadequate, much could be learned from the way patients were cared for by palliative care services.5 The LCP was a strategy to improve this end-of-life care and was based on the care received by those dying in the palliative care setting.2,3
Clark, K, Byfieldt, N, Green, M, Saul, P, Lack, J & Phillips, JL 2014, 'Dying in two acute hospitals: would usual care meet Australian national clinical standards?', Australian Health Review, vol. 38, no. 2, pp. 223-229.View/Download from: UTS OPUS or Publisher's site
The Australian Commission for Quality and Safety in Health Care (ACQSHC) has articulated 10 clinical standards with the aim of improving the consistency of quality healthcare delivery. Currently, the majority of Australians die in acute hospitals. But despite this, no agreed standard of care exists to define the minimum standard of care that people should accept in the final hours to days of life. As a result, there is limited capacity to conduct audits that focus on the gap between current care and recommended care. There is, however, accumulating evidence in the end of life literature to define which aspects of care are likely to be considered most important to those people facing imminent death. These themes offer standards against which to conduct audits. This is very apt given the national recommendation that healthcare should be delivered in the context of considering peoples wishes while always treating people with dignity and respect. This work describes a gap analysis undertaken to explore if issues defined as important by people facing imminent death would have been addressed by usual care of the dying in general hospital wards. The specific issues examined included the documentation that was available to define that this person was likely to die soon and how engaged the person dying seemed to be in discussions, how the person was monitored to ensure distressing symptoms were addressed when necessary and what investigations were considered necessary after the time the person was identified as dying.
Hosie, A & Phillips, J 2014, 'Editorial: Nurses' role in improving interdisciplinary delirium care in inpatient settings: steps for action', JOURNAL OF CLINICAL NURSING, vol. 23, no. 21-22, pp. 2995-2997.View/Download from: UTS OPUS or Publisher's site
Hosie, A, Agar, M, Lobb, E, Davidson, PM & Phillips, JL 2014, 'Palliative care nurses' recognition and assessment of delirium symptoms: a qualitative study using Critical Incident Technique.', International Journal of Nursing Studies, vol. 51, no. 10, pp. 1353-1365.View/Download from: UTS OPUS or Publisher's site
Delirium is prevalent in palliative care inpatient settings and management is often challenging. Despite nurses integral patient care role, little is known about palliative care nurses capacity to recognise, assess and respond to patients delirium symptoms.
Hosie, A, Lobb, E, Agar, M, Davidson, PM & Phillips, J 2014, 'Identifying the barriers and enablers to palliative care nurses' recognition and assessment of delirium symptoms: a qualitative study.', Journal of pain and symptom management, vol. 48, no. 5, pp. 815-830.View/Download from: UTS OPUS or Publisher's site
CONTEXT: Delirium is underrecognized by nurses, including those working in palliative care settings where the syndrome occurs frequently. Identifying contextual factors that support and/or hinder palliative care nurses' delirium recognition and assessment capabilities is crucial, to inform development of clinical practice and systems aimed at improving patients' delirium outcomes. OBJECTIVES: The aim of the study was to identify nurses' perceptions of the barriers and enablers to recognizing and assessing delirium symptoms in palliative care inpatient settings. METHODS: A series of semistructured interviews, guided by critical incident technique, were conducted with nurses working in Australian palliative care inpatient settings. A hypoactive delirium vignette prompted participants' recall of delirium and identification of the perceived factors (barriers and enablers) that impacted on their delirium recognition and assessment capabilities. Thematic content analysis was used to analyze the qualitative data. RESULTS: Thirty participants from nine palliative care services provided insights into the barriers and enablers of delirium recognition and assessment in the inpatient setting that were categorized as patient and family, health professional, and system level factors. Analysis revealed five themes, each reflecting both identified barriers and current and/or potential enablers: 1) value in listening to patients and engaging families, 2) assessment is integrated with care delivery, 3) respecting and integrating nurses' observations, 4) addressing nurses' delirium knowledge needs, and 5) integrating delirium recognition and assessment processes. CONCLUSION: Supporting the development of palliative care nursing delirium recognition and assessment practice requires attending to a range of barriers and enablers at the patient and family, health professional, and system levels.
Koch, J, Everett, B, Phillips, J & Davidson, PM 2014, 'Diversity characteristics and the experiences of nursing students during clinical placements: A qualitative study of student, faculty and supervisors' views.', Contemporary Nurse, vol. 49, pp. 15-26.View/Download from: UTS OPUS or Publisher's site
Background: Little is known about which diversity characteristics if any, impact on nursing students' clinical placements or how these may affect the quality of their learning experiences. There is therefore a need to better understand these effects not only from the student's perspective but also from the perspective of the staff who supervise them, in order to ensure students obtain maximal benefit from their placements. AIM: To describe the clinical experiences of nursing students and the diversity characteristics that affect this learning experience. METHODS: Data were collected from a series of open-ended questions embedded within a larger anonymous web-based survey, from August 2011 to March 2012. Participants included first, second and third year undergraduate Bachelor of Nursing students (N = 704) and faculty members involved in the clinical learning environment (N = 165) from seven Australian universities. FINDINGS: Qualitative findings were clustered into three main themes: differences, difficulty and discrimination, each with three sub-themes. CONCLUSION: FINDINGS suggest a need to offer appropriate support for nursing students who feel different because of diversity characteristics. Whilst some of the participant perceptions are confronting they provide valuable insights for universities developing curricula and the clinical placement facilities where students obtain their experience.
Cancer pain assessment enables diagnosis of the cause and mechanism of cancer pain and also the impact of the pain on the patient. Sensitive, empathic communication is important for the ongoing relationship between GPs and patients with cancer.
Lovell, MR, Luckett, T, Boyle, FM, Phillips, J, Agar, M & Davidson, PM 2014, 'Patient Education, Coaching, and Self-Management for Cancer Pain', JOURNAL OF CLINICAL ONCOLOGY, vol. 32, no. 16, pp. 1712-+.View/Download from: UTS OPUS or Publisher's site
Ni, P, Zhou, J, Wang, ZX, Nie, R, Phillips, J & Mao, J 2014, 'Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study', JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION, vol. 15, no. 10, pp. 751-756.View/Download from: UTS OPUS or Publisher's site
O'Connell, DL, Goldsbury, DE, Davidson, PM, Girgis, A, Phillips, JL, Piza, M, Wilkinson, A & Ingham, JM 2014, 'Acute hospital-based services utilisation during the last year of life in New South Wales, Australia: methods for a population-based study', BMJ Open, vol. Online (4), no. 3.View/Download from: UTS OPUS or Publisher's site
The aim of this study is to describe healthcare utilisation in the last year of life for people in Australia, to help inform health services planning. The methods and datasets that are being used are described in this paper.
Phillips, J 2014, 'A service verses an approach: The importance of building primary palliative care', International Journal of Palliative Nursing, vol. 20, no. 10, p. 471.View/Download from: UTS OPUS or Publisher's site
Phillips, JL, Lam, L, Luckett, T, Agar, M & Currow, D 2014, 'Is the Life Space Assessment applicable to a palliative care population? : A brief methodological report on its relationship to measures of performance and quality of life. Brief Methodological Report.', Journal of Pain and Symptom Management, vol. 47, no. 6, pp. 1121-1127.View/Download from: UTS OPUS or Publisher's site
The spatial environments that palliative care patients frequent for business and leisure constrict as their disease progresses and their physical functioning deteriorates. Measuring a persons movement within his or her own environment is a clinically relevant and patient-centered outcome because it measures function in a way that reflects actual and not theoretical participation.
Yee, J, Davis, GM, Beith, JM, Wilcken, N, Currow, D, Emery, J, Phillips, J, Martin, A, Hui, R, Harrison, M, Segelov, E & Kilbreath, SL 2014, 'Physical activity and fitness in women with metastatic breast cancer.', Journal of Cancer Survivorship, vol. 8, no. 4, pp. 647-656.View/Download from: UTS OPUS or Publisher's site
PURPOSE: This study aimed to explore differences in physical activity and fitness between women with metastatic breast cancer compared to healthy controls and factors associated with their physical activity levels. METHODS: Seventy-one women with metastatic breast cancer, aged (mean (SD)) 57.7 (9.5) and 2.9 (3.1) years after the onset of metastatic disease, and 71 healthy controls aged 55.0 (9.4) years participated. Of those with metastatic disease, 27% had bone-only metastases, 35% visceral-only metastases and 38% bone and visceral metastases. Patient-reported outcomes and physical measures of muscle strength and aerobic fitness assessments were obtained. Participants wore a SenseWear® physical activity monitor over 7 days, and the average steps/day and the time spent in moderate-to-vigorous intensity physical activity were determined. RESULTS: Women with metastases were significantly (i) less aerobically fit than the control group (25.3 (5.4) vs. 31.9 (6.1) mL • kg(-1) • min(-1); P < 0.001); (ii) weaker (e.g. lower limb strength for the metastatic and control groups was 53.5 (23.7) vs. 76.0 (27.4) kg, respectively; P < 0.001); (iii) less active, with the metastatic group attaining only 56% of the mean daily step counts of the healthy women; and (iv) more symptomatic, reporting higher levels of fatigue and dyspnoea (P < 0.001). CONCLUSION: Women living in the community with metastatic breast cancer possessed lower aerobic fitness, reduced muscular strength and less daily physical activity compared to healthy counterparts. They also experienced poorer functioning and higher symptom burden. IMPLICATIONS FOR CANCER SURVIVORS: Women living with metastatic breast cancer may benefit from a physical activity programme to address their physical impairments.
DiGiacomo, M, Lewis, J, Nolan, M, Phillips, JL & Davidson, PM 2013, 'Transitioning From Caregiving to Widowhood', Journal of Pain and Symptom Management, vol. 46, no. 6, pp. 817-825.View/Download from: UTS OPUS or Publisher's site
Older women commonly assume a caregiving role for their husbands at the end of life and are more vulnerable to poorer health, well-being, and social and economic challenges. The aim of this study was to ascertain older women's experiences of spousal caregiving at the end of life and the ways in which this experience impacts on the transition to widowhood.
DiGiacomo, M, Lewis, J, Nolan, MT, Phillips, J & Davidson, PM 2013, 'Health transitions in recently widowed older women: a mixed methods study', BMC Health Services Research, vol. 13, no. 143.View/Download from: UTS OPUS or Publisher's site
Breaden, K, Phillips, JL, Agar, M, Grbich, C, Abernethy, A & Currow, D 2013, 'The clinical and social dimension of prescribing home oxygen for the relief of refractory dyspnea', Journal Of Palliative Medicine, vol. 16, no. 3, pp. 268-273.View/Download from: UTS OPUS or Publisher's site
Background: Chronic breathlessness is a significant problem in palliative care and oxygen is often prescribed in an attempt to ameliorate it. Often, this prescription falls outside the current funding guidelines for long-term home oxygen use. The aim of this qualitative study was to understand the factors that most influence Australian specialist palliative care nurses' initiation of home oxygen for their patients. Methods: A series of focus groups were held across three states in Australia in 2011 involving specialist palliative care nurses. The invitation to the nurses was sent by e-mail through their national association. Recorded and transcribed data were coded for themes and subthemes. A summary, which included quotes, was provided to participants to confirm. Results: Fifty-one experienced palliative care nurses participated in seven focus groups held in three capital cities. Two major themes were identified: 1) logistic/health service issues (not reported in this paper as specific to the Australian context) involving the local context of prescribing and, 2) clinical care issues that involved assessing the patient's need for home oxygen and ongoing monitoring concerns. Palliative care nurses involved in initiating or prescribing oxygen often reported using oxygen as a second-line treatment after other interventions had been trialed and these had not provided sufficient symptomatic benefit. Safety issues were a universal concern and a person living alone did not emerge as a specific issue among the nurses interviewed. Conclusion: The role of oxygen is currently seen as a second-line therapy in refractory dyspnea by specialist palliative care nurses.
Crawford, G, Agar, M, Quinn, S, Phillips, JL, Litster, C, Michael, N, Doogue, M, Rowett, D & Currow, D 2013, 'Pharmacovigilance in hospice/palliative care. Net effect of haloperidol for delirium', Journal Of Palliative Medicine, vol. 16, no. 11, pp. 1335-1341.View/Download from: UTS OPUS or Publisher's site
Prescribing practice in hospice/palliative care is largely extrapolated from other areas of clinical practice, with few studies of net medication effects (benefits and harms) in hospice/palliative care to guide prescribing decisions. Hospice/palliative care patients differ in multiple ways from better studied participant groups, hence the applicability of studies in other participant groups is uncertain. Haloperidol, a butyrophenone derivative and dopamine antagonist, is commonly prescribed for nausea, vomiting, and delirium in hospice/palliative care. Its frequent use in delirium occurs despite little evidence of the effect of antipsychotics on the untreated course of delirium. The aim of this study was to examine the immediate and short-term clinical benefits and harms of haloperidol for delirium in hospice/palliative care patients. METHOD: A consecutive cohort of participants from 14 centers across four countries who had haloperidol commenced for delirium were recruited. Data were collected at three time points: baseline, 48 hours (clinical benefits), and day 10 (clinical harms). Investigators were also able to report clinical harms at any time up to 14 days after it was commenced. RESULTS: Of the 119 participants included, the average dose was 2.1?mg per 24 hours; 42 of 106 (35.2%) reported benefit at 48 hours. Harm was reported in 14 of 119 (12%) at 10 days, the most frequent being somnolence (n=11) and urinary retention (n=6). Seven participants had their medication ceased due to harms (2 for somnolence and 2 for rigidity). Approximately half (55/119) were still being treated with haloperidol after 10 days. CONCLUSION: Overall, 1 in 3 participants gained net clinical benefit at 10 days.
In parallel with the rapid development of oncology in Australia, palliative and supportive care has evolved rapidly. The sponsorship for such development was largely generated by oncology services in response to unmet needs that were encountered daily. Development of state, territory and national strategies has mirrored the professional development in service delivery, education (of existing practitioners and tomorrows clinicians) and research. More recently, national programs are delivering better outcomes for palliative care patients and their families, world-leading clinical research, improved access to essential medications in the community and the ability to access quality evidence to inform practice and policy. These initiatives provide a valuable foundation for continuing to improve access to high quality clinical care wherever people live.
Hosie, A, Davidson, PM, Agar, M, Sanderson, CR & Phillips, JL 2013, 'Delirium prevalence, incidence, and implications for screening in specialist palliative care inpatient settings: A systematic review', Palliative Medicine, vol. 27, no. 6, pp. 486-498.View/Download from: UTS OPUS or Publisher's site
Background: Delirium is a serious neuropsychiatric syndrome frequently experienced by palliative care inpatients. This syndrome is under-recognized by clinicians. While screening increases recognition, it is not a routine practice. Aim and design: This systematic review aims to examine methods, quality, and results of delirium prevalence and incidence studies in palliative care inpatient populations and discuss implications for delirium screening.
Luckett, T, Davidson, PM, Lam, L, Phillips, JL, Currow, D & Agar, M 2013, 'Do Community Specialist Palliative Care Services That Provide Home Nursing Increase Rates of Home Death for People with Life-Limiting Illnesses? A Systematic Review and Meta-Analysis of Comparative Studies', Journal of Pain and Symptom Management, vol. 45, no. 2, pp. 279-297.View/Download from: UTS OPUS or Publisher's site
Context. Systematic reviews and meta-analyses suggest that community specialist palliative care services (SPCSs) can avoid hospitalizations and enable home deaths. But more information is needed regarding the relative efficacies of different models. Family caregivers highlight home nursing as the most important service, but it is also likely the most costly.
Phillips, JL, West, P, Davidson, PM & Agar, M 2013, 'Does case conferencing for people with advanced dementia living in nursing homes improve care outcomes: Evidence from an integrative review?', International Journal of Nursing Studies, vol. 50, no. 8, pp. 1122-1135.View/Download from: UTS OPUS or Publisher's site
Objective: This integrative review aimed to appraise the evidence for case conferencing as an intervention to improve palliative care outcomes for older people living with advanced dementia in nursing homes.
Prouse, J & Phillips, JL 2013, 'Care of older people living with cancer: The role of the specialist nurse and allied health professionals', Cancer Forum, vol. 37, no. 3, pp. 226-239.View/Download from: UTS OPUS
Older people with cancer have unique physiological, psychological and social needs. This article has identified several key actions that can readily be integrated into existing cancer care services to improve care outcomes for older people referred for cancer treatment, namely: embedding an integrated assessment into the initial visit to ensure early identification of symptoms and unmet needs; monitoring the effectiveness of cancer treatment and changing needs; optimising function through early and appropriate referral; maintaining GP contact; ensuring the provision of well-coordinated care; addressing psychosocial, emotional and financial needs; and minimising caregiver burden.
Agar, M, Draper, B, Phillips, JL, Collier, A, Harlum, J, Currow, D & Phillips, PA 2012, 'Making decisions about delirium: a qualitative comparison of decision making between nurses working in palliative care, aged care, aged care psychiatry, and oncology.', Palliative Medicine, vol. 26, no. 7, pp. 887-896.View/Download from: UTS OPUS or Publisher's site
Background: Delirium has a significant impact on nursing practice from diagnosis and management, with under-detection and variable management of delirium being international problems. This study aimed to explore nurses' assessment and management of delirium when caring for people with cancer, the elderly or older people requiring psychiatric care in the inpatient setting. Methods: Participants in this qualitative study were nurses working in Australian public hospital inpatient dedicated units in palliative care, aged care (geriatrics), aged care (geriatric) psychiatry and oncology. Semi-structured interviews were used to explore nurses' views about specific areas of delirium assessment and management. Purposive sampling was used and interviews conducted until thematic saturation reached. A thematic content analysis was performed from a grounded theory perspective. Results: A total of 40 participants were included in the study. The analysis revealed four broad analytical themes: (1) superficial recognition and understanding of the operational definition of delirium or recognition of delirium as a syndrome; (2) nursing assessment: investigative versus a problem solving approach; (3) management: maintaining dignity and minimizing chaos; and (4) distress and the effect on others. Discussion: Nurses have limited knowledge of the features of delirium regardless of their specialty discipline. Delirium was uniformly identified as a highly distressing experience for patients, families and staff alike. The majority of nurses had a superficial understanding of delirium management, and adopted a task-orientated approach aimed at addressing the more noticeable problems. These findings have implications for both education and knowledge translation. Innovative approaches are needed to align health professional behaviours with best evidence delirium care.
Disler, RT, Currow, DC, Phillips, JL, Davidson, PM, Johnson, MJ & Smith, T 2012, 'Interventions to support a palliative care approach in patients with chronic obstructive pulmonary disease: An integrative review.', International Journal of Nursing Studies, vol. 49, no. 11, pp. 1443-1458.View/Download from: UTS OPUS or Publisher's site
End-stage chronic obstructive pulmonary disease (COPD) is a debilitating, life-limiting condition. A palliative approach is appropriate for individuals with end-stage COPD, yet currently few interventions embrace this holistic, multidisciplinary and inclusive perspective.
Phillips, JL, Piza, M & Ingham, JM 2012, 'Continuing professional development programmes for rural nurses involved in palliative care delivery: an integrative review', Nurse Education Today, vol. 32, no. 4, pp. 385-392.View/Download from: UTS OPUS or Publisher's site
Purpose To review published studies evaluating the impact of continuing professional development (CPD) programmes on rural nurses palliative care capabilities in order to inform the development of targeted learning activities for this population. Design An integrative review. Methods Searches of key electronic databases and the World Wide Web was undertaken using key words, followed by hand searching for relevant articles. All studies were reviewed by two authors using a critical appraisal tool and level of evidence hierarchy. Results The search strategies generated 74 articles, with 10 studies meeting the inclusion criteria. All of these studies evaluated palliative care CPD programmes involving rural nurses which focused on increasing palliative care capabilities. The evidence generated by this review was limited by the absence of randomised controlled trials. A level III-1 study, with a small sample size provided the highest level of evidence, but the lack of control negated the investigators' capacity to confirm causality. Few studies measured the impact of CPD on the quality of care or utilised novel technology to address the tyranny of distance. Despite, these limitations valuable insights into the barriers and facilitators to engaging rural nurses in palliative care learning opportunities were identified.
Phillips, JL, Rolley, JX & Davidson, PM 2012, 'Developing Targeted Health Service Interventions Using the PRECEDE-PROCEED Model: Two Australian Case Studies', Nursing Research and Practice, vol. 2012, pp. 1-8.View/Download from: UTS OPUS or Publisher's site
Aims and Objectives. This paper provides an overview of the applicability of the PRECEDE-PROCEED Model to the development of targeted nursing led chronic illness interventions. Background. Changing health care practice is a complex and dynamic process that requires consideration of social, political, economic, and organisational factors. An understanding of the characteristics of the target population, health professionals, and organizations plus identification of the determinants for change are also required. Synthesizing this data to guide the development of an effective intervention is a challenging process. The PRECEDE-PROCEED Model has been used in global health care settings to guide the identification, planning, implementation, and evaluation of various health improvement initiatives. Design. Using a reflective case study approach, this paper examines the applicability of the PRECEDE-PROCEED Model to the development of targeted chronic care improvement interventions for two distinct Australian populations: a rapidly expanding and aging rural population with unmet palliative care needs and a disadvantaged urban community at higher risk of cardiovascular disease. Results. The PRECEDE-PROCEED Model approach demonstrated utility across diverse health settings in a systematic planning process. In environments characterized by increasing health care needs, limited resources, and growing community expectations, adopting planning tools such as PRECEDE-PROCEEDModel at a local level can facilitate the development of the most effective interventions. Relevance to Clinical Practice. The PRECEDE-PROCEED Model is a strong theoretical model that guides the development of realistic nursing led interventions with the best chance of being successful in existing health care environments.
Davidson, PM, Jiwa, M, Goldsmith, AJ, McGrath, S, DiGiacomo, M, Phillips, JL, Agar, M, Newton, PJ & Currow, D 2011, 'Decisions for lung cancer chemotherapy: the influence of physician and patient factors', Supportive Care in Cancer, vol. 19, no. 8, pp. 1261-1266.View/Download from: UTS OPUS or Publisher's site
Purpose The purpose of this study is to review the literature examining how the beliefs and behaviours of physicians and patients influence clinical communication, doctor-patient interaction and treatment decisions for lung cancer treatment. Methods Literature was obtained via electronic database searches and hand searching of journals from 1990 to 2011. Results Wide variability in perceptions of the value of chemotherapy in lung cancer is present among both physicians and patients. There is a mismatch in the degree patients and physicians weigh survival, such that patients value survival benefits highly whilst physicians strongly emphasize toxicity and associated symptoms. This lack of congruence between patients and clinicians is influenced by a range of factors and has implications for treatment decisions, long-term survival and quality of life in people affected by lung cancer. Conclusion The divergence of treatment priorities indicates a need for improved communication strategies addressing the needs and concerns of both patients and clinicians. Patients should understand the benefits and risks of treatment options, while clinicians can gain a greater awareness of factors influencing patients' decisions on treatments. Reflecting these perspectives and patient preferences for lung cancer treatment in clinical guidelines may improve clinician awareness.
Currow, D, Burns, C, Agar, M, Phillips, JL, McCaffrey, N & Abernethy, A 2011, 'Palliative caregivers who would not take on the role again', Journal of Pain and Symptom Management, vol. 41, no. 4, pp. 661-672.View/Download from: UTS OPUS or Publisher's site
Abstract Context Health and social services rely heavily on family and friends for caregiving at the end of life. Objectives This study sought to determine the prevalence and factors associated with an unwillingness to take on the caregiving role again by interviewing former caregivers of palliative care patients. Methods The setting for this study was South Australia, with a population of 1.6 million people (7% of the Australian population) and used the South Australian Health Omnibus, an annual, face-to-face, cross-sectional, whole-of-population, multistage, systematic area sampling survey, which seeks a minimum of 3000 respondents each year statewide. One interview was conducted per household with the person over the age of 15 who most recently had a birthday. Using two years of data (n = 8377; 65.4% participation rate), comparisons between those who definitely would care again and those who would not was undertaken.
Hosie, A, Fazekas, B, Shelby-James, T, Mills, E, Byfieldt, N, Margitanovic, V, Hunt, J & Phillips, JL 2011, 'Palliative Care Clinical Trials: How nurses are contributing to ethical, integrated and evidence based care of palliative care patients participating in clinical trials', International Journal of Palliative Nursing, vol. 17, no. 5, pp. 224-230.View/Download from: UTS OPUS or Publisher's site
The aim of this paper is to describe the emerging role of the palliative care clinical trials nurse in an era of evidence-based practice and increasing clinical trial activity in palliative care settings across Australia. An overview of the current clinical trials work is provided, with a focus on three aspects of clinical trials nursing practice that have significant implications for patients: managing the consent process, integrating clinical trials into multidisciplinary care, and establishing and building the evidence base to inform practice in palliative care settings. Clinical trials roles provide palliative care nurses with an opportunity to contribute to clinical research, help expand palliative care's evidence base, and develop their own research capabilities.
Phillips, J 2011, 'Narrowing the palliative care gap for Aboriginal and Torres Strait Islanders: the Practice Nurse Role.', Primary Times: Supporting Nurses in Primary Care, vol. 11, no. 4, pp. 19-21.
Phillips, JL 2011, 'A population based approach to palliative care', Primary Times, vol. 11, no. 3, pp. 30-31.
Care at the end of life is not just the responsibility of the palliative care community, but rather ‘everyone’s business’.
The role of the general practitioner (GP) and primary health care nurse is fundamental to the provision of high quality care for people living in the community who are approaching the end of their life.
Phillips, JL, Halcomb, E & Davidson, PM 2011, 'End-of-Life Care Pathways in Acute and Hospice Care: An Integrative Review', Journal of Pain and Symptom Management, vol. 41, no. 5, pp. 940-955.View/Download from: UTS OPUS or Publisher's site
Context. Over the past decade, there has been widespread adoption of end-of life care pathways as a tool to better manage care of the dying in a variety of care settings. The adoption of various end-of-life care pathways has occurred despite lack of robust evidence for their use. Objectives. This integrative review identified published studies evaluating the impact of an end-of-life care pathway in the acute and hospice care setting from January 1996 to April 2010. Methods. A search of the electronic databases Scopus and Cumulative Index of Nursing and Allied Health Literature as well as Medline and the World Wide Web were undertaken. Articles were reviewed by two authors using a critical appraisal tool. Results. The search revealed 638 articles. Of these, 26 articles met the inclusion criteria for this integrative review. No randomized controlled trials were reported. The majority of these articles reported baseline and post implementation pathway chart audit data, whereas a smaller number were local, national, or international benchmarking studies. Most of the studies emerged from the United Kingdom, with a smaller number from the United States, The Netherlands, and Australia. Conclusion. Existing data demonstrate the utility of the end-of-life pathway in improving care of the dying. The absence of randomized controlled trial data, however, precludes definitive recommendations and underscores the importance of ongoing research.
Phillips, JL, Salamonson, Y & Davidson, PM 2011, 'An instrument to assess nurses' and care assistants' self-efficacy to provide a palliative approach to older people in residential aged care: A validation study', International Journal of Nursing Studies, vol. 48, no. 9, pp. 1096-1100.View/Download from: UTS OPUS or Publisher's site
Objective: This study investigated the psychometric properties of the 'Palliative care self-efficacy scale', an instrument designed to assess clinicians' degree of confidence in engaging in patient and family interactions at the end-of-life. Design: The
Ramjan, JM, Costa, CM, Hickman, L, Kearns, M & Phillips, JL 2010, 'Integrating palliative care content into a new undergraduate nursing curriculum: The University of Notre Dame, Australia - Sydney experience', Collegian, vol. 17, no. 2 Special Issue, pp. 85-91.View/Download from: UTS OPUS or Publisher's site
The majority of society's deaths occur in a health care environment. Regardless of whether a death occurs in acute care, hospice, residential aged care or community settings, nurses are the health professionals that will spend the largest proportion of time with the patient who has a terminal condition and their families. As few nurses have specialist palliative care qualifications it is essential that nursing education prepares graduates to achieve the core capabilities required for the delivery of best evidenced based palliative care. This reality makes the integration of palliative care content into the undergraduate nursing curricula an important priority. This paper aims to describe how palliative care content has been embedded throughout the three-year University of Notre Dame Australia, Sydney (UNDA) undergraduate nursing degree. Method: The School of Nursing at the University of Notre Dame Australia, Sydney campus is committed to ensuring that students graduate with the capabilities to deliver appropriate care to people with requiring end-of-life care. The establishment of this new School of Nursing coincided with the release of the 'The Palliative Care Curricula for Undergraduates Program' (PCC4U) learning resources. These resources have been integrated into relevant units across the three-year nursing curricula. The nursing curriculum has been design to supports the integration of palliative care knowledge into clinical practice. The Palliative Care Curricula for Undergraduates Program learning resources offer engaging palliative care case studies and scenarios for academics to utilise. Adopting an iterative approach where palliative care content is spiralled across multiple units provides opportunities for undergraduate nursing students to sequentially build and consolidate their palliative care capabilities.
Davidson, PM & Phillips, JL 2010, 'Facing the inevitable - death from chronic illness', EoL-Towards quality care at the end of life, vol. 2, no. 1, pp. 14-15.
Globally there is an epidemic of chronic illnesses challenging individuals, health care providers and systems.9 In contemporary society, many people live for extended periods with conditions which were in previous decades an immediate death sentence. However, these welcome changes in longevity do not defy the future certainty of death.
Background Over the past two decades the number of people living with cancer has increased. Many cancer survivors end up with long term disabilities requiring ongoing care and support. For many people, cancer survival now means living with a chronic and complex condition. Aim The purpose of this paper is to provide an overview of the long term management issues for cancer survivors and strategies to enhance their care. Discussion Cancer survivors require ongoing support in four key areas: prevention; surveillance; intervention for consequences of cancer and its treatment; and coordination between specialist and generalist providers. Conclusion Cancer survivors experience significant physical and psychological morbidity which makes minimising their burden of disability and distress an important priority. Survivors require ongoing care that is well co-ordinated, focuses on prevention, provides going surveillance whilst minimising and managing the long term effects of treatment and other co-morbidities.
Phillips, JL, Davidson, PM & Willcock, S 2009, 'An Insight Into the Delivery of a Palliative Approach in Residential Aged Care : The General Practitioner Perspective', Journal of Applied Gerontology, vol. 28, no. 3, pp. 395-405.View/Download from: UTS OPUS or Publisher's site
Managing the complex care needs of older people is a global concern. General practitioners (GPs) play a pivotal role in aged care, yet little is known abouttheir capacity to provide palliative care in nursing homes. This study aimed to investigate GPs' perceptions and understanding of a palliative approach. A convenience sample of rural GPs (n = 13) participated in a series of three focus groups undertaken in August, 2005. These focus groups were all audio-taped, transcribed, and analyzed using thematic content analysis. Four key themes emerged: uncertainty about a palliative approach, a need to reorientate providers, the challenges of managing third parties, and making it work and moving forward. These preliminary findings suggest that integrating a palliative approach in aged care requires GPs to have a greater awareness of this paradigm and to be more effectively engaged in multidisciplinary care planning.
Phillips, JL, Davidson, PM, Jackson, DE & Kristjanson, L 2008, 'Multi-Faceted Palliative Care Intervention: Aged Care Nurses' And Care Assistants' Perceptions And Experiences', Journal of Advanced Nursing, vol. 62, no. 2, pp. 216-227.View/Download from: UTS OPUS or Publisher's site
Aim. This paper is a report of a study to describe residential aged care nurses' and care assistants' perceptions of a multi-faceted palliative care intervention to identify potential areas to be addressed during subsequent action research phases. Backgr
Phillips, JL, Davidson, PM, Newton, PJ & DiGiacomo, M 2008, 'Supporting patients and their caregivers after-hours at the end of life: the role of telephone support', Journal of Pain and Symptom Management, vol. 36, no. 1, pp. 11-21.View/Download from: UTS OPUS or Publisher's site
Twenty-four hour access is accepted as a gold standard for palliative care service delivery, yet minimal data exist to justify the cost of this initiative to health care planners and policy makers. Further, there is scant information concerning optimal and efficient methods for delivering after-hours palliative care advice and support, particularly in regional and rural settings. This article reports on an evaluation of a local after-hours telephone support service in regional Australia. A centralized after-hours telephone support service was provided by generalist nurses at a Multipurpose Service in a rural community. A mixed-method evaluation, including semistructured interviews, was undertaken after 20 months of operation. During the period March 31, 2005 until November 15, 2006, 357 patients were registered as part of the Mid North Coast Rural Palliative Care Program. Ten percent of patients or their caregivers accessed the After-Hours Telephone Support Service, representing 55 occasions of service.
Davidson, PM, Dracup, K, Phillips, JL, Daly, J & Padilla, G 2008, 'Preparing for the worst while hoping for the best: The relevance of hope in the heart failure illness trajectory', Journal of Cardiovascular Nursing, vol. 22, no. 3, pp. 159-165.View/Download from: UTS OPUS or Publisher's site
Background: Patients with heart failure have higher mortality rates than those with most malignant diseases. The heart failure illness trajectory is one of gradual decline characterized by unpredictable events such as acute decompensation of heart failure or a sudden cardiac death. Health professionals have an obligation to give patients and their families concise and honest information concerning their prognosis. The challenge exists to give what ostensibly may seem a bleak prognosis within a context of hope and optimism. Aim: To explore the role of hope in heart disease and the potential utility of this construct in the development of nursing interventions. Methods: The electronic databases CINAHL, MEDLINE, EmBASE, and PSYCHlit were searched from 1982 to August 2004 using the key words "hope," "hopelessness," "heart disease," and "heart failure." Articles were subsequently sorted to meet the inclusion criteria of (1) a philosophical discussion of the construct of hope and/or (2) investigation of hope in heart disease. Results: This search retrieved 768 articles, and 24 met the inclusion criteria. Key findings from the review indicate that "hope" and "hopelessness" are underdeveloped, yet important constructs and conceptually linked with depression and spirituality. Intriguing findings from descriptive, observational studies have demonstrated the positive impact of expression of hope on cardiovascular outcomes. These findings need to be validated in randomized controlled trials.
Phillips, JL, Davidson, PM, Ollerton, R, Jackson, DE & Kristjanson, L 2007, 'A survey of commitment and compassion among nurses in residential aged care', International Journal of Palliative Nursing, vol. 13, no. 6, pp. 282-290.View/Download from: UTS OPUS or Publisher's site
To assess the views and attitudes of aged care staff providing direct care towards palliative care and to identify their learning needs. Design: Survey design using purposive sampling methods. Findings: Nurses and care assistants (n=222) employed within nine residential aged care facilities in regional Australia completed the survey. The majority had received on the job training and were committed to providing end-of-life care. Differences in the level of confidence to deal with patient/family interactions and manage complex palliative care scenarios were evident between nurses and care assistants (p<0.05). Both nurses and care assistants perceived a need for further education in symptom management and communication, yet their content need differed significantly between groups. Conclusions: Nurses and care assistants in residential aged care facilities demonstrate commitment to the delivery of palliative care and express a need for increased palliative care competencies. The heterogeneity of roles and educational preparation within the aged care workforce indicate that tailored palliative care education initiatives are required to meet the learning needs of aged care nurses and care assistants, particularly in relation to end-of-life care. These data have implications for skill-mix and model of care development.
Halcomb, E, Gholizadeh, L, DiGiacomo, M, Phillips, JL & Davidson, PM 2007, 'Literature review: considerations in undertaking focus group research with culturally and linguistically diverse groups', Journal Of Clinical Nursing, vol. 16, no. 6, pp. 1000-1011.View/Download from: UTS OPUS or Publisher's site
Aims. This integrated literature review seeks to identify the key considerations in conducting focus groups and discusses the specific considerations for focus group research with culturally and linguistically diverse groups. Background. The focus group method is a technique of group interview that generates data through the opinions expressed by participants. Focus groups have become an increasingly popular method of data collection in health care research. Although focus groups have been used extensively with Western populations, they are a particularly useful tool for engaging culturally and linguistically diverse populations. The success of focus groups in this context is dependent upon the cultural competence of the research team and the research questions.
Davidson, PM, Dracup, K, Phillips, JL, Padilla, G & Daly, J 2007, 'Maintaining hope in transition: A conceptual framework to guide interventions for people with heart failure', Journal of Cardiovascular Nursing, vol. 22, no. 1, pp. 58-64.View/Download from: UTS OPUS or Publisher's site
Theoretical frameworks provide a structure for the planning and delivery of nursing care and for research. Heart failure (HF), a condition of increasing prevalence in communities internationally, is responsible for high rates of morbidity, mortality, and great societal burden. The HF illness trajectory can be unpredictable and uncertain. Markers of transition, such as functional decline and increasing dependence, can signal the need for transition to a more palliative approach. This transition challenges clinicians to deliver information and interventions and to support patients and their families not only in relation to their physical status but also in the social, psychological, and existential dimensions. This article describes a theoretical framework, Maintaining Hope in Transition, informed by transition theory, to assist patients to cope with a diagnosis of HF and to guide development of nursing interventions. Transition theory provides a useful context to assist clinicians, patients, and their families adjust to the challenges inherent in a diagnosis of HF and negotiating the illness trajectory. Key factors acknowledged in the Maintaining Hope in Transition framework that determine its utility in models of care for HF patients are (1) acknowledging the changing of life circumstances, (2) restructuring reality, (3) dealing with vulnerability, (4) achieving normalization, and (5) resolving uncertainty. It is likely that incorporation of these factors in care planning, information, and interventions can facilitate patients' and their families' abilities to negotiate the HF illness trajectory, particularly in the advanced stages.
Grubbs, RS & Sica, DA 2007, 'Taking the Pressure off Type 2 Diabetes Mellitus: Implementing Hypertension Guidelines', Progress in Cardiovascular Nursing, vol. 22, no. 3, pp. 159-165.View/Download from: Publisher's site
Phillips, JL, Davidson, PM, Jackson, DE, Kristjanson, L, Bennett, M & Daly, J 2006, 'Enhancing palliative care delivery in a regional community in Australia', Australian Health Review, vol. 30, no. 3, pp. 370-379.View/Download from: UTS OPUS
Although access to palliative care is a fundamental right for people in Australia and is endorsed by government policy, there is often limited access to specialist palliative care services in regional, rural and remote areas. This article appraises the evidence pertaining to palliative care service delivery to inform a sustainable model of palliative care that meets the needs of a regional population on the mid-north coast of New South Wales.
Phillips, JL, Davidson, PM, Jackson, DE, Kristjanson, L, Daly, J & Curran, J 2006, 'Residential aged care: The last frontier for palliative care', Journal Of Advanced Nursing, vol. 55, no. 4, pp. 416-424.View/Download from: UTS OPUS or Publisher's site
This paper is a report of an explorative study describing the perceptions and beliefs about palliative care among nurses and care assistants working in residential aged care facilities in Australia. Background. Internationally, the number of people dying in residential aged care facilities is growing. In Australia, aged care providers are being encouraged and supported by a positive policy platform to deliver a palliative approach to care, which has generated significant interest from clinicians, academics and researchers. However, a little is known about the ability and capacity of residential aged care services to adopt and provide a palliative approach to care. Methods. Focus groups were used to investigate the collective perceptions and beliefs about palliative care in a convenience sample of nurses and care assistants working in residential aged care facilities in Australia. Thematic content analysis was used to analyse the data, which were collected during 2004. Results. Four major themes emerged: (1) being like family; (2) advocacy as a key role; (3) challenges in communicating with other healthcare providers; (4) battling and striving to succeed against the odds. Although participants described involvement and commitment to quality palliative care, they also expressed a need for additional education and support about symptom control, language and access to specialist services and resources.
Davidson, PM, Halcomb, E, Hickman, L, Phillips, JL & Graham, B 2006, 'Beyond the rhetoric: what do we mean by a model of care?', Australian Journal of Advanced Nursing, vol. 23, no. 3, pp. 47-55.View/Download from: UTS OPUS
This paper aims to define what is meant by the term 'model of care' and document the pragmatic systems and processes necessary to develop, plan, implement and evaluate novel models of care delivery.
DiGiacomo, M, Kochovska, S, Cahill, P, Virdun, C & Phillips, J 2018, 'Family-focused care span' in MacLeod, R & Van den Block, L (eds), Textbook of Palliative Care, Springer International Publishing AG, part of Springer Nature 2018.View/Download from: Publisher's site
A family-focused care approach in palliative
care recognizes the fundamental role of families
in contributing to the care of people with
life-limiting conditions. It is essential that
healthcare providers develop understanding
of families’ needs and the skills to collaborate
effectively with families caring for people at
the end of their lives. This chapter introduces
the concept and components of family-focused
palliative care. It continues with a discussion
of what patients and families perceive to be
the most important aspects of end-of-life care.
This chapter provides information to assist
healthcare providers who work with people
with life-limiting conditions and their families
in providing family-focused care and to
identify gaps and challenges to providing
The majority of people diagnosed with cancer are older and therefore are
likely to have co-morbidities at the time it is diagnosed and if the cancer progresses
to advanced disease. Guidance in the process of managing long-term co-morbidities
at the end of life requires clarity about the goals of care for the person’s cancer, and
for each of his/her co-morbidities. Why was a particular therapy started in the first
place? What risk is the therapy mitigating, and does it need to be continued? Very
few studies help to inform the process of ceasing medications. For example, with
cachexia and its associated weight loss, frequently encountered in advanced cancer,
the management of two of the most frequent conditions—hypertension and diabetes
—will change. The need for anti-hypertensives will decrease or the person will risk
postural symptoms and the need for lower doses of hypoglycaemic agents and
liberalised diets will be hallmarks of managing diabetes in order to avoid hypoglycaemia.
Mostly, this care is in the setting of multiple co-morbidities, making
review a complex and continuing process. Changes in co-morbidities can also
directly influence the anti-cancer therapies that are available to patients, because of
characteristics of the drug itself or changes in metabolism or elimination. Adjusting
chemotherapy in advanced disease also requires careful evaluation of the goals of
palliative treatment—are there symptoms that can best be addressed by disease
modifying treatments or are there other more direct, better tolerated symptom
control therapies available? Not only will there be a need for active management of
long-term co-morbidities, but people will need to adjust psychologically to these
changes. Modifying the goals of treatment is often the most overt signal to people
that their disease is progressing and therefore can be particularly confronting. Such
changes will often precipitate, or are an opportunity for, much wider conversations
about life, dying and dea...
Agar, M & Phillips, JL 2015, 'Palliative medicine and care of the elderly' in Cherny, N, Fallon, M, Kaasa, S, Portenoy, R, Currow, D & Morita, J (eds), Oxford Textbook of Palliative Medicine, Oxford University Press, Oxford, pp. In press-In press.View/Download from: UTS OPUS
Currow, D & Phillips, JL 2015, 'Policies on palliative care for older people in Australia' in Palliative care for older people A public health perspective, Oxford University Press.View/Download from: UTS OPUS or Publisher's site
The book begins by outlining the range of policies towards palliative care for older people that are found worldwide.
Ingham, J, Moore, H, Phillips, JL & Portenoy, RK 2015, 'Measurement of, and tools for, pain and other symptoms' in Oxford Textbook of Palliative Medicine, Oxford University Press, USA, pp. 376-390.
This fifth edition of the Oxford Textbook of Palliative Medicine is dedicated to the memory of Professor Geoffrey Hanks, pioneer in the field ofpalliative medicine, and co-editor of the previous four editions.
Phillips, JL, Davidson, P & Hosie, A 2015, 'Palliative Care in the Nursing Home' in Cherny, N, Fallon, M, Kaasa, S, Portenoy, R, Currow, D & Morita, J (eds), The Oxford Textbook of Palliative Medicine, Oxford University Press, Oxford.View/Download from: UTS OPUS
Phillips, JL, Ingham, J & McLeod, R 2015, 'The development of palliative medicine in Australia and New Zealand' in Bruera, E & Higginson, I (eds), Palliative Medicine, Hodder Arnold, London, pp. 59-70.View/Download from: UTS OPUS
LeBlanc, TW, Currow, D, Phillips, JL & Abernethy, AP 2014, 'Management of dyspnea' in Quill, TE & Miller, FG (eds), Palliative Care and Ethics, Oxford University Press, Oxford.View/Download from: UTS OPUS
Davidson, PM & Phillips, JL 2012, 'Palliative Care in Chronic Illness' in O'Connor, M, Lee, S & Aranda, S (eds), Palliative Care Nursing A Guide to Practice 3rd Edition, AUSMED Publications Pty Ltd, North Melbourne, VIC Australia, pp. 291-307.
Chronic illnesses are a major cause of death and disability globally. Many people now live for an extended period of time with a life-limiting illness. This is particularly pronounced in the context of population ageing. This chapter focuses on the issues involved in providing a palliative approach to care for individuals with chronic life-threatening illnesses other than cancer.
Davidson, PM & Phillips, JL 2010, 'Focus Group Methodology: Being Guided on a Journey from Novice to Expert' in Minichiello, V & Kottler, JA (eds), Qualitative Journeys: Student and Mentor Experiences with Research, SAGE, Thousand Oaks, California, pp. 255-276.View/Download from: UTS OPUS
DiGiacomo, M, Luckett, T, Hickman, L, Hrlec, M & Phillips, J 2019, 'Equipping tomorrow’s professional leaders in palliative care to recognise and work with assets beyond the healthcare system', Public Health and Palliative Care International, Leura.
DiGiacomo, M, Luckett, T, Hickman, L, Hrlec, M & Phillips, J 2019, 'Recognising and working with assets beyond the healthcare system: preparing future leaders in palliative care', Oceanic Palliative Care Conference, Perth.
Rao, A, DiGiacomo, M, Phillips, J & Hickman, L 2019, 'Health professional perspectives of the organisational barriers and facilitators to implementing meditation in heart disease clinical settings', Australian Cardiac Rehabilitation Association, Kirribilli, NSW.
Rao, A, Zecchin, R, Newton, P, Phillips, J, DiGiacomo, M, Denniss, R & Hickman, L 2019, 'Prevalence and predictors of depression and anxiety in a cardiac rehabilitation population and its impact on adherence: A cohort study', Australian Cardiac Rehabilitation Association, Kirribilli, NSW.
Murray-Parahi, P, DiGiacomo, M, Phillips, J, Jackson, D & Davidson, P 2018, 'Preparing next generation nurses for primary health care roles: the barriers and enablers of new graduate registered nurse professional transition', 7th International Nurse Education Conference, Banff, Canada.
DiGiacomo, M, Lewis, J, Parker, D, Chang, S, Koirala, B & Phillips, J 2018, 'Healthy Ageing, Yet Unmet Need in Australian War Widows: A Sequential Mixed Methods Study', International Council of Women's Health Issues Congress, Hong Kong.
Ferguson, C, Hickman, L, Phillips, J, Newton, P, Inglis, S, Lam, L & Bajorek, B 2017, 'An mHealth intervention to improve nurses’ atrial fibrillation and anticoagulation knowledge and practice: the EVICOAG study', International Journal of Stroke, Stroke Society of Australasia, SAGE Publications, Queenstown, New Zealand, pp. 9-9.
Ferguson, C, Hickman, L, Phillips, J, Newton, P, Inglis, S, Lam, L & Bajorek, B 2017, 'Exploring the acute care registered nurses’ contribution in anticoagulation decision making for stroke prevention in atrial fibrillation', International Journal of Stroke, Stroke Society of Australasia, SAGE Publications, Queenstown, New Zealand, pp. 48-48.
Rihari-Thomas, J, DiGiacomo, M, Phillips, J, Newton, P & Davidson, PM 2017, 'Physicians’ and Nurses’ Perspectives of a Rapid Response System in an Academic Health Centre: A Focus Group Study', 13th International Conference on Rapid Response Systems and Medical Emergency Teams, International Society for Rapid Response Systems (iSSRS), Chicago.
Disler, RT, Luckett, T, Phillips, JL, Johnson, M, Garcia, M, Bhattarai, P, Hutchinson, A, Currow, D, Carrieri-Kohlman, V, Whelan, B, Newton, P, Agar, M, Chye, R, Sheehan, C, Ivynian, S & Davidson, PM 2017, 'Respiratory Patient Experiences In Self-Managing Emergency Department 'near-Miss' For Breathlessness: A Strengths-Based Qualitative Study', AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, International Conference of the American-Thoracic-Society (ATS), AMER THORACIC SOC, Washington, DC.
Johnson, M, Swan, F, Booth, S, Currow, D, Hart, S & Phillips, JL 2017, 'The Hand-Held Fan For Breathlessness, How Do Patients Use It And Does It Help?', AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, International Conference of the American-Thoracic-Society (ATS), AMER THORACIC SOC, Washington, DC.
Phillips, JL, Kochovska, S, Luckett, T & Agar, M 2017, 'Impacts on Employment, Finances and Lifestyle for Working Age People Facing an Expected Premature Death: A Systematic Review', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 220-220.
Stone, E, Rankin, N, Phillips, J, Fong, K, Miller, A, Largey, G, Zielinski, R, Flynn, P, Currow, D & Shaw, T 2017, 'AMDAT Lung, An Ideal Lung Cancer MDT Dataset', Journal of Thoracic Oncology, Elsevier, pp. S1442-S1442.View/Download from: UTS OPUS
Vongmany, J, Luckett, T, Lam, L & Phillips, JL 2017, 'Family Behaviours that Impact on the Capacity of Adults Living with Type 2 Diabetes to Adhere to Their Self-Management Plan: A Systematic Review and Meta-Synthesis', DIABETES, 77th Scientific Sessions of the American-Diabetes-Association, AMER DIABETES ASSOC, San Diego, CA, pp. A221-A221.
Xu, X, Luckett, T, Wang, AY, Lovell, M & Phillips, JL 2017, 'Cancer Pain Management Needs and Perspectives of Patients from Chinese Backgrounds: A Systematic Review of the Chinese and English Literature', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 220-221.
Rao, A, DiGiacomo, M, Newton, P, Phillips, J, Davidson, PM & Hickman, L 2016, 'Meditation as a secondary prevention strategy for heart disease: a systematic review', Australian Cardiac Rehabilitation Association Conference, Adelaide.
Rao, A, Sibbritt, D, Phillips, J & Hickman, L 2016, '‘Prayer or spiritual healing as adjuncts to conventional care: A cross sectional analysis of the prevalence and characteristics of use among women.', Australian Longitudinal Study on Women’s Health Scientific Meeting, Newcastle, Australia.View/Download from: UTS OPUS
Rao, A, Sibbritt, D, Phillips, J & Hickman, LD 2016, 'Prayer or spiritual healing for the health and well-being of two generations of women: A nationally representative cross-sectional study.', 21st international Council on Women's Health Issues (ICOWHI) Congress. Scale and Sustainability: Moving Women’s Health Issues Forward., Baltimore, Maryland, USA.View/Download from: UTS OPUS
Stone, E, Rankin, N, Phillips, JL, Fong, K & Shaw, T 2016, 'THE LUNG CANCER DATABASE MAP IN AUSTRALIA: OVERVIEW OFA DESCRIPTIVE STUDY PROTOCOL', Respirology, Wiley: 12 months, pp. 108-108.
DiGiacomo, M, Lewis, J, Phillips, J, Davidson, PM & Nolan, M 2015, 'The role of gender, administrative burden, and financial concerns in the transition to widowhood; a qualitative study', Australian Association of Gerontology, Alice Springs.
Chroinin, DN, Goldsbury, D, O'Connell, DL, Beveridge, A, Davidson, P, Girgis, A, Ingham, N, Phillips, JL, Wilkinson, A & Ingham, J 2015, 'Patterns of hospital-based healthcare use amongst dementia patients in their last year of life in New South Wales (NSW)', AUSTRALASIAN JOURNAL ON AGEING, pp. 22-22.
Heneka, N, Phillips, JL, Rowett, D & Shaw, T 2015, 'Identifying opioid medication error types, incidence and patient impact in adult oncology and palliative care settings: a systematic review', Asia-Pacific Journal of Clinical Oncology, pp. 128-128.View/Download from: UTS OPUS
Lovell, M, Luckett, T, Phillips, J, Agar, M, Ryan, L, Lam, L, McCaffrey, N, Boyle, F, Stubbs, J, Shaw, T, Currow, D, Hosie, A & Davidson, P 2015, 'Clinical Trial Protocol - Implementing Clinical Practice Guidelines For Cancer Pain In Adults To Ensure Equitable, Cost-Effective, Evidence-Based, Person-Centred Care: A Phase III Pragmatic Stepped Wedge Cluster Randomised Controlled Trial Of Guidelines And Screening With Implementation Strategies Versus Guidelines And Screening Alone To Improve Pain In Adults With Cancer Attending Outpatients Oncology And Palliative Care Centres', Asia-Pacific Journal of Clinical Oncology, pp. 162-162.
Phillips, JL 2015, 'The importance of undertaking and publishing feasibility studies: the results from a randomized controlled pilot trial of The Pink Women's Wellness Program', MENOPAUSE-THE JOURNAL OF THE NORTH AMERICAN MENOPAUSE SOCIETY, LIPPINCOTT WILLIAMS & WILKINS, pp. 921-922.View/Download from: Publisher's site
Yee, J, Davis, GM, Hackett, D, Beith, JM, Wilcken, N, Currow, D, Emery, J, Phillips, J, Martin, A, Hui, R, Harrison, M, Segelov, E & Kilbreath, SL 2015, 'Physical Activity For Women With Metastatic Breast Cancer: A Feasibility Study', MEDICINE AND SCIENCE IN SPORTS AND EXERCISE, LIPPINCOTT WILLIAMS & WILKINS, pp. 464-464.View/Download from: Publisher's site
Phillips, JL, Heneka, N & Hickman, L 2014, 'Impact of a Qstream online learning module on palliative care nurses’ pain assessment competencies and patients’ report on pain: Results from a quasi-experimental pilot study', Asia Pacific Journal of Clinical Oncology, Wiley: 12 months.View/Download from: UTS OPUS
Goldsbury, D, Ingham, JM, Girgis, A, Wilkinson, A, Phillips, J, Davidson, P & O'Connell, DL 2014, 'HOSPITAL-BASED CARE IN THE LAST YEAR OF LIFE FOR PEOPLE DYING FROM CANCER IN NEW SOUTH WALES: A RETROSPECTIVE COHORT STUDY', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 95-96.
Lovell, MR, Birch, M-R, Luckett, T, Davidson, PM, Phillips, J, Agar, M, Boyle, FM, Stubbs, J & Spruyt, O 2014, 'PILOT OF PAIN INDICATOR AUDIT TOOL AS PART OF A COMPLEX INTERVENTION TO IMPROVE CANCER PAIN OUTCOMES', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 45-45.
Lovell, MR, Luckett, T, Phillips, J, Boyle, F, Davidson, PM, Stubbs, J, Birch, M-R, Spruyt, O & Agar, M 2014, 'CANCER PAIN: CLOSING THE EVIDENCE-PRACTICE GAP', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 101-101.
Phillips, JL, Heneka, N, Lam, L & Shaw, T 2014, 'A complex Qstream (R) pain assessment intervention on cancer nurses' pain screening and assessment practices: results from a quasi-experimental study', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, pp. 136-136.
Phillips, JL, Heneka, N, Lam, LT & Shaw, T 2014, 'Multi-Centre Pre-Post Test Trial of a complex Qstream (C) pain assessment intervention on cancer nurses' pain screening and assessment practices', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, pp. 206-206.
Rankin, N, Shaw, T, McGregor, D, Butow, P, White, K, Young, J, Phillips, J, Pearson, S, York, S, Simes, J, Jones, R, Barnes, D & Stone, E 2014, 'BUILDING AN IMPLEMENTATION SCIENCE PROGRAM IN LUNG CANCER CARE: RESULTS FROM SYDNEY CATALYST TRANSLATIONAL CANCER RESEARCH CENTRE', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 85-85.
Shaw, T, Rankin, N, McGregor, D, White, K, Phillips, J, Butow, P, Young, J, Trevena, L, Pearson, S & York, S 2014, 'A SYSTEMATIC APPROACH TO CLOSING EVIDENCE GAPS IN CANCER CARE', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 22-22.
Phillips, JL, Heneka, N, Hickman, L, Lam, L & Shaw, T 2013, 'Can a novel on-line pain assessment learning module improve specialist palliative care nurse’s pain assessment knowledge?: Results from a pilot Spaced Education initiative', 16th CNSA Winter Congress, Brisbane Convention and Exhibition Centre, Queensland.
Phillips, JL, Heneka, N, Hickman, L, Lam, L & Shaw, T 2012, 'Spaced Education in the Specialist Palliative Care Setting: exploring it’s potential to improve pain management', 4th Biennial Palliative Care Nurses Australia Conference, Melbourne.
Phillips, JL, Heneka, N, Hickman, L, Lam, L & Shaw, T 2013, 'The impact of a novel, online learning module on specialist palliative care nurses’ pain assessment knowledge and practices', European Journal of Palliative Care, European Palliative Care Association Conference, Prague.
Phillips, J 2013, 'PALLIATIVE CARE SYSTEMS: EVIDENCE FOR KEY MODELS OF CARE ELEMENTS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 95-95.
Phillips, J, Heneka, N & Shaw, T 2013, 'EXPLORING OPIATE ERRORS IN THE SPECIALIST CANCER AND PALLIATIVE CARE SETTING: PERCEPTIONS OF KEY STAKEHOLDERS', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 127-127.
Phillips, J, Heneka, N & Shaw, T 2013, 'MAPPING CANCER PAIN SCREENING, ASSESSMENT AND REASSESSMENT PRACTICES WITHIN ONE AUSTRALIAN HEALTH DISTRICT: RESULTS FROM A BASELINE CHART AUDIT', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 126-127.
RaNKin, NM, Shaw, T, Mcgregor, D, Butow, P, Young, J, White, K, Phillips, J, Pearson, S, Simes, J, O'Connell, R, Stone, E & Barnes, D 2013, 'IDENTIFYING EVIDENCE-PRACTICE GAPS IN LUNG CANCER AND PRIORITY SETTING WITH CLINICIANS IN NSW, AUSTRALIA', JOURNAL OF THORACIC ONCOLOGY, LIPPINCOTT WILLIAMS & WILKINS, pp. S699-S700.
Hickman, L, Kelly, H & Phillips, JL 2012, 'EVITECH: a pilot study exploring ways to optimise the uptake of evidence-based practice to undergraduate nurses', 23rd Research Conference, Sigma, Theta Tau International, Research Conference, Sigma, Theta Tau International, Brisbane, QLD.
Phillips, JL, Andrews, L & Hickman, L 2012, 'Factors predicting stays of over 30 days in patients dying in a specialist palliative care unit', 19th International Congress on Women’s Health, Mahidol University Bangkok, Thailand.
Phillips, JL, Heneka, N, Hickman, L, Lam, L & Shaw, T 2012, 'Enhancing interdisciplinary team pain assessment communication: Can Spaced Education improve comprehensive pain assessment practices in the specialist palliative care setting?', Palliative Care NSW State Conference, Dubbo.
Phillips, JL, Hickman, L, Heneka, N & Shaw, T 2012, 'Assessing specialist palliative care nurses pain assessment capabilities: identifying opportunities to improve patient outcomes', 16th Cancer Nurses Society Australia Conference, Hobart.
Phillips, JL, Hickman, L, Heneka, N & Shaw, T 2012, 'Can a novel on-line CPD program increase specialist palliative care nurses pain assessment capabilities and reduce patients’ reported pain scores?', WA Palliative Care Conference, Perth, WA.
DiGiacomo, M, Davidson, PM, Lewis, J, Phillips, J & Nolan, M 2012, 'Early Widowhood in Older Women: A Time of Vulnerability and Health Stress', International Council on Women’s Health Issues (ICOWHI) Congress, Bangkok.
Clark, K, Currow, D, Talley, N, Dinning, P, Lam, L, Agar, M, Davidson, P, Shelby-James, T & Phillips, J 2012, 'Exploring the Underlying Physical Changes That Contribute to Bowel Problems in Palliative Care: Preliminary Result', JOURNAL OF PALLIATIVE CARE, CENTRE RECHERCHE INSTITUT UNIV GERIATRIE MONTREAL, pp. 223-224.
Clayton, J, Davidson, PM, Phillips, J, Luckett, T, Green, A, Agar, M, Broadbent, A & Lovell, M 2012, 'STOP PAIN PROJECT: A COLLABORATIVE, INTERDISCIPLINARY PROJECT TO IMPROVE THE PERSON-CENTREDNESS OF ASSESSMENT AND MANAGEMENT OF CANCER PAIN', ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, pp. 267-267.
Phillips, JL, Ramadge, J, Evans, R & Currow, D 2009, 'CanNET a new service model: linking regional and metropolitan cancer services into single networks', 10th National Rural Health Conference, National Rural Health Conference, National Rural Health Alliance, Cairns, Australia, pp. 1-11.View/Download from: UTS OPUS
Background: The treatment for cancer is often complex, involving many disciplines and therapies, which makes it difficult for Australians living in rural and remote areas to access the full range of care required within their local community. Aim: The Cancer Service Networks National Demonstration Program (CanNET) is a Commonwealth initiative which aimed to improve access to cancer care by linking regional and metropolitan cancer services. Method: Up to $7 million was made available across seven jurisdictions over a two year period from 2007 to 2009. This funding was to assist the development of sustainable links between cancer specialists and other leading health professionals in metropolitan cancer services and their colleagues in rural and regional centres. Each jurisdiction also made a contribution to the development of the cancer service networks. The cancer service network model is underpinned by: active consumer involvement; the development of agreed referral pathways; a multidisciplinary approach to cancer control; involvement of primary care and allied health professionals; championing of evidence-based practice; access to continuing professional development and training; and integration of rural and regional cancer services into a broad practice network.
She is an Honorary Professor at the Schools of Nursing at Oxford Brookes, University Oxford, UK, Hong Kong Polytechnic University, Honk Kong, Sun Yat-Sen, University, Guangzhou, China and the University of Notre Dame Australia, Sydney; plus the School of Medicine, Sydney University. She is the Chair of the Scientific Committee of the Wolfson Palliative Care Research Centre, University of Hull, in the UK. Professor Phillips is the current President of Palliative Care Nurses Australia, a Fellow of Australian College of Nursing and is a member of Sigma Theta Tau Nursing Honour Society. She is a member of the International Society of Nurses in Cancer Care Policy-Advocacy Committee’s and contributed to the development of their global palliative care position statement.